Symptom burden and life challenges reported by adult chordoma patients and their caregivers

ConclusionsOur study findings suggest a high symptom burden and life challenges among chordoma patients and their caregivers. This study provides preliminary, limited estimates of the prevalence of a wide range of self-reported symptoms and challenges that will inform the assessment of patient-reported outcomes in future clinical trials and help clinicians better manage chordoma patients ’ symptoms.
Source: Quality of Life Research - Category: Health Management Source Type: research