Pre-visit concerns: What caregivers hope to address at a specialty clinic for down syndrome
CONCLUSION: The top concerns of caregivers of individuals with Down syndrome fluctuate across the lifespan. Growing multidisciplinary specialty clinics for Down syndrome may use these findings to ensure that caregivers' concerns are addressed and improve patient experience.PMID:35750159 | DOI:10.1016/j.ejmg.2022.104550
Source: European Journal of Medical Genetics - Category: Genetics & Stem Cells Authors: Maria Cabrera Kelsey Haugen Kavita Krell Amy Torres Stephanie Santoro Source Type: research