Enrolment of the first paediatric cohort into the Australian lupus registry and biobank: A single-centre experience

CONCLUSION: We have established our centre as the first paediatric participating site of the ALRB, providing contemporary data on the clinical characteristics, serological profile and health-related quality of life outcomes of Australian children with SLE. Paediatric involvement with this national registry will provide a unique perspective for future clinical and scientific research. Collection of Australian-specific paediatric longitudinal data will also enable a broader understanding of SLE within a multicultural Australian population.PMID:38587355 | DOI:10.1177/09612033241244879

Source: Lupus - April 8, 2024 Category: Rheumatology Authors: Bronwyn D Power Rangi Kandane-Rathnayake Georgina Tiller William D Renton Angela Cox Lilian Johnstone Alberta Hoi Peter Gowdie Source Type: research