Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada

Conclusion Despite having hemophilia, the youth in this cohort have minimal joint disease and good HRQoL. The young adults demonstrated more joint disease and slightly worse HRQoL in the domains of physical functioning and pain. The data presented here provide new information to inform the selection of Health Related Quality of Life (HRQoL) instruments for use in future clinical trials involving persons with hemophilia. Trial registration ClinicalTrials.gov : NCT01034904. Study funded by CSL Behring Canada.

http://link.springer.com/10.1186/s12878-016-0052-x

Source: BMC Hematology - May 4, 2016 Category: Hematology Source Type: research