P311 Facioscapulohumeral muscular dystrophy European patient survey: assessing patient preferences in clinical trial participation  

This study aimed to explore the patient preferences of people with FSHD to ensure that clinical trials can be designed to include outcome measures that are relevant and important to patients. 1147 participants responded to an online survey, representing 26 countries across Europe and a range of disease severities.
Source: Neuromuscular Disorders - Category: Neurology Authors: Source Type: research