Making public and patient involvement in clinical trials more than aspirational

There is growing evidence that including patients and public participants in the planning and execution of clinical trials can improve the applicability of research questions to real patient concerns and may more meaningfully affect patients' quality of life.1 In contrast to targeting metrics that may be far removed from patient experience, patient-centered outcomes research seeks to "provide patients and the public information they can use to make decisions that reflect their desired health outcomes."2 The pathway to this laudable goal is not always straightforward, however.

Source: Neurology Clinical Practice - June 7, 2020 Category: Neurology Authors: Hinson, H. E., Hamilton, R. H., Matchar, D. B. Tags: Clinical trials Methodology/study design, All global neurology, Multiple sclerosis Editorial Source Type: research