A Lost Idyll of Connection?
(Source: Journal of Bioethical Inquiry)
Source: Journal of Bioethical Inquiry - December 23, 2021 Category: Medical Ethics Source Type: research
Correction to: “To Normalize is to Impose a Requirement on an Existence.” Why Health Professionals Should Think Twice Before Using the Term “Normal” With Patients
(Source: Journal of Bioethical Inquiry)
Source: Journal of Bioethical Inquiry - December 23, 2021 Category: Medical Ethics Source Type: research
Hearing Parents Voices: Parental Refusal of Cochlear Implants and the Zone of Parental Discretion
AbstractIt has been forty years since the first multi-channel cochlear implant was used in Australia. While heralded in the hearing world as one of the greatest inventions in modern medicine, not everyone reflects on this achievement with enthusiasm. For many people in the Deaf community, they see the cochlear implant as a tool that reinforces a social construct that pathologizes deafness and removes Deaf identity. In this paper, I set out the main arguments for and against cochlear implantation. While I conclude that, on balance, cochlear implants improve the well-being and broaden the open futures of deaf children, this ...
Source: Journal of Bioethical Inquiry - December 16, 2021 Category: Medical Ethics Source Type: research
Hearing Parents ’ Voices: Parental Refusal of Cochlear Implants and the Zone of Parental Discretion
AbstractIt has been forty years since the first multi-channel cochlear implant was used in Australia. While heralded in the hearing world as one of the greatest inventions in modern medicine, not everyone reflects on this achievement with enthusiasm. For many people in the Deaf community, they see the cochlear implant as a tool that reinforces a social construct that pathologizes deafness and removes Deaf identity. In this paper, I set out the main arguments for and against cochlear implantation. While I conclude that, on balance, cochlear implants improve the well-being and broaden the open futures of deaf children, this ...
Source: Journal of Bioethical Inquiry - December 16, 2021 Category: Medical Ethics Source Type: research
Response Belonging, Interdisciplinarity, and Fragmentation: On the Conditions for a Bioethical Discourse Community
AbstractI have been invited to reflect on Discourse communities and the discourses of experience a paper co-authored by Little, Jordens, and Sayers and discuss how their analysis of discourse communities has influenced the development of bioethics and consider its influence now and potential effects in the future. Their paper examines the way different discourse communities are shaped by different experiences and desires. The shared language and experiences can provide a sense of belonging and familiarity. These can be positive aspects of a discourse community, but there are also risks restricting the voices and experien...
Source: Journal of Bioethical Inquiry - December 2, 2021 Category: Medical Ethics Source Type: research
Response Corruption, Trust, and Professional Regulation
AbstractIn their 2018 article in theCambridge Quarterly of Healthcare Ethics, Little, Lipworth, and Kerridge unpack the concept of corruption and clarify the mechanisms that foster corruption and allow it to persist, noting that organizations are corruptogenic. To address the so-what question, I draw on research about trust and trustworthiness, emphasizing that a persons well-being and sense of security require trust to be present at both the individual and organizational levelswhich is not possible in an environment where corruption and misconduct prevail. I highlight similarities in Little et al.s framing of corru...
Source: Journal of Bioethical Inquiry - December 2, 2021 Category: Medical Ethics Source Type: research
Response Forty-Seven Years Later: Further Studies in Disappointment?
AbstractThis paper provides a commentary on Vascular amputees: A study in disappointment (Little et al.1974) and its significance in the development of the disability rights movement, as well as the movements for values-based medicine and person-centred health and social care. (Source: Journal of Bioethical Inquiry)
Source: Journal of Bioethical Inquiry - December 2, 2021 Category: Medical Ethics Source Type: research
Response —Belonging, Interdisciplinarity, and Fragmentation: On the Conditions for a Bioethical Discourse Community
AbstractI have been invited to reflect on “Discourse communities and the discourses of experience” a paper co-authored by Little, Jordens, and Sayers and discuss how their analysis of discourse communities has influenced the development of bioethics and consider its influence now and potential effects in the future. Their paper examines the way different discourse communities are shaped by different experiences and desires. The shared language and experiences can provide a sense of belonging and familiarity. These can be positive aspects of a discourse community, but there are also risks restricting the voices and expe...
Source: Journal of Bioethical Inquiry - December 2, 2021 Category: Medical Ethics Source Type: research
Response —Corruption, Trust, and Professional Regulation
AbstractIn their 2018 article in theCambridge Quarterly of Healthcare Ethics, Little, Lipworth, and Kerridge unpack the concept of corruption and clarify the mechanisms that foster corruption and allow it to persist, noting that organizations are “corruptogenic.” To address the “so-what” question, I draw on research about trust and trustworthiness, emphasizing that a person’s well-being and sense of security require trust to be present at both the individual and organizational levels—which is not possible in an environment where corruption and misconduct prevail. I highlight similarities in Little et al.’s fr...
Source: Journal of Bioethical Inquiry - December 2, 2021 Category: Medical Ethics Source Type: research
Response —Forty-Seven Years Later: Further Studies in Disappointment?
AbstractThis paper provides a commentary on “Vascular amputees: A study in disappointment” (Little et al.1974) and its significance in the development of the disability rights movement, as well as the movements for values-based medicine and person-centred health and social care. (Source: Journal of Bioethical Inquiry)
Source: Journal of Bioethical Inquiry - December 2, 2021 Category: Medical Ethics Source Type: research
Anatomy of Being, Metaphysics of Death: The Case of Avicenna s Logical Dissection
AbstractElucidating a metaphysics of medicine is vital for framing a coherent medical ethics. In this paper, I examine the historical case of Avicenna, the eleventh century physician-philosopher. Avicenna radicalizes the dissective power of reason using a logicized Aristotelian metaphysics to clarify concepts at the metaphysical level, which I call his anatomy of being. One of the practical consequences of Avicenna s metaphysics is a dehumanizing eschatology of death. I outline the main elements of Avicennas thought that constitute his anatomy of being. Through an examination of his logic, metaphysics, and psychology, I ...
Source: Journal of Bioethical Inquiry - December 1, 2021 Category: Medical Ethics Source Type: research
Rules and Resistance: A Commentary on An Archeology of Corruption in Medicine
AbstractIn the paper An archeology of corruption in medicine (2018), Miles Little, Wendy Lipworth, and Ian Kerridge (the authors or Little et al.) present an account of corruption and describe its prevalent forms in medicine. In presenting an individual-focused account of corruption found within soc ial entities (organizations, institutions, and systems), Little et al. argue that these entities are corruptible by nature and that certain individuals are prone to take advantage of the corruptibility of social entities to pursue their own ends. The authors state that this is not preventable, so the way to remedy corru...
Source: Journal of Bioethical Inquiry - December 1, 2021 Category: Medical Ethics Source Type: research
Physician Patient Relationship, Assisted Suicide and the Italian Constitutional Court
AbstractIn 2017, Italy passed a law that provides for a systematic discipline on informed consent, advance directives, and advance care planning. It ranges from decisions contextual to clinical necessity through the tool of consent/refusal to decisions anticipating future events through the tools of shared care planning and advance directives. Nothing is said in the law regarding the issue of physician assisted suicide. Following the DJ Fabo case, the Italian Constitutional Court declared the constitutional illegitimacy of article 580 of the criminal code in the part in which it does not exclude the punishment of those who...
Source: Journal of Bioethical Inquiry - December 1, 2021 Category: Medical Ethics Source Type: research
Between Medical and Social Egg Freezing
AbstractEgg freezing has led to heated debates in healthcare policy and bioethics. A crucial issue in this context concerns the distinction between medical and social egg freezing (MEF and SEF)contrasting objections to bio-medicalization with claims for oversimplification. Yet such categorization remains a criterion for regulation. This paper aims to explore the regulatory boundary-work around the medicalsocial distinction in different egg freezing regulations. Based on systematic documents analysis we present a cross-national comparison of the way the medicalsocial differentiation finds expression in reg...
Source: Journal of Bioethical Inquiry - December 1, 2021 Category: Medical Ethics Source Type: research
How Good is the Science That Informs Government Policy? A Lesson From the U.K. s Response to 2020 CoV-2 Outbreak
AbstractIn an era when public faith in politicians is dwindling, yet trust in scientists remains relatively high, governments are increasingly emphasizing the role of science based policy-making in response to challenges such as climate change and global pandemics. In this paper we question the quality of some scientific advice given to governments and the robustness and transparency of the entire framework which envelopes such advice, all of which raise serious ethical concerns. In particular we focus on the so-called Imperial Model which heavily influenced the government of the United Kingdom in devising its response to ...
Source: Journal of Bioethical Inquiry - December 1, 2021 Category: Medical Ethics Source Type: research
