Double Transplant for CF?
I just received my packet for my transplant testing and was reading through the material. I will be going to Cleveland Clinic. While my lung functions are still in the mid 40's I'm curious as to what I've been reading. I know I won't be listed as a critical person (my doctors wanted me to get on the list so I'm there in case I get really sick and they start to fall again). In the packet it said CF patients usually get a double transplant. I was just curious if this was the case for everyone or have any of you only gotten a single transplant. I would think it would vary per patient, but it sounds like at Cleveland Clinic th...
Source: Cystic Fibrosis Transplants Forum - November 22, 2015 Category: Respiratory Medicine Authors: kenna2 Tags: Transplants Source Type: forums

changing the way we talk about transplant
hi all, wanted to share a blog i wrote for the CF Lifestyle Foundation. Hope you like it and comments welcome. :) http://www.cflf.org/blog/unthinkable-transplant Caitlin (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - July 15, 2015 Category: Respiratory Medicine Authors: kittencaitlin Tags: Transplants Source Type: forums

SSI after transplant
Has anyone been successful retaining SSI/Medicaid benefits post transplant? We're four years out and although the surgery was successful, my son's is experiencing other complications--diabetes, multiple skin cancers, gall bladder removal, low weight and pulmonary function levels that are stable but not great. There is no way we could afford the 20 prescriptions he is on and full time work is out of the question. He is undergoing a disability review. Thoughts? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - July 14, 2015 Category: Respiratory Medicine Authors: mackenziesmom Tags: Transplants Source Type: forums

coming up on 5 years
Haven't posted in a while, but for those of you still waiting, keep hoping. I will be 5 years post this June and things have gone really well. I've been working fulltime, traveling and exploring new hobbies. I've also met my donor family on several occasions---which was amazing experience. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 15, 2015 Category: Respiratory Medicine Authors: jfarel Tags: Transplants Source Type: forums

18 yrs transplanted lungs
I am a female age 49 yrs old . I received a double lung 18yrs ago but now my digestive tract is shot stomach muscle does not work so being fed through an NG tube, reason being I also have cirrhosis of the liver. My lungs are doing great but everthing digestive wise is shot. Is there anyone else going through this (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - April 27, 2015 Category: Respiratory Medicine Authors: cassidy96 Tags: Transplants Source Type: forums

How did your decline go?
The changes in how I'm feeling overall since my last hospital stay feel drastic, however right now my numbers don't really reflect that. I'm the past usually what would happen would be I would suddenly get sick with something (cold, flu, whatever), cough a ton, get to my couch out of breath then realize it's time for a hospital stay. Get tuned up then good to go back to my usual routine. However, my last stay wasn't like that. I never really got "sick", I'm fact I was barely coughing at all besides when I really forced myself during treatments. I went in because of a really heavy sensation on my chest, and af...
Source: Cystic Fibrosis Transplants Forum - April 23, 2015 Category: Respiratory Medicine Authors: static Tags: Transplants Source Type: forums

Pulmonary Hypertension
Anyone diagnosed with pulmonary hypertension after lung transplant? I just had a routine echocardiogram and my cardiologist said I have mild pulmonary hypertension, which he does not think needs to be treated at this point. Curious to know if this is common after transplant. I understand that it is common in end stage CF, so I most probably had it at that point, but supposedly a lung transplant would fix that. Any input would be appreciated. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - March 17, 2015 Category: Respiratory Medicine Authors: CFfisherman Tags: Transplants Source Type: forums

traveling + eating post transplant?
Hi all, I am trying to spend my time pre-tx letting myself think about all that I would like to do post-transplant. And one of those things is travel. I'd love to hear stories about how you all have dealt with food safety while traveling, particularly in europe or out of the states anywhere. I am totally aware of all the guidelines after transplant, so mostly im just looking for first hand accounts of how you actually make it work. For instance if you're in another country at a restaurant where you don't speak the language, or speak very little, do you play it safe and order little to nothing, unless you are positive it...
Source: Cystic Fibrosis Transplants Forum - February 26, 2015 Category: Respiratory Medicine Authors: kittencaitlin Tags: Transplants Source Type: forums

Transplant Survivor
Hey guys, Would like to introduce myself, my name is Tom, I'm 34 years old this year and had a transplant on the 08/16/2011. I do a lot of talks and presentations to parents with children with CF etc If anyone has any questions or would like some advice please feel free to contact me. You can also visit this page to see a little more of my story: http://www.pozible.com/project/188562 (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - January 27, 2015 Category: Respiratory Medicine Authors: Tommyrose Tags: Transplants Source Type: forums

Relocating for Transplant
After being rejected by Mass General (MGH) my son (26 homozygous for DF508 and colonized with NTM that is not sensitive to macrolides) we are now at Duke hoping they will accept him. Duke seems much more aggressive than MGH. If they list him (please, please, please...) we will have to relocate for a period of time. I am very daunted by this. Does anyone have experience with the relocation? How did you and your caregiver manage? Thanks for any insight. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - January 6, 2015 Category: Respiratory Medicine Authors: donin Tags: Transplants Source Type: forums

Anyone on here with lung AND then Kidney tx?
Please share if you have any experience w this. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - January 5, 2015 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

M. Abscessus and Transplant
Hello, My 26 year old son is being evaluated for transplant. Many centers will not consider him because he has m. abscessus (he is otherwise the perfect candidate). Three centers have agreed to evaluate him. He has completed the rigorous evaluation at one hospital but was rejected because his m. abscessus is not sensitive to the macrolides family of antibiotics (even though the m. abscessus is clinically controlled for him). We now have two to go (Duke and Pittsburgh). The rejection was terribly disappointing. I am wondering if anyone else has experience with being a 'difficult' transplant 'case.' Thank you for any insig...
Source: Cystic Fibrosis Transplants Forum - December 15, 2014 Category: Respiratory Medicine Authors: donin Tags: Transplants Source Type: forums

Any info/experience with transplant at CHOP
I am looking for any information, experiences, or wisdom in regards to lung transplant at CHOP (Philadelphia). Thanks!! (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - October 22, 2014 Category: Respiratory Medicine Authors: Beaz Tags: Transplants Source Type: forums

Do YOU feel guilty for being sick?
Just wondering if any one of YOU people (me included) feel guilty for being sick all the time? Like everyone else is supposed 'automatically' be understanding and bend over backwards to accomodate YOU. How many other people's lives have to revolve around US? OUR appts? OUR hospitalizations? OUR dreams/goals? OUR personal wants? OUR desires to be 'normal' when it inconveniences everyone else around us? Do we realize how much we are truly burdening others around us with our complicated lives? Anyone feel the same? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - October 8, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Post Lung Transplant Pets - Are Cats Okay?
Does anyone here, who's post-transplant, have a cat as a pet? I've heard cats are okay as long as someone else cleans out the litter box, but I'd like to hear from somebody with real world experience. My six year-old desperately wants a kitty, and I'd love to get her one. I just want to know if it's safe for me first. Bill B 40 yrs old / 16 yrs Post Transplant Los Angeles, CA. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - September 3, 2014 Category: Respiratory Medicine Authors: Bill B Tags: Transplants Source Type: forums

Transplant and pregnancies
Hello I have a few questions they are starting the work up for a transplant....I am still pretty healthy but I am not bounceing back to my normal after I get sick or get a tune up...I am 31 and have 1 daughter but we would like to have another...does anybody know good information as far as if I can have a baby now will that pro long the transplant process or will they completely look over me or what and has anybody heard of woman with cf having babies after the transplant? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 30, 2014 Category: Respiratory Medicine Authors: missmary083 Tags: Transplants Source Type: forums

HELP! Does Medicare and Medicaid cover ALL cost including all after care drugs??
If you've had a transplant or have looked into it, are there any out of pocket costs?? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 27, 2014 Category: Respiratory Medicine Authors: Chantal Tags: Transplants Source Type: forums

If you're American and have had a transplant, please help with info!
Hi all from Canada :) my sister passed from CF when she was 21 and I was 17 in 1990. I'm now writing a book, a novel where the lead is helping her sister obtain a lung transplant. It takes place is the US, and I have a few questions. Are all costs related to double lung transplants covered under basic medical insurance? If not, approximately what amount would need to be raised by the patient? The people in the story are not wealthy, so only basic health insurance is affordable...Please correct me if I'm wrong, but that would be be Medicare? What hospital or hospitals are recognized as the best covered facilities for lu...
Source: Cystic Fibrosis Transplants Forum - August 22, 2014 Category: Respiratory Medicine Authors: Chantal Tags: Transplants Source Type: forums

Nissen fundoplication
Has anyone here had this procedure? do you feel any weird stomach sensations since surgery? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 13, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Post Transplant and Drinking Alcohol
I'm curious to see how many people drink alcohol after transplant. Do you drink once in a blue moon, once every month, etc. I know each hospital has different suggestions on this topic, but I have noticed that it seems drinking in moderation every once in awhile is acceptable. I rarely drink and since the new set of lungs it has only happened twice. Those two times I only had a few beers. Just wanted to see how everyone feels about the subject and if they do or don't. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 5, 2014 Category: Respiratory Medicine Authors: Joblazer86 Tags: Transplants Source Type: forums

Can a dirty house cause rejection?
My GF had her transplant last February. A couple months ago, she was diagnosed with A1 rejection. They gave her steroids, and she went down to A0 rejection. A month later, her Bronch showed that she had gone up to A3 rejection. They tested for a virus related to mono, they tested her stomach with radiation to check aspirations. Still no evidence as to what could be causing her rejection. Now, for the main part. My roommates don't clean the house, and I am too busy to single-handedly keep up with all 5 of us regularly. There is mold all over my roommates' bathroom, there is mold and bacteria in the kitchen, and dust builds...
Source: Cystic Fibrosis Transplants Forum - June 2, 2014 Category: Respiratory Medicine Authors: ajmc87 Tags: Transplants Source Type: forums

sinus issues post tx
Has anyone else had sinus issues post - tx? i have never had sinus problems but its been about 1.5 years after tx and i have constant bloody/dry nose. its like the humidifier in my nose broke or something. I am constantly blowing out dry, bloody scabs in my nose. no sinus pressure or pain, just dry nose. i thought it was related to the heat being on, but we've had our heat off for about a month now, and no improvement. nasal gel doesn't work, neither does sinus rinses or saline spray..... if you had this issue what did you do? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 29, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Air Ambulance/Jet to transplant center -- anyone done this?
Hi, I am currently about to be listed for tx at UPMC but I live in Boston. I have almost finished my evaluation and expect to be active on the list within a week or so. We have set up air ambulance with Angel MedFlight but we have to have "backups" in the unlikely case that they can't get there. I have 4 hours to get from Boston-->Pittsburgh. Pittsburgh is 1:20 away, but no company can 110% guarantee something, so backups are necessary. We are calling places (my mom is helping me) and are getting a handle on it, but I was just wondering if any of you out there had done this too. Who did you use? Was the proc...
Source: Cystic Fibrosis Transplants Forum - April 23, 2014 Category: Respiratory Medicine Authors: kittencaitlin Tags: Transplants Source Type: forums

Cleveland Clinic?
We're still weighing our options between Duke and Cleveland Clinic. I know much more about the Duke program. The benefit if Cleveland is that we can stay home until the call comes. Have any of you been transplanted at Cleveland? I'd love to hear pros/cons. thanks (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - March 22, 2014 Category: Respiratory Medicine Authors: Jane Tags: Transplants Source Type: forums

Celebrating 7 year Transplant anniversary!
Yesterday I celebrated 7 years post double lung transplant. (^) I'm doing extremely well. Healthy, happy and engaged to be married! :) Anyone with transplant questions feel free to ask. I'll do my best to answer with my knowledge. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - March 14, 2014 Category: Respiratory Medicine Authors: beautifulsoul Tags: Transplants Source Type: forums

Another interesting article
http://www.npr.org/blogs/health/2014...ds-transplants (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 26, 2014 Category: Respiratory Medicine Authors: Rebjane Tags: Transplants Source Type: forums

Inspiring video of a double lung transplant survivor
Here is a inspiring video of my 35 year old brother who has Cystic Fibrosis and had a double lung transplant 5 years ago. This video was made to document the celebration of the 5 years and to reflect on his life so far. http://youtu.be/OBk_1h3CK-g Or search LUNGIVERSARY on YouTube. Please comment and share if you enjoyed it (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 23, 2014 Category: Respiratory Medicine Authors: Billwaukee1 Tags: Transplants Source Type: forums

prednisone
do you mind sharing what post-transplant dosage you are currently on? thx (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 21, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

kidneys and water
Have any doctors or research shown that drinking more water helps prevent kidney disease after transplant? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 14, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Lungs "in a box" Cool article (does show picture of lungs, if you are squeamish)
http://www.npr.org/blogs/health/2014...re-transplants (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 10, 2014 Category: Respiratory Medicine Authors: Rebjane Tags: Transplants Source Type: forums

Safety Precautions After Transplant
Hi all, My girlfriend had her transplant last February (almost one year!) and I was wondering if you all could share some tips and tricks for preventing infection. We follow the basic precautions, like hand-washing, sanitizing, housekeeping, avoiding large crowds, etc. But I was hoping to get some advice that is a little more on the creative side. Any and all advice helps! (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - January 15, 2014 Category: Respiratory Medicine Authors: ajmc87 Tags: Transplants Source Type: forums

Someone who has chronical rejection ?
Hi ! After 15 years with my donors lung I started to feel worse in my lungs, and last year I got the diagnose, that I already had manage to find out myself, chronical rejection. I got short breath as fast as I do something, my blowresaults are worse, I got back a port-a-cath, because the old infections came back :( . Im happy though, because i celebrate 18 years with my donors lungs in november. Probably I cant get a new lungtransplant, because of other problems with my body.I want to know if there is somebody else who are in the same situation ? What kind of symptoms do you have ? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - September 21, 2013 Category: Respiratory Medicine Authors: sistercf Tags: Transplants Source Type: forums

NG Tube Trouble
I'm in the hospital for pneumonia, waiting for transplant. I had an NG tube placed Friday, but it hurt my throat like crazy. Then early Saturday morning I gave one solid cough, and it came out. The thing was still secured in my nose, and a loop of it was sticking out my mouth. I got another one today (Monday) but wondering if anyone else has had this and has any advice for keeping this one in??? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - September 17, 2013 Category: Respiratory Medicine Authors: chris27rocker Tags: Transplants Source Type: forums

6 months post transplant
Today is 6 months post-transplant (L)(L) (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 13, 2013 Category: Respiratory Medicine Authors: moonlutz11 Tags: Transplants Source Type: forums

just over a year wait but on July 23 it finally happed I got lungs
Everything is going fantastic the hospital wanted to discharge me after just 10 days in ended staying for 12. I know that I still have a long way to go but very happy with everything so far. Dave, (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 9, 2013 Category: Respiratory Medicine Authors: Daverog75 Tags: Transplants Source Type: forums

Transplant and emotions
Hi all, I am almost 30 and about to begin my transplant journey. Will get evaluated next month. This is opening a can of worms with a lot of soul searching type questions and thoughts, which I believe to be part of the process. I would like to hear from people who have received their transplant and how was it for them in terms of moods/feelings, both before and after the transplant. What kind of feelings can arise after a successful transplant, after the initial shock and medications wear off? All my life I have not been able to mentally conceive a life where I do not have limitations; and even though I am a long time...
Source: Cystic Fibrosis Transplants Forum - August 8, 2013 Category: Respiratory Medicine Authors: nocode Tags: Transplants Source Type: forums

What else could go wrong
Hello my fellow cfers. Im just going to jump right in, I'm 25 and I just finished my evaluation for transplant and found out I will be getting listed for both lung and liver. However, when I got a ct scan of my abdomen they saw some of the nodules on my liver do something called "washing out" which they said could be a sign of cancer. So about a week ago I had an MRI of my liver done and it is a small cancer. They said this wouldn't stop me from being listed but they want me to have a procedure to, the doctor I talked to, said "burn away the tumor". Im not really scared about the cancer part because I k...
Source: Cystic Fibrosis Transplants Forum - August 8, 2013 Category: Respiratory Medicine Authors: Kyrav Tags: Transplants Source Type: forums

Hypertonic saline post TX
Im still doing it 11 montys post, and bellevue its beneficial. Anyone Else? /jan (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - July 30, 2013 Category: Respiratory Medicine Authors: Vejling Tags: Transplants Source Type: forums

How can lung transplants change in 10, 20 years?
The idea of having to get a transplant one day freaks me out, like when people say the success rate is 90% it doesn't seem all that great, cause what if I were that 10% and I die in the hospital?! is there any way of knowing what the future holds for lung transplants, like 5, 10, 15, or even 20years? Currently, how long can someone live on a pair of new lungs? Can someone who got a new pair at age 20 live as long as a normal person? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - July 27, 2013 Category: Respiratory Medicine Authors: Enzo2311 Tags: Transplants Source Type: forums

Were u on soc sec before transplant?
Were u on soc sec disability before transplant and if so, When where you cut off from benefits after transplant? How did they find out u got a tx? Thx! (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - July 27, 2013 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Ontario Trillium Drug Program
Hello, Just wondering if there are any people from Ontario on the Trillium Drug program? I am on the transplant list and will have my surgery in Toronto. I have an identical twin brother who had a transplant over 4 years and I saw what he went through with the side effects of Cyclosporin. Luckily for him his employer had a drug plan and after 6 months he switched to Tacrolimus. I don't have a drug and Tac is very expensive. just if anybody is using trillium and how long does it usually take to get reimbursed. Dave, (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - June 24, 2013 Category: Respiratory Medicine Authors: Daverog75 Tags: Transplants Source Type: forums

3 months Post Transplant...
My boyfriend was transplanted Feb 24, 2013. He was at about 13% lung function at the time and was listed for about 8 months before transplant. He had one dry run around Thanksgiving of 2012. He was very hesitant about this whole process. In January of 2004 he got a bad case of pneumonia and was put in a medical induced coma. We live in Syracuse NY but he was transported to Boston during this time. he got put on the transplant list there. He was eventually taken off the list because he seemed to bounce back. After being hospitalized for about 6 months... He went back to his normal life.. Even playing recreational sports aga...
Source: Cystic Fibrosis Transplants Forum - June 7, 2013 Category: Respiratory Medicine Authors: Cmk0808 Tags: Transplants Source Type: forums

How did your decline go?
If no one wants to answer that's fine. I'm honestly just curious. How did your decline leading you to need a lung transplant go? I am moderately healthy for a CFer, and have never really known anyone go from being healthy to transplant, only ever met people while they were waiting for the transplant or had already had one. I always wonder, like where were your PFTs 1 year before, 5 years before? I just it's hard for me to wrap my head around sometimes. I mean I've had my own decline, but I'm no where near transplant yet thankfully, and I just always wondered how drastic or fast it is? Or can it happen quickly or slowly? I ...
Source: Cystic Fibrosis Transplants Forum - June 5, 2013 Category: Respiratory Medicine Authors: Lena Bean Tags: Transplants Source Type: forums

24 hour ph study
Hi everyone. As of right now I only need one more test before my lung and liver team present my case to the transplant committee. It's the ph study, you know, the one where they shove a tube up your nose and down your throat to measure your acid reflux. Anyway, I tried it outpatient last week and couldn't stand it. I was in so much pain and throwing up every time I coughed so I ended up taking it out 7 hours in. They want me to try it again on Monday, I'm in the hospital for an exacerbation right now so they say they can give me better stuff to help my throat from being so sore and to calm down my gag reflex. I was just ...
Source: Cystic Fibrosis Transplants Forum - May 30, 2013 Category: Respiratory Medicine Authors: Kyrav Tags: Transplants Source Type: forums

Kalydeco and transplant
Has anyone ever heard of a patient on Kalydeco, who hasn't responded well and has ended up with a transplant anyway? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 23, 2013 Category: Respiratory Medicine Authors: echolaura Tags: Transplants Source Type: forums

Fundraising for CFer awaiting double lung transplant
It is that time of year again. For the second year in a row I am promoting a Standup Comedy show to raise money for CF and / or CF Patients. This year we are raising money for Team TLC. Team TLC is a team comprised of friends and family of Terry Lee Carroll. Terry is a 32 year old CF patient who is currently awaiting a double lung transplant. Terry lives in Southgate, KY; just a short distance across the river and a couple miles from Cincinnati, OH. During his wait, he and his family will need to make several trips to the Cleveland Clinic, where he will eventually have his surgery. As you can imagine the financial burden t...
Source: Cystic Fibrosis Transplants Forum - May 22, 2013 Category: Respiratory Medicine Authors: skeeter Tags: Transplants Source Type: forums

The Power of Two
After nearly 30 years, a long, hard fight against cystic fibrosis and 3 miraculous double lung transplants between them, Ana and Isa Stenzel are still alive at 41. Watch their incredible story in the acclaimed film THE POWER OF TWO premiering May 22 at 8pm ET & PT on Link TV and KCET. Watch free online starting May 22 at http://bit.ly/11QpWNF (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 10, 2013 Category: Respiratory Medicine Authors: jcahill Tags: Transplants Source Type: forums

Starting the evaluation for transplant
My son is 22 years old and is getting sick every time he comes off IV meds the dr.s are telling us to get prepared to start the evaluation process. Iam watching my son get sicker and thinner aLl the time And as soon as he comes off the ivs his gets sick again to watch him get disappointed is hard to handle. So I am trying to prepare my self as what this process is going to be like. Can any one tell me about the process and the Drs. have told us in the past that success rate isn't very good but when look on here I read many success stories. I don't know what to think any info would be very helpful (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 6, 2013 Category: Respiratory Medicine Authors: robbiekay Tags: Transplants Source Type: forums

Tricia Lawrenson
Tricia wanted me to post here for her to let you all know that she received a call for transplant this morning at 7am. We are at the hospital, waiting to find out if it is a go. Thanks. Nate (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - April 27, 2013 Category: Respiratory Medicine Authors: NathanL Tags: Transplants Source Type: forums

My husband just had a transplant...some of his nurses and his surgeon are saying...
He can't have certain foods and drinks. For example, they said he isn't allowed to have any fruits or vegetables that are fresh (otherwise, they have to be cooked) And he cannot have stuff like sushi (with the raw fish in it) And water that isn't bottled. Is some of this true, and do any of you have a comprehensive list of what to eat/not to eat post transplant? Btw, he is doing amazing. He got the surgery Tuesday night and I'm sitting here with him now. He has oxygen stats of 100 without oxygen and has been on room air the whole time. Got up and walked around the nurses station twice on this floor the day after his surge...
Source: Cystic Fibrosis Transplants Forum - April 27, 2013 Category: Respiratory Medicine Authors: Cbegley Tags: Transplants Source Type: forums