Facioscapulohumeral muscular dystrophy Health Index: Japanese translation and validation study

CONCLUSIONS: The FSHD-HI-J is a valid and reliable patient-reported outcome measure for Japanese patients with FSHD. This validated, disease-specific patient-reported outcome is essential for future clinical practice and clinical trials.PMID:38555736 | DOI:10.1080/09638288.2024.2322035

Source: Disability and Rehabilitation - March 31, 2024 Category: Rehabilitation Authors: Haruo Fujino Masanori P Takahashi Harumasa Nakamura Chad R Heatwole Hiroto Takada Satoshi Kuru Katsuhisa Ogata Kiyoka Enomoto Yuto Hayashi Osamu Imura Tsuyoshi Matsumura Source Type: research