The experience of diagnosis announcement in rare endocrine diseases: a survey of the French FIRENDO network

CONCLUSION: This work suggests that better knowledge of the patient's experience is useful for improving the diagnosis announcement of rare endocrine disorders. The main recommendations derived from the survey were the need for several announcement visits, information on patient support groups and reference centers, imperatively avoiding impersonal announcement, and the usefulness of a written accompanying document.PMID:37951412 | DOI:10.1016/j.ando.2023.10.008

Source: Annales d'Endocrinologie - November 11, 2023 Category: Endocrinology Authors: Haifa Rahabi Maria Givony B éatrice Demaret Fr édérique Albarel Marie-Reine Aubron Beate Bart ès Lucie Bernard Hendy Abdoul Naim Bouazza Philippe Brun Delphine Drui V éronique Dujardin Catherine Lan çon Sabine Malivoir Ir ène Netchine B énédicte Source Type: research