Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure

Discussion Initial evaluation of the FA-HI supports its validity and reliability as a PRO for assessing how individuals with FA feel and function.

http://cp.neurology.org/cgi/content/short/13/5/e200180?rss=1

Source: Neurology Clinical Practice - August 28, 2023 Category: Neurology Authors: Seabury, J., Rosero, S., Varma, A., Weinstein, J., Engebrecht, C., Dilek, N., Heatwole, J., Alexandrou, D., Cohen, B., Larkindale, J., Lynch, D. R., Park, C., Subramony, S. H., Wagner, E., Walther, S., Wells, M., Zizzi, C., Heatwole, C. Tags: Outcome research, Quality of life, Gait disorders/ataxia Research Article Source Type: research