The Economic Value of the Delivery of Primary Cleft Surgery in Timor Leste 2000 –2017

ConclusionA sustained and consistent visiting team approach providing repair of cleft lip and palate defects has resulted in considerable economic gain for Timor Leste over an 18-year period. The training of a local surgeon and multidisciplinary team with ongoing support to the in-country cleft service is expected to reduce the cost per DALY averted once the surgeon and team are able to manage clefts independently.
Source: World Journal of Surgery - Category: Surgery Source Type: research

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Publication date: Available online 31 May 2018Source: Egyptian Journal of Medical Human GeneticsAuthor(s): Soheir S. AbouEl-Ella, Maha A. Tawfik, Wafaa Moustafa M. Abo El-Fotoh, Mai A. ElbadawiAbstractCongenital anomalies is one of the main causes of physical disabilities, stillbirths and neonatal deaths. The exact etiology of most congenital anomalies is unidentified but genetic and environmental causes are accused.We aimed to study congenital anomalies regarding frequency, clinical pattern and associated risk factors.A cross-sectional study was conducted on 100 infants and children with congenital anomalies attended to o...
Source: Egyptian Journal of Medical Human Genetics - Category: Genetics & Stem Cells Source Type: research
As a disability expert, my whole career has been spent giving parents advice. I’ve given advice on parenting, doctors, child development, school and resources to support them. I was confident working with families and helping them navigate the often crazy and overwhelming world of special needs. But when I was 34 weeks pregnant with my own child, I found myself on the other side of the situation. My husband and I learned that our son, Jack, would be born with a cleft palate and micrognathia, or an undeveloped lower jaw. The extent of these facial differences wouldn’t be known until he was born. We met with doct...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories Cleft and Craniofacial Center cleft lip and palate Dr. Carolyn Rogers Dr. Cory Resnick Pierre Robin sequence Source Type: news
Jennifer and 8-week-old Jack Jennifer Ryan is a disability expert. She started her career doing home visits with drug-addicted and abused babies, then ran a center and started a program for kids with autism and now works in a collaborative elementary school. But nothing prepared this new mom for the challenges she would face with her own child. “It’s completely different when it’s your own,” she says now, after her son Jack was treated at Boston Children’s Hospital’s Cleft and Craniofacial Center for a group of birth defects known as Pierre Robin sequence or just Robin sequence. For...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories Research and Innovation Cleft and Craniofacial Center cleft palate Dr. Carolyn Rogers Dr. Cory Resnick Pierre Robin sequence Source Type: news
Jennifer and 8-week-old Jack Jennifer Ryan is a disability expert. She started her career doing home visits with drug-addicted and abused babies, then ran a center and started a program for kids with autism and now works in a collaborative elementary school. But nothing prepared this new mom for the challenges she would face with her own child. “It’s completely different when it’s your own,” she says now, after her son Jack was treated at Boston Children’s Hospital’s Cleft and Craniofacial Center for a group of birth defects known as Pierre Robin sequence or just Robin sequence. For...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & Conditions Our Patients’ Stories Research and Innovation Cleft and Craniofacial Center cleft palate Dr. Carolyn Rogers Dr. Cory Resnick Pierre Robin sequence Source Type: news
Conditions:   Unilateral Cleft Lip and Palate;   Cleft Lip;   Cleft Palate;   Developmental Disabilities;   Restricted Language DevelopmentInterventions:   Procedure: two stage palate surgical repair;   Procedure: One stage Palate  Surgical repairSponsors:   Professor Fernando Figueira Integral Medicine Institute;   University of Sao PauloActive, not recruiting - verified December 2014
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
Section: Articles Dissociation: Trapped in Your BodyImagine you are standing with your head poking out of a little tent, alone in an enormous open clearing, in the middle of a raging hurricane. There’s almost no space to hear yourself think over the wind. At the edge of the clearing, far away, the wind knocks down trees and power lines. The storm is so vast and loud you can’t hear your own voice over the pummeling noise, because the wind whips the words out of your mouth before you utter them.Someone you care about is standing outside the storm, and they are so far away they are hard to make out. You can b...
Source: The Icarus Project - Navigating the Space Between Brilliance and Madness - Category: Psychiatry Authors: Source Type: blogs
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