An emotional journey: caregiver experiences with gastrostomy tube decision-making for children with cystic fibrosis

Caregivers of children with cystic fibrosis (cwCF) make many important health-related decisions for their children, including decisions about optimizing nutritional status, as higher growth percentiles are associated with improved lung function and survival [1 –4]. Pancreatic insufficiency and the increased metabolic demands of this genetic disorder result in nearly 10 % of cwCF having a weight less than the

Source: Journal of Cystic Fibrosis - February 5, 2024 Category: Respiratory Medicine Authors: Kimberly M. Dickinson, Brandon M. Smith, Deanna M. Green, Samya Nasr, Gregory S. Sawicki, Michael S. Schechter, Kristin A. Riekert Tags: Original Article Source Type: research