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Total 9651 results found since Jan 2013.

Adaptation and content validation of a patient-reported measure of treatment burden for use in stroke survivors: the patient experience with treatment and self-management in stroke (PETS-stroke) measure
CONCLUSIONS: PETS-stroke has content that is relevant, meaningful and comprehensible to stroke survivors. Content validity and reliability testing are now required. The validated tool will aid testing of tailored interventions to lessen treatment burden.IMPLICATIONS FOR REHABILITATIONTreatment burden is reported by stroke survivors but no stroke-specific measure of treatment burden exists.We adapted an existing measure of treatment burden for use in multimorbid patients (PETS) to create a stroke specific version (PETS-stroke).The items in PETS-stroke are relevant and meaningful to people with stroke.Further testing will ex...
Source: Disability and Rehabilitation - August 7, 2023 Category: Rehabilitation Authors: Karen Wood Aleema Sardar David T Eton Frances S Mair Lisa Kidd Terence J Quinn Katie I Gallacher Source Type: research

Sexuality after stroke: patient counseling preferences.
Conclusions: Many stroke survivors experience sexual dysfunction and indicate a desire for additional information and counseling from healthcare providers. Preferences regarding the timing of such counseling vary, creating challenges for optimizing the delivery of this care. Implications for Stroke Rehabilitation Sexual dysfunction is common after stroke, but is frequently not addressed by healthcare providers. Many stroke survivors experience sexual dysfunction and indicate a desire for additional information and counseling from healthcare providers. Most stroke survivors identify sexuality as an important issue ...
Source: Disability and Rehabilitation - January 22, 2013 Category: Rehabilitation Authors: Stein J, Hillinger M, Clancy C, Bishop L Tags: Disabil Rehabil Source Type: research

'Masterstroke: a pilot group stroke prevention program for community dwelling stroke survivors'.
Conclusions: Participation in the Masterstroke program for community dwelling stroke survivors resulted in significant improvements in knowledge, functional balance, dietary behaviours and quality of life. Qualitative interviews support the participants' implementation of lifestyle changes essential for reducing risks of secondary stroke. Results support the utilisation of this model and warrants rigorous investigation regarding long-term impacts of an education and exercise program on community dwelling stroke survivors. [Box: see text]. PMID: 23641954 [PubMed - in process]
Source: Disability and Rehabilitation - May 26, 2013 Category: Rehabilitation Authors: White JH, Bynon BL, Marquez J, Sweetapple A, Pollack M Tags: Disabil Rehabil Source Type: research

Navigating stroke care: the experiences of younger stroke survivors.
Conclusions: The field of stroke shaped younger stroke survivors' experiences of care. Navigating stroke care was contingent on accessing different forms of capital. Differences in access to these resources influenced longer term adjustment after stroke. Implications for Rehabilitation Stroke care can be conceptualised as a temporal field of social activity and relationships which shapes variations in experiences of care among younger stroke survivors, and differences in expectations of support at different time points after stroke. On entering the field of stroke participants reported needing health care professional guid...
Source: Disability and Rehabilitation - January 28, 2014 Category: Rehabilitation Authors: Sadler E, Daniel K, Wolfe CD, McKevitt C Tags: Disabil Rehabil Source Type: research

Exploring the experience of psychological morbidity and service access in community dwelling stroke survivors: a follow-up study.
Conclusions: The experience of psychological morbidity persists beyond 12 months post-stroke, having a profound impact on community access, and social participation. Clinical implications are a need for long-term psychological monitoring post-stroke and for ongoing rehabilitation that addresses disability, community participation and social support. Implications for Rehabilitation Psychological distress post-stroke is complex and persists over time, thus requiring longer term monitoring beyond the first 12 months of stroke onset. Longer term access to allied health can play a significant role in providing interventions tha...
Source: Disability and Rehabilitation - January 31, 2014 Category: Rehabilitation Authors: White J, Dickson A, Magin P, Tapley A, Attia J, Sturm J, Carter G Tags: Disabil Rehabil Source Type: research

Changes in the impact of stroke between 3 and 12 months post-stroke, assessed with the Stroke Impact Scale.
CONCLUSION: Both positive and negative clinically meaningful changes related to impact of stroke were found between 3 and 12 months post-stroke. Therefore it is important to pay close attention to patients' perceptions of their everyday life situation during rehabilitation and at discharge. PMID: 25188837 [PubMed - in process]
Source: Journal of Rehabilitation Medicine - November 14, 2014 Category: Rehabilitation Tags: J Rehabil Med Source Type: research

Understanding nursing practice in stroke units: a Q-methodological study.
Conclusions: The contribution that nurses with stroke rehabilitation skills can make to effective stroke care was understood. However, realising the potential of nurses as full partners in stroke rehabilitation is unlikely to occur without introduction of structured competency-based multidisciplinary training in rehabilitation skills. Implications for Rehabilitation Multidisciplinary rehabilitation in stroke units is a cornerstone of effective stroke care. Views of stroke unit team members on nurses' involvement in rehabilitation have not been reported previously. Nurses can routinely incorporate rehabilitation principles ...
Source: Disability and Rehabilitation - November 21, 2014 Category: Rehabilitation Authors: Clarke DJ, Holt J Tags: Disabil Rehabil Source Type: research

Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses.
Conclusion The findings add to the current understanding of self-management and role management with regard to how these are situated in everyday activities. Daily activities can help both spouses to reflect and understand about self-management, role management and comanagement in daily life. Moreover, observing stroke survivors in everyday situations provides professionals with concrete pictures of stroke survivors' performance and self-management in interaction with their spouses. Implications for Rehabilitation Self-management is a dynamic process in which individuals actively manage a chronic condition and finally live...
Source: Disability and Rehabilitation - February 8, 2016 Category: Rehabilitation Authors: Satink T, Josephsson S, Zajec J, Cup EH, de Swart BJ, Nijhuis-van der Sanden MW Tags: Disabil Rehabil Source Type: research

Developing a falls prevention program for community-dwelling stroke survivors in Singapore: client and caregiver perspectives.
CONCLUSIONS: Reducing the risk of falls in community-dwelling stroke survivors seems to be more important than promoting community participation among caregivers. The study findings highlight that a structured and client-centered fall prevention program targeting stroke survivors and caregivers is needed in Singapore. Implications for rehabilitation Falls after stroke can lead to functional decline in gait and mobility and restricted self-care activities. Community-dwelling stroke survivors develop adaptive safety strategies after a fall and want to be socially connected. However, caregivers see the safety of the stroke su...
Source: Disability and Rehabilitation - December 25, 2017 Category: Rehabilitation Authors: Xu T, O'Loughlin K, Clemson L, Lannin NA, Dean C, Koh G Tags: Disabil Rehabil Source Type: research

How is sexuality after stroke experienced by stroke survivors and partners of stroke survivors? A systematic review of qualitative studies.
CONCLUSION: Stroke has a profound impact on how sexuality is experienced by both stroke survivors and partners of stroke survivors. Despite this, post-stroke sexuality is rarely discussed openly. Stroke survivors and partners value sexuality and may benefit from strategies to support adjustment to post-stroke sexuality. PMID: 30180769 [PubMed - as supplied by publisher]
Source: Clinical Rehabilitation - September 5, 2018 Category: Rehabilitation Authors: McGrath M, Lever S, McCluskey A, Power E Tags: Clin Rehabil Source Type: research

How can stroke care be improved for younger service users? A qualitative study on the unmet needs of younger adults in inpatient and outpatient stroke care in Australia.
CONCLUSIONS: This study provides new insights into the experience of inpatient and outpatient stroke care by younger stroke survivors and outlines possible improvements for clinical practice. Future research should evaluate the effect of targeted strategies to support younger adults after stroke. Implications for rehabilitation Post-stroke rehabilitation might be improved by providing more support for the non-physical effects of stroke (e.g., psycho-emotional support, cognitive rehabilitation). Younger stroke survivors may also benefit from a long-term community care plan and longer-term rehabilitation. Patient-centered re...
Source: Disability and Rehabilitation - January 7, 2019 Category: Rehabilitation Authors: Shipley J, Luker J, Thijs V, Bernhardt J Tags: Disabil Rehabil Source Type: research

Further validation of the Preference-Based Stroke Index three months after stroke.
CONCLUSION:: Preference-Based Stroke Index demonstrated significantly higher construct validity compared to the EuroQol-5D-3L at three months post stroke and can discriminate among known groups. PMID: 30834774 [PubMed - as supplied by publisher]
Source: Clinical Rehabilitation - March 4, 2019 Category: Rehabilitation Authors: Appau A, Lencucha R, Finch L, Mayo N Tags: Clin Rehabil Source Type: research

Stroke Survivor and Family Caregiver Reports of Caregiver Engagement in Stroke Care.
CONCLUSIONS: Stroke survivors and caregivers report significant and impactful caregiver engagement throughout the course of stroke. CLINICAL RELEVANCE: Clinicians may enhance stroke care by recognizing and facilitating caregiver efforts across all phases of stroke care. PMID: 31689247 [PubMed - in process]
Source: Rehabilitation Nursing - October 31, 2019 Category: Rehabilitation Authors: Haley WE, Marino VR, Sheehan OC, Rhodes JD, Kissela B, Roth DL Tags: Rehabil Nurs Source Type: research

Disrupted biographies: making sense of minor stroke after hospital discharge.
Conclusions: Although participants had different experiences of minor stroke, there were common elements. The first weeks post-hospital discharge were a time of questioning and reconciling the stroke for many participants. Adjusting to post-stroke impairments and the impact of these on social participation was also prominent. There is a critical need for education about what to expect prior to discharge from hospital with minor stroke and a designated discharge pathway to avoid the development of secondary post-stroke issues in the community.IMPLICATIONS FOR REHABILITATIONPeople with minor stroke may experience ongoing pos...
Source: Disability and Rehabilitation - January 6, 2020 Category: Rehabilitation Authors: Finch E, Foster M, Fleming J Tags: Disabil Rehabil Source Type: research