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Cleft palate cure given to children in-utero is looming
A research team at the University of Utah discovered a cure for cleft palates that worked successfully on mice. The researchers are hopeful that a cure for humans will soon be available. (Source: the Mail online | Health)
Source: the Mail online | Health - September 20, 2017 Category: Consumer Health News Source Type: news

JDR special issue on orofacial clefting and dental and craniofacial anomalies
(International& American Associations for Dental Research) The International and American Associations for Dental Research (IADR/AADR) have published a special issue in the Journal of Dental Research (JDR) on orofacial clefting and dental and craniofacial anomalies. Topics in this special issue range from tooth number and root formation, human and animal genetic studies on orofacial clefting, reviews that prioritize the variants most likely to cause disease, the pathways required for palatogenesis, experimental articles on the periderm and drug therapy articles that rescue cleft palate in mutant mice. (Source: EurekAle...
Source: EurekAlert! - Medicine and Health - September 20, 2017 Category: International Medicine & Public Health Source Type: news

In-utero treatment reverses cleft palate in mice
(University of Utah Health) Researchers at University of Utah Health clarified a molecular pathway responsible for the formation of cleft palate and identified a new treatment to reverse this defect in mouse pups in utero. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - September 13, 2017 Category: International Medicine & Public Health Source Type: news

Meet the children at the heart of Kylie's charity project
Kylie Jenner partnered with Smile Train, an organization that provides free cleft palate surgeries to children in developing countries. The surgeries are helping these children have higher self esteem. (Source: the Mail online | Health)
Source: the Mail online | Health - September 12, 2017 Category: Consumer Health News Source Type: news

FDA Drug Safety Communication: Risk of oral clefts in children born to mothers taking Topamax (topiramate)
[03-04-2011] The U.S. Food and Drug Administration (FDA) is informing the public of new data that show that there is an increased risk for the development of cleft lip and/or cleft palate (oral clefts) in infants born to women treated with Topamax (topiramate) during pregnancy. (Source: FDA Center for Drug Evaluation and Research - What's New)
Source: FDA Center for Drug Evaluation and Research - What's New - August 4, 2017 Category: Drugs & Pharmacology Source Type: news

Zimbabwe: Schweppes Partner Alliance for Smiles to Offer Free Cleft Lip Surgery
[263Chat] Schweppes Holdings Africa Limited in July, partnered Alliance for Smiles (AfS) to offer free cleft lip and palate surgical operations to over 80 patients at Chitungwiza Central Hospital. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - August 3, 2017 Category: African Health Source Type: news

Six tips for talking with your child about cleft lip or palate
Having a facial difference such as cleft lip or palate can be difficult for any child, but it’s especially challenging when they’re about to enter a new social situation like going to school. For some parents, this time is even more stressful than it is for children. In fact, many of the parents whom I meet in the Cleft and Craniofacial Center at Boston Children’s Hospital tell me that having discussions with their child about the cleft is the number-one concern.  Ideally, you’ll start talking with your child about school or other social situations well in advance. Remember, family is our first...
Source: Thrive, Children's Hospital Boston - July 26, 2017 Category: Pediatrics Authors: Amanda Lasssiter Tags: Ask the Expert Diseases & Conditions Amanda Lassiter back to school health Cleft and Craniofacial Center cleft lip and palate Source Type: news

Zimbabwe: 27 Receive Cleft Lip and Palate Surgery
[The Herald] Twenty -Seven people had undergone cleft lip and palate surgeries at Chitungwiza Central Hospital as of Thursday, while 105 others had been screened. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - July 25, 2017 Category: African Health Source Type: news

Taking my own advice: When the professional becomes a parent
As a disability expert, my whole career has been spent giving parents advice. I’ve given advice on parenting, doctors, child development, school and resources to support them. I was confident working with families and helping them navigate the often crazy and overwhelming world of special needs. But when I was 34 weeks pregnant with my own child, I found myself on the other side of the situation. My husband and I learned that our son, Jack, would be born with a cleft palate and micrognathia, or an undeveloped lower jaw. The extent of these facial differences wouldn’t be known until he was born. We met with doct...
Source: Thrive, Children's Hospital Boston - July 20, 2017 Category: Pediatrics Authors: Jennifer Ryan Tags: Diseases & Conditions Our Patients’ Stories Cleft and Craniofacial Center cleft lip and palate Dr. Carolyn Rogers Dr. Cory Resnick Pierre Robin sequence Source Type: news

Understanding genetic synergy in cleft palate
(Children's National Health System) Like mechanics fixing a faulty engine, Youssef A. Kousa, M.S., D.O., Ph.D., says researchers will not be able to remedy problems related to IRF6, a gene implicated in cleft palate, until they better understand how the gene works. (Source: EurekAlert! - Biology)
Source: EurekAlert! - Biology - July 19, 2017 Category: Biology Source Type: news

Getting and giving support for cleft lip and palate
Jack Dolan came into the world with a laugh. His mother, Erin, was mid-chuckle during labor when he was born — “a really joyful entrance,” she says. Looking down at her new son, she and her husband, Jimmy, breathed sighs of relief. “We took one look at him and thought, ‘He’s beautiful,’” she remembers. “We knew then that everything was going to be okay.” It was a happy celebration after a pregnancy sometimes marked by stress and anxiety. During ultrasonography, Erin and Jimmy had learned that Jack would be born with a bilateral cleft lip and palate. Erin, a nurse ...
Source: Thrive, Children's Hospital Boston - July 13, 2017 Category: Pediatrics Authors: Jessica Cerretani Tags: Diseases & Conditions Our Patients’ Stories Cleft and Craniofacial Center cleft lip and palate Dr. John Mulliken Olivia Oppel Source Type: news

Expert insight on cleft lip and palate
Learning that your baby has a cleft lip or palate can be upsetting, but these birth defects are quite common. They occur early in pregnancy when tissue from each side of the head grows together to form the face. If these tissues don’t completely join, the result is a cleft, or gap, on one or both sides of the upper lip. A cleft palate occurs when the tissue that forms the roof of the mouth doesn’t fully come together, leaving an opening between the mouth and nose. It’s not clear what causes a cleft lip or palate, but a combination of genetic and environmental risk factors appears to be involved. “Al...
Source: Thrive, Children's Hospital Boston - July 6, 2017 Category: Pediatrics Authors: Jessica Cerretani Tags: Ask the Expert Diseases & Conditions Cleft and Craniofacial Center cleft lip Cleft lip and Palate Program cleft palate Dr. Ingrid Ganske Source Type: news

Photos of little boy with cleft palate's first smiles
In April, Charlotte Halliday, 23, from Queensland, shared the story of her then newborn son Charlie who was born with a severe cleft palate and lip. (Source: the Mail online | Health)
Source: the Mail online | Health - July 5, 2017 Category: Consumer Health News Source Type: news

2 Chapel Hill-based nonprofits to merge
Chapel Hill-based nonprofits The American Cleft Palate-Craniofacial Association (ACPA) and the Cleft Palate Foundation (CPF) will merge effective June 30. The combination comes at a time when “nonprofits are being asked to do more with less,” says Wendy-Jo Toyama, who will serve as executive director of the combined entity. Combined, the organizations will have an operating budget of about $1.5 million, she says. It’s about eliminating redund ancies – for instance, developing two budgets,… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - June 29, 2017 Category: Pharmaceuticals Authors: Jennifer Henderson Source Type: news

Zimbabwe: Free Screening for Cleft Palate Begins
[The Herald] The screening for cleft lip and palate surgical operations set to benefit 60 patients started at Parirenyatwa Hospital on Sunday, where scores of patients turned up for surgeries which started yesterday and expected to last until Saturday. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - June 20, 2017 Category: African Health Source Type: news

Epigenetics could help diagnose different types of cleft
Cleft lip and/or palate are common birth defects and affect around 15 in every 10,000 births in Europe. New research by the University of Bristol from the largest study of cleft lip and/or palate in the world, the Cleft Collective, has found epigenetics could help diagnose different types of cleft. (Source: University of Bristol news)
Source: University of Bristol news - June 14, 2017 Category: Universities & Medical Training Tags: International, Health, Research; Faculty of Health Sciences, Faculty of Health Sciences, School of Oral and Dental Sciences, Faculty of Health Sciences, Bristol Medical School; Press Release Source Type: news

Model With Rare Genetic Disorder Is A Brilliant Example Of Inclusion
This world is a diverse one, so it’s refreshing when the fashion industry reflects that reality. And Seattle-based model Melanie Gaydos is hoping to add to that effort. Gaydos, 28, was born with ectodermal dysplasia, a genetic disorder that can interfere with the proper growth of the hair, nails, teeth, skin and glands. Her involvement in the fashion community is helping people like her to see a place for them in the highly stylized world of modeling. A post shared by Melanie Gaydos (@melaniegaydos) on May 17, 2017 at 5:12pm PDT Fewer than 200,000 people in the United States experience the rare condition,&...
Source: Healthy Living - The Huffington Post - June 8, 2017 Category: Consumer Health News Source Type: news

Dentist denied payment for Indigenous client to be repaid by government
Health Canada and Alberta Health have reached an agreement to reimburse Dr. Terry Lim for the two dental implants he provided for Summer Dawn White Eagle, a young First Nations woman born with a cleft palate. (Source: CBC | Health)
Source: CBC | Health - May 31, 2017 Category: Consumer Health News Tags: News/Canada/Calgary Source Type: news

Unequal treatment: First Nations woman denied medical coverage readily available to non-Aboriginals
A woman from Alberta has been denied coverage for dental implants to fill gaps in her mouth resulting from a cleft palate, a denial her doctor says is the result of her being Indigenous. (Source: CBC | Health)
Source: CBC | Health - May 29, 2017 Category: Consumer Health News Tags: News/Canada/Calgary Source Type: news

USC researchers close to identifying crucial gene for human cleft lip and palate
(University of Southern California) A group of researchers has found that three siblings born with cleft lip and palate share a common gene mutation associated with the birth defect. The study -- a collaborative effort between the Ostrow School of Dentistry, the Keck School of Medicine of USC, Children's Hospital Los Angeles and the nonprofit Operation Smile -- was published in the journal Human Molecular Genetics. (Source: EurekAlert! - Biology)
Source: EurekAlert! - Biology - March 21, 2017 Category: Biology Source Type: news

Girl with cleft palate smiles after surgery
Riley Johnson, from Baltimore in Maryland, was born without a fully-developed mouth, nose and top lip, but can now smile after skin-stretching surgery. (Source: the Mail online | Health)
Source: the Mail online | Health - March 15, 2017 Category: Consumer Health News Source Type: news

Mom Uplifted By Act Of Kindness After Hurtful Comment About Son's Cleft Palate
In the span of 30 minutes, Nebraska mom Sara Heller indirectly encountered two very different strangers. One left a hurtful comment about her son’s cleft lip and palate. The other lifted her up with support.  Heller and her partner, Chris Eidam, welcomed their son Brody three months ago. At 24 weeks, during an ultrasound, they learned he had a bilateral cleft lip and palate.  For two months, Brody had a tube on the side of his face that went through his nose. Later, he had a gastrostomy button (G-button) placed on his stomach to help with feeding. He’s also had lip surgery. Doctors will later rep...
Source: Healthy Living - The Huffington Post - January 25, 2017 Category: Consumer Health News Source Type: news

Pussycat Doll Carmit Bachar: My birth defect didn’t prevent me from becoming a singer
THE performer tells our reporter of the impact of having years of surgery after being born with a cleft palate. (Source: Daily Express - Health)
Source: Daily Express - Health - January 24, 2017 Category: Consumer Health News Source Type: news

Medical News Today: Scientists find genetic mutation that causes cleft lip and palate, heart defects
A team of international researchers examines the genetic mutation responsible for cleft lip and palate, as well as congenital heart defect. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - January 13, 2017 Category: Consumer Health News Tags: Cleft Palate Source Type: news

Association between birth of an infant with major congenital anomalies and subsequent risk of death
(The JAMA Network Journals) In Denmark, having a child with a major congenital anomaly was associated with a small but statistically significant increased risk of death in the mother compared with women without an affected child, according to a study appearing in the Dec. 20 issue of JAMA. A major congenital anomaly is a structural change (such as cleft palate) that has significant medical, social or cosmetic consequences for the affected individual; this type of anomaly typically requires medical intervention. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - December 20, 2016 Category: Global & Universal Source Type: news

Researchers link dental problems in cleft lip and palate to abnormal salivary glands
Dental problems commonly associated with cleft lip and palate may be caused by abnormalities in salivary glands and an imbalance of immune compounds in the mouth, report investigators. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - December 8, 2016 Category: Science Source Type: news

PodMed: A Medical News Roundup From Johns Hopkins (with audio)
(MedPage Today) -- This week's topics include roller coasters and kidney stones, colonoscopy in those older than 70, benefits of exercise in older folks, and the health impact of cleft palate (Source: MedPage Today Endocrinology)
Source: MedPage Today Endocrinology - October 1, 2016 Category: Endocrinology Source Type: news

Long-term Effect of Oral Cleft Depends on Type Long-term Effect of Oral Cleft Depends on Type
Adults who were born with cleft lip generally have good health later in life, but those born with cleft palate alone have poorer outcomes, a large study shows.Medscape Medical News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - September 28, 2016 Category: Consumer Health News Tags: Pediatrics News Source Type: news

Babies With Cleft Lip: Normal Adulthood Likely
However, cleft palate was associated with increased risk for developmental problems (Source: WebMD Health)
Source: WebMD Health - September 27, 2016 Category: Consumer Health News Source Type: news

Babies with cleft lip likely to have normal adulthood: Study
Steven Reinberg, HealthDay News Cleft lip is a relatively common birth defect that can be surgically repaired, and new research suggests long-term health problems aren't a concern. (Source: Health News - UPI.com)
Source: Health News - UPI.com - September 27, 2016 Category: Consumer Health News Source Type: news

Babies with Cleft Lip Likely to Have Normal Adulthood
However, cleft palate was associated with increased risk for developmental problems Source: HealthDay Related MedlinePlus Pages: Children's Health, Cleft Lip and Palate (Source: MedlinePlus Health News)
Source: MedlinePlus Health News - September 27, 2016 Category: Consumer Health News Source Type: news

Babies With Cleft Lip Likely to Have Normal Adulthood: Study
TUESDAY, Sept. 27, 2016 -- Cleft lip is a relatively common birth defect that can be surgically repaired, and new research suggests that parents don't have to worry about long-term health problems for these children. But the same may not hold true... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - September 27, 2016 Category: Journals (General) Source Type: news

Cleft Palate Associated with Adverse Long-Term Health Effects (FREE)
By John D. Cowden, MD Dr. Cowden is an associate editor with NEJM Journal Watch Pediatrics and Adolescent Medicine, from which this story was adapted. Full coverage is available to subscribers at the link below.Cleft palate, but not cleft lip, is linked to increased … (Source: Physician's First Watch current issue)
Source: Physician's First Watch current issue - September 26, 2016 Category: Primary Care Source Type: news

Uganda: 33 Children Undergo Plastic Surgery in Kaberamaido
[Monitor] Kaberamaido -At least 33 children with craniofacial abnormities, including cleft lip and palate, have undergone plastic surgery in Kaberamaido hospital. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - September 22, 2016 Category: African Health Source Type: news

Mom turns heartbreak into mission to prevent premature births
Treatment TermsMaternal fetal medicine CategoriesWomen's health Additional SEO Keywords premature birth, premature baby, prematurity, preterm, preterm birth, preterm labor, born prematurely, 17P SEO Meta Description Moline Prak Pandiyan's son was born preterm and lived five and a half months. After care from Duke Maternal-Fetal Medicine, her second child was born full-term Author MaryAnn Fletcher Overview Moline Prak Pandiyan's son was born preterm and lived just five and a half months. After care fromDuke Maternal-Fetal Medicine, her second child was born full-term. Hero Image20160829.pandiyan.mol...
Source: dukehealth.org: Duke Health News - September 7, 2016 Category: Consumer Health News Authors: mf205 at duke.edu Source Type: news

'American Idol' contestant from Raceland raises awareness for cleft palates with own experience
A Raceland teen who won over the hearts of many across the country on "American Idol" is bringing attention to Cleft Palate Awareness and Prevention Month by sharing his own experience. (Source: WDSU.com - Health)
Source: WDSU.com - Health - July 29, 2016 Category: Consumer Health News Source Type: news

Kailyn ’s smiles, Kailyn’s strength
Photo credit: Samantha K Photography On April 1, 2012, my husband Kevin and I found out we were expecting our second baby. We were very surprised as our daughter Kendall was just seven months old at the time. At the same time, we were very excited we would have two kids so close in age. At our 20-week ultrasound, we had another surprise — this baby had a cleft lip. We were pretty upset when we left the ultrasound. We couldn’t stop asking, “Why us? What did we do wrong?” We were sent for a 3D ultrasound to confirm what we already knew. From there we were referred to the Cleft and Craniofacial Ce...
Source: Thrive, Children's Hospital Boston - July 26, 2016 Category: Pediatrics Authors: Michelle Riley Tags: Diseases & Conditions Our Patients’ Stories Cleft and Craniofacial Center cleft lip Dr. John Mulliken Source Type: news

Jack’s journey managing Robin sequence
Jennifer and 8-week-old Jack Jennifer Ryan is a disability expert. She started her career doing home visits with drug-addicted and abused babies, then ran a center and started a program for kids with autism and now works in a collaborative elementary school. But nothing prepared this new mom for the challenges she would face with her own child. “It’s completely different when it’s your own,” she says now, after her son Jack was treated at Boston Children’s Hospital’s Cleft and Craniofacial Center for a group of birth defects known as Pierre Robin sequence or just Robin sequence. For...
Source: Thrive, Children's Hospital Boston - July 19, 2016 Category: Pediatrics Authors: Jenny Fernandez Tags: Diseases & Conditions Our Patients’ Stories Research and Innovation Cleft and Craniofacial Center cleft palate Dr. Carolyn Rogers Dr. Cory Resnick Pierre Robin sequence Source Type: news

Jack ’s journey managing Robin sequence
Jennifer and 8-week-old Jack Jennifer Ryan is a disability expert. She started her career doing home visits with drug-addicted and abused babies, then ran a center and started a program for kids with autism and now works in a collaborative elementary school. But nothing prepared this new mom for the challenges she would face with her own child. “It’s completely different when it’s your own,” she says now, after her son Jack was treated at Boston Children’s Hospital’s Cleft and Craniofacial Center for a group of birth defects known as Pierre Robin sequence or just Robin sequence. For...
Source: Thrive, Children's Hospital Boston - July 19, 2016 Category: Pediatrics Authors: Jenny Fernandez Tags: Diseases & Conditions Our Patients’ Stories Research and Innovation Cleft and Craniofacial Center cleft palate Dr. Carolyn Rogers Dr. Cory Resnick Pierre Robin sequence Source Type: news

Up Next: A Feel-Good Lip Balm Created in Her Dorm
Zoe Mesnik-Greene, 23, is the founder of Lasting Smiles, an eco-friendly lip balm that raises money for children with cleft lips and palates. (Source: NYT Health)
Source: NYT Health - July 7, 2016 Category: Consumer Health News Authors: STACEY ANDERSON Tags: Lasting Smiles Mesnik-Greene, Zoe Cleft Palate and Clefts Cosmetics and Toiletries Birth Defects Source Type: news

Ten-Year Cleft Surgery in NepalTen-Year Cleft Surgery in Nepal
What can we learn about the standard of care for cleft lip and palate surgery abroad? Plastic Reconstructive Surgery-Global Open (PRS Global Open) (Source: Medscape General Surgery Headlines)
Source: Medscape General Surgery Headlines - July 6, 2016 Category: Surgery Tags: Plastic Surgery & Aesthetic Medicine Journal Article Source Type: news

Portraits Of A Native American Mom Breastfeeding Have A Powerful Message
A Native American mom hopes her breastfeeding photos will empower women and educate the world about motherhood in her culture. Enedina Banks is a member of the Prairie Band Potawatomi Nation in Mayetta, Kansas. When photographer Vanessa Simmons stopped in Oklahoma City as part of her "Normalize Breastfeeding" tour, Banks traveled to the area to pose for photos in traditional Native garb while nursing her son, Nico. Banks told The Huffington Post she is passionate about breastfeeding as a very "natural" part of motherhood. "It's what our ancestors did," the mom said. "Keeping wi...
Source: Healthy Living - The Huffington Post - June 29, 2016 Category: Consumer Health News Source Type: news

After skin cancer surgery, careful reconstruction around eyes and nose
Treatment Terms Plastic and reconstructive surgery Skin cancers Additional SEO Keywords skin cancer surgery, basal cell carcinoma SEO Meta Description Facial reconstruction helped Elizabeth Ann Badgett return to normal after Mohs surgery to remove basal skin cancer from her lower eyelid, cheek and nose. Overview For six months, Elizabeth Ann Badgett, of Clayton, NC, watched a painless, scaly spot appear and disappear on her nose. Each time the spot returned it was larger, until it reached the corner of her left eye. Her primary care doctor referred her to a dermatologist, who dia...
Source: dukehealth.org: Duke Health News - June 21, 2016 Category: Consumer Health News Authors: Anonymous Source Type: news

Epilepsy Drug & Certain Birth Defects Not Linked?
Large review found no greater risk of clubfoot, cleft palate, in babies of moms-to-be who used lamotrigine (Source: WebMD Health)
Source: WebMD Health - April 6, 2016 Category: Consumer Health News Source Type: news

Taking epilepsy drugs when pregnant may NOT raise risk of birth defects 
It was previously feared anti-seizure drug lamotrigine could raise the risk of having a baby with a cleft lip, a cleft palate or a club foot, Ulster University researchers said. (Source: the Mail online | Health)
Source: the Mail online | Health - April 6, 2016 Category: Consumer Health News Source Type: news

Study Sees No Link Between Common Epilepsy Drug, Certain Birth Defects
Large review found no greater risk of clubfoot, cleft palate, in babies of moms-to-be who used lamotrigine (Source: U.S. News - Health)
Source: U.S. News - Health - April 6, 2016 Category: Consumer Health News Source Type: news

Study Sees No Link Between Common Epilepsy Drug, Certain Birth Defects
Large review found no greater risk of clubfoot, cleft palate, in babies of moms-to-be who used lamotrigine Source: HealthDay Related MedlinePlus Pages: Birth Defects, Epilepsy (Source: MedlinePlus Health News)
Source: MedlinePlus Health News - April 6, 2016 Category: Consumer Health News Source Type: news

Cleft Surgery Boosts Economy in Developing NationsCleft Surgery Boosts Economy in Developing Nations
Born in Ghana with a cleft lip and palate, baby Kodjo was on the brink of being drowned in a river by his family in a religious sacrifice until a passing villager intervened. Reuters Health Information (Source: Medscape General Surgery Headlines)
Source: Medscape General Surgery Headlines - March 25, 2016 Category: Surgery Tags: Plastic Surgery & Aesthetic Medicine News Source Type: news

Breakthrough made in cleft lip and palate research
Leading scientists have identified an important gene that is associated with cleft lip and palate. Experts say the discovery is a step closer to understanding how this birth defect arises, and will help in the development of medical approaches to prevent the disfiguring condition. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - March 24, 2016 Category: Science Source Type: news

Kenya: Smile Train, Miss World Kenya in Partnership to Raise Cleft Lip and Palate Awareness
[Nation] Out of the 3,400 babies born in Kenya every day, three are diagnosed with a birth defect that affects their faces, experts have said. (Source: AllAfrica News: Pregnancy and Childbirth)
Source: AllAfrica News: Pregnancy and Childbirth - March 17, 2016 Category: OBGYN Source Type: news