Dmd & bmd – clinical

Patients with Duchenne and Becker muscular dystrophy (DBMD) have multisystem care needs for motor, cardiac, pulmonary, neurobehavioral health problems and bone and endocrine co-morbidities from glucocorticoid therapy. Carrier moms and sisters are at risk for cardiomyopathy. The Duchenne program at University of Massachusetts Medical School was established to overcome the coordination challenges of function-based specialist care groups. Lack of an integrated care management framework results in fragmented care and suboptimal outcomes.

Source: Neuromuscular Disorders - September 28, 2020 Category: Neurology Authors: B. Wong, T. Seckler, L. Dalla Pazze, R. Brown, L. Rhein, T. Flotte Source Type: research