Communicating elsi issues in neurobiobanking and stroke genomic research in africa: project intervention tools development and evaluation procedures
Activities about appropriate community engagement and communication of research outcomes with stakeholders have received the attention of scholars in different sub-fields of clinical research. However, given its novel nature, especially in Sub-Saharan Africa, community engagement addressing the ethical, legal, and social implications (ELSI) of neurobiobanking and stroke genomic research has not received much scholarly attention. Therefore, this study was designed to report the procedures for developing and evaluating intervention tools for the community engagement component of the African Neurobiobank for Precision Stroke Medicine ELSI Project.
Source: Journal of Stroke and Cerebrovascular Diseases - Category: Neurology Authors: Babatunde R. Ojebuyi, Ibukun Afolami, Muyiwa Adigun, Arti Singh, Carolyn Jenkins, Michelle Nichols, Kolawole Wahab, Abiodun Bello, Fred S. Sarfo, Lukman F. Owolabi, Rabiu Musbahu, Reginald Obiako, Albert Akpalu, Mayowa Ogunronbi, Olorunyomi Olorunsogbon, Source Type: research