Journal of Pediatric Rehabilitation Medicine This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

JPRM vol. 17 issue 1 Opening Editorial
J Pediatr Rehabil Med. 2024;17(1):1. doi: 10.3233/PRM-249002.NO ABSTRACTPMID:38552126 | DOI:10.3233/PRM-249002 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Heakyung Kim Christopher Raffi Najarian Justin W Ramsey Sruthi Pandipati Thomas Source Type: research

Assessment of mental health and quality of life among children with congenital heart disease
CONCLUSION: Children with CHD have an increased risk of psychiatric disorders and a lower overall QoL score.PMID:38552120 | DOI:10.3233/PRM-220109 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Asmaa A El Sehmawy Shaimaa Younes Abd Elaziz Asmaa Abdelghany Elsheikh Fatma A Elsawy Amal Abd Elsalam Amin Ahmed Mostafa Omran Amal Younan Abd El Malek Source Type: research

Utilizing combination intrathecal baclofen and analgesic medication to manage spasticity and pain in patients with pediatric-onset disability: Case series
CONCLUSION: Use of pumps with antispasmodic and analgesic medication for combination intrathecal medication delivery should be considered in the management of patients with childhood-onset disabilities who have both severe spasticity and pain.PMID:38552121 | DOI:10.3233/PRM-220100 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Denesh Ratnasingam Tess Woehrlen Samantha Koerber Emma Drenth Neena Marupudi Melisa Concepcion Erika Erlandson Source Type: research

Pure grit: Ordinary and extraordinary
J Pediatr Rehabil Med. 2024;17(1):139-141. doi: 10.3233/PRM-240012.NO ABSTRACTPMID:38552122 | DOI:10.3233/PRM-240012 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Matthew MacCarthy Source Type: research

The critical need to accelerate cerebral palsy research with consumer engagement, global networks, and adaptive designs
J Pediatr Rehabil Med. 2024;17(1):9-17. doi: 10.3233/PRM-240014.ABSTRACTThe prevalence of cerebral palsy (CP) varies globally, with higher rates and burden of disease in low- and middle-income countries. CP is a lifelong condition with no cure, presenting diverse challenges such as motor impairment, epilepsy, and mental health disorders. Research progress has been made but more is needed, especially given consumer demands for faster advancements and improvements in the scientific evidence base for interventions. This paper explores three strategies to accelerate CP research: consumer engagement, global clinical trial netwo...
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Sruthi P Thomas Iona Novak Anina Ritterband-Rosenbaum Karin Lind Annabel Webb Paul Gross Maria McNamara CP Global Clinical Trials Network Source Type: research

Management and treatment of musculoskeletal problems in adults with cerebral palsy: Experience gained from two lifespan clinics
J Pediatr Rehabil Med. 2024;17(1):19-33. doi: 10.3233/PRM-240018.NO ABSTRACTPMID:38552124 | DOI:10.3233/PRM-240018 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Authors: Mark Katsma Haiqing Liu Xiaoyu Pan Kyle J Ryan David P Roye Henry G Chambers Source Type: research

Erratum to: 2023 updates to the spina bifida transition to adult care guidelines
J Pediatr Rehabil Med. 2024;17(1):143. doi: 10.3233/PRM-249001.NO ABSTRACTPMID:38552125 | DOI:10.3233/PRM-249001 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - March 29, 2024 Category: Rehabilitation Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024;17(1):35-45. doi: 10.3233/PRM-240006.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with CP, ages 18 to 65,...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024;17(1):3-7. doi: 10.3233/PRM-240013.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical fields are explored...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research

Exploring the sexual experiences and challenges of individuals with cerebral palsy
J Pediatr Rehabil Med. 2024 Mar 22. doi: 10.3233/PRM-240006. Online ahead of print.ABSTRACTPURPOSE: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.METHODS: This was a descriptive and cross-sectional single institution survey among individuals with ...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Amber Newell Neal Liang Jan Moskowitz Nancy Lee Xiaoyu Norman Pan Heakyung Kim Source Type: research

Medical delivery without representation?: Examining disability representation within the healthcare community
J Pediatr Rehabil Med. 2024 Mar 23. doi: 10.3233/PRM-240013. Online ahead of print.ABSTRACT Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many concluded several state policies were discriminatory in nature toward persons with disabilities (PWD). Lack of disability representation in medical fields may contribute to such discrimination within state and hospital medical policies. The underrepresented numbers of PWD in medical...
Source: Journal of Pediatric Rehabilitation Medicine - March 22, 2024 Category: Rehabilitation Authors: Justin Ramsey Christopher Raffi Najarian Source Type: research