constant sinus drainage after lung transplant
I had a lung transplant (and liver) in late 2012. I had sinus surgery in December 2013. But I have constant mucus buildup and sinus drainage 24/7. I blow my nose several times a day and cough up stuff often that I know is from the sinus drainage. I do sinus rinses at least once a day, every day along with nasonex every day. I don't want this to cause an infection. I feel like this is getting worse and my ENT just says its CF and doesn't do anything about it (although he does clean out my sinuses when I see him). Does anyone have any remedies to decrease the amount of mucus buildup in my sinuses? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 14, 2015 Category: Respiratory Medicine Authors: randomgirl Tags: Adults Source Type: forums
21 YO cf patient looking to move
I currently live in the greater kansas city area and see the KU CF team regularly. I am looking at the possibility of moving to Phoenix Arizona. I have a roommate lined up if I do but other than that I would be alone with the nearest family over 2 hours away. I have more than just my CF to contend with as well as typical CF problems with infections and viral and bacterial pneumonia within the past year. MY past PFT was only about 55% average. At the moment I am being tested for TB because of some symptoms I have been having including small portions of blood in my mucus from the lungs. Other problems i have include the rare...
Source: Cystic Fibrosis Adults Forum - August 14, 2015 Category: Respiratory Medicine Authors: b4herbiesbug Tags: Adults Source Type: forums
18 yrs transplanted lungs
I am a female age 49 yrs old . I received a double lung 18yrs ago but now my digestive tract is shot stomach muscle does not work so being fed through an NG tube, reason being I also have cirrhosis of the liver. My lungs are doing great but everthing digestive wise is shot. Is there anyone else going through this (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - April 27, 2015 Category: Respiratory Medicine Authors: cassidy96 Tags: Transplants Source Type: forums
What else could go wrong
Hello my fellow cfers. Im just going to jump right in, I'm 25 and I just finished my evaluation for transplant and found out I will be getting listed for both lung and liver. However, when I got a ct scan of my abdomen they saw some of the nodules on my liver do something called "washing out" which they said could be a sign of cancer. So about a week ago I had an MRI of my liver done and it is a small cancer. They said this wouldn't stop me from being listed but they want me to have a procedure to, the doctor I talked to, said "burn away the tumor". Im not really scared about the cancer part because I ...
Source: Cystic Fibrosis Transplants Forum - August 8, 2013 Category: Respiratory Medicine Authors: Kyrav Tags: Transplants Source Type: forums
24 hour ph study
Hi everyone. As of right now I only need one more test before my lung and liver team present my case to the transplant committee. It's the ph study, you know, the one where they shove a tube up your nose and down your throat to measure your acid reflux. Anyway, I tried it outpatient last week and couldn't stand it. I was in so much pain and throwing up every time I coughed so I ended up taking it out 7 hours in. They want me to try it again on Monday, I'm in the hospital for an exacerbation right now so they say they can give me better stuff to help my throat from being so sore and to calm down my gag reflex.
I was just ...
Source: Cystic Fibrosis Transplants Forum - May 30, 2013 Category: Respiratory Medicine Authors: Kyrav Tags: Transplants Source Type: forums
