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Providing palliative and end-of-life care in long-term care during the COVID-19 pandemic: a qualitative study of clinicians' lived experiences
This study explored the experiences of long-term care clinicians with respect to providing palliative and end-of-life care during the COVID-19 pandemic.METHODS: We used a qualitative research approach. Long-term care physicians and nurse practitioners (NPs) in Ontario, Canada, participated in semistructured interviews between August and September of 2021. Interviews were undertaken virtually, and results were analyzed using thematic analysis.RESULTS: Twelve clinicians (7 physicians and 5 NPs) were interviewed. We identified 5 themes, each with several subthemes: providing a palliative approach to care, increased work deman...
Source: cmaj - August 22, 2023 Category: General Medicine Authors: Sandy Shamon Ashlinder Gill Lynn Meadows Julia Kruizinga Sharon Kaasalainen Jos é Pereira Source Type: research

Improving palliative care outcomes in remote and rural areas of LMICs through family caregivers: lessons from Kazakhstan
Front Public Health. 2023 Aug 3;11:1186107. doi: 10.3389/fpubh.2023.1186107. eCollection 2023.ABSTRACTApproximately 60 million people require palliative care worldwide, and nearly 80% of them live in low- and middle-income countries (LMICs). Providing palliative care in remote and rural areas of LMICs requires special consideration to ensure equitable access to healthcare. This perspective aims to deliver pragmatic, context-oriented policy recommendations designed to improve palliative care outcomes in Kazakhstan by capitalizing on existing resources and considering its unique geopolitical and sociocultural context. With a...
Source: Rural Remote Health - August 21, 2023 Category: Rural Health Authors: Islam Salikhanov Maria C Katapodi Gulnara Kunirova Byron L Crape Source Type: research

Involving adolescents and young adults (AYA) with an uncertain or poor cancer prognosis as research partners
CONCLUSION: The benefits of involving AYAs with a UPCP as research partners cannot be stressed enough, both for the study as well as for the AYAs themselves, but there are challenges. Researchers should anticipate and address those challenges during the planning phase of the study. This article provides practical tips on how to do so.PMID:37504887 | DOI:10.1080/0284186X.2023.2238554
Source: Acta Oncologica - July 28, 2023 Category: Cancer & Oncology Authors: Vivian W G Burgers Annemiek Dickhout Niels C G L Harthoorn Simone A M M Frissen Marloes J Noordhoek Suzanne A Franssen Milou J P Reuvers Winette T A van der Graaf Olga Husson Source Type: research

ADCC's Improving Goal Concordant Care Initiative: Implementing Primary Palliative Care Principles
J Pain Symptom Manage. 2023 May 29:S0885-3924(23)00515-8. doi: 10.1016/j.jpainsymman.2023.05.008. Online ahead of print.ABSTRACTBACKGROUND: High-quality, timely goals of care communication (GOCC) may improve patient and caregiver outcomes and promote care that is consistent with patient preferences.PROBLEM: Cancer patients, and their loved ones, appreciate GOCC; however, oncologists often lack formal communication training, institutional support and structures necessary to promote the delivery, documentation, and longitudinal follow-up of GOCC.PROPOSED SOLUTION: The Alliance of Dedicated Cancer Centers (ADCC), representing...
Source: Pain Physician - May 31, 2023 Category: Anesthesiology Authors: Elizabeth T Loggers Amy A Case Marcin Chwistek William Dale Marvin O Delgado Guay Stephen B Edge Steven R Grossman Jillian Gustin Judith Nelson Sahana Rajasekhara Akhila Reddy James A Tulsky Finly Zachariah Kristen McNiff Landrum Source Type: research

Palliation, end of life care and ventilation withdrawal in neuromuscular disorders
CONCLUSIONS: The principles of palliative care are well suited to addressing the complex needs of patients with NMDs and should be considered early in the course of illness rather than limited to care at the end of life. Embedding relationships with specialist palliative care services as part of the wider neuromuscular multidisciplinary team can facilitate staff education and ensure timely referral when more complex palliative care problems arise.PMID:37199317 | DOI:10.1177/14799731231175911
Source: Respiratory Care - May 18, 2023 Category: Respiratory Medicine Authors: Joanna Elverson Hayley Evans Felicity Dewhurst Source Type: research

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