Improving an Administrative Case Definition for Longitudinal Surveillance of Sickle Cell Disease.

CONCLUSIONS: This study supports an administrative case definition that specifies ≥3 ICD-9-CM-coded encounters to identify SCD with a high degree of accuracy in pediatric patients. This case definition can be used to help establish longitudinal SCD surveillance systems. PMID: 30970223 [PubMed - as supplied by publisher]
Source: Public Health Reports - Category: International Medicine & Public Health Tags: Public Health Rep Source Type: research

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Publication date: Available online 20 February 2020Source: Case Reports in Women's HealthAuthor(s): Antonella Iannaccone, Marvin Darkwah Oppong, Philipp Dammann, Rainer Kimmig, Angela KöningerAbstractA fetal subdural hematoma (SDH) was diagnosed in a patient with sickle cell disease (SCD) during a routine ultrasound exam in the 30th week of pregnancy. A scan performed a few days earlier had revealed no abnormalities. After interdisciplinary consultation with neurosurgeons and neonatologists, a cesarean section was performed since acute subdural bleeding was hypothesized and the mother's condition was critical. After s...
Source: Case Reports in Womens Health - Category: OBGYN Source Type: research
Two drugs, voxelotor (Oxbryta) and crizanlizumab-tmca (Adakveo), have been approved to treat sickle cell disease.The most common adverse effects of voxelotor are diarrhea, headache, abdominal pain, nausea, fatigue, rash, and fever. Hypersensitivity reactions are also possible.The most common adverse effects of crizanlizumab-tmca are back pain, nausea, fever, and arthralgia. Serious adverse effects include infusion-related reactions and interference with automated platelet counts.
Source: AJN - Category: Nursing Tags: Drug Watch Source Type: research
This study highlighted that the Kisangani university students' knowledge regarding SCD is poor and needs to be improved; education programs and motivational campaigns to be enhanced. PMID: 32070266 [PubMed - in process]
Source: Hematology - Category: Hematology Tags: Hematology Source Type: research
Suboptimal vitamin A status (serum retinol
Source: Journal of Pediatric Hematology Oncology - Category: Hematology Tags: Original Articles Source Type: research
Objective: The aim of this study was to compare optical coherence tomography (OCT) findings in pediatric patients with sickle cell disease (SCD) and healthy individuals and to investigate associations between these data and the patients’ systemic findings. Materials and Methods: The study included 108 eyes of 54 patients with SCD with no visual symptoms and a control group consisting of 110 eyes of 55 healthy subjects with no systemic or ocular pathology. After best-corrected visual acuity assessment, the study participants underwent a complete ophthalmologic examination including intraocular pressure. After exa...
Source: Journal of Pediatric Hematology Oncology - Category: Hematology Tags: Original Articles Source Type: research
Families coping with sickle cell disease (SCD) often face heightened psychosocial risk factors, and research in pediatric SCD has often focused more on this area than resiliency factors. The aim of this study was to gain a better understanding of family resiliency in SCD based on caregiver perspectives. A secondary qualitative analysis was conducted with data from a mixed-methods study of caregivers of youth with SCD (n=22). Qualitative analyses involved coding based on 2 resiliency frameworks, organizing coding categories into themes, and systematically reintegrating these themes into a conceptualization that reflected fa...
Source: Journal of Pediatric Hematology Oncology - Category: Hematology Tags: Original Articles Source Type: research
This study examined the relationship between disease self-efficacy, HRQOL, and disease severity in AYA with SCD. HRQOL was positively correlated with disease self-efficacy and negatively correlated with disease severity. Disease self-efficacy and severity accounted for 35% of variance in HRQOL. Findings support the impact of disease self-efficacy on HRQOL.
Source: Journal of Pediatric Hematology Oncology - Category: Hematology Tags: Clinical and Laboratory Observations Source Type: research
In our third and final episode, we talk about trust in science. In particular, how historical cases of abuse led many in our groups to questiongene editing, science and medicine. If we focus on the past, will we ever move forward?Continue reading...
Source: Guardian Unlimited Science - Category: Science Authors: Tags: Gene editing Science Biology Genetics Health Sickle cell disease Society Source Type: news
Publication date: May 2020Source: Blood Cells, Molecules, and Diseases, Volume 82Author(s): Thaisa Netto Souza Valente-Frossard, Nilcemar Rodrigues Carvalho Cruz, Fernanda Oliveira Ferreira, Andre Rolim Belisario, Brisa Machado Pereira, Antônio Frederico de Freitas Gomides, Glaucia Aparecida Domingos Resende, Aline Menezes Carlos, Helio Moraes-Souza, Cibele Velloso-Rodrigues
Source: Blood Cells, Molecules, and Diseases - Category: Hematology Source Type: research
One of the Triad ’s largest health systems is partnering with Winston-Salem State University to provide sports medicine and orthopedic services to student athletes.  The WSSU football and men’s and women’s basketball programs will benefit from the university’s partnership with Wake Forest Baptist Health, n ot only by having physicians on the sidelines at games, but through injury prevention and health screenings as well. Concussion management, physicals, sickle cell screenings, behavioral…
Source: Health Care:Pharmaceuticals headlines - Category: Pharmaceuticals Authors: Source Type: news
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