To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research

Potential use of glucocorticosteroids in CSF1R mutation carriers - current evidence and future directions
Neurol Neurochir Pol. 2023;57(5):444-449. doi: 10.5603/pjnns.97373. Epub 2023 Oct 27.ABSTRACTWe recently found that glucocorticosteroids (GCs) have protective effects in CSF1R mutation carriers against developing symptomatic CSF1R-related leukoencephalopathy. Our findings were subsequently confirmed in a mouse model study. We have received many questions from patients, their families, patient organisations, and healthcare practitioners about the optimal type of GCs, the dose, the route of administration, and application timing. This paper attempts to answer the most urgent of these questions based on our previous studies a...
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Jaros ław Dulski E Richard Stanley Violeta Chitu Zbigniew K Wszolek Source Type: research

To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research

Potential use of glucocorticosteroids in CSF1R mutation carriers - current evidence and future directions
Neurol Neurochir Pol. 2023;57(5):444-449. doi: 10.5603/pjnns.97373. Epub 2023 Oct 27.ABSTRACTWe recently found that glucocorticosteroids (GCs) have protective effects in CSF1R mutation carriers against developing symptomatic CSF1R-related leukoencephalopathy. Our findings were subsequently confirmed in a mouse model study. We have received many questions from patients, their families, patient organisations, and healthcare practitioners about the optimal type of GCs, the dose, the route of administration, and application timing. This paper attempts to answer the most urgent of these questions based on our previous studies a...
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Jaros ław Dulski E Richard Stanley Violeta Chitu Zbigniew K Wszolek Source Type: research

To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research

Potential use of glucocorticosteroids in CSF1R mutation carriers - current evidence and future directions
Neurol Neurochir Pol. 2023;57(5):444-449. doi: 10.5603/pjnns.97373. Epub 2023 Oct 27.ABSTRACTWe recently found that glucocorticosteroids (GCs) have protective effects in CSF1R mutation carriers against developing symptomatic CSF1R-related leukoencephalopathy. Our findings were subsequently confirmed in a mouse model study. We have received many questions from patients, their families, patient organisations, and healthcare practitioners about the optimal type of GCs, the dose, the route of administration, and application timing. This paper attempts to answer the most urgent of these questions based on our previous studies a...
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Jaros ław Dulski E Richard Stanley Violeta Chitu Zbigniew K Wszolek Source Type: research

To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research

Potential use of glucocorticosteroids in CSF1R mutation carriers - current evidence and future directions
Neurol Neurochir Pol. 2023;57(5):444-449. doi: 10.5603/pjnns.97373. Epub 2023 Oct 27.ABSTRACTWe recently found that glucocorticosteroids (GCs) have protective effects in CSF1R mutation carriers against developing symptomatic CSF1R-related leukoencephalopathy. Our findings were subsequently confirmed in a mouse model study. We have received many questions from patients, their families, patient organisations, and healthcare practitioners about the optimal type of GCs, the dose, the route of administration, and application timing. This paper attempts to answer the most urgent of these questions based on our previous studies a...
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Jaros ław Dulski E Richard Stanley Violeta Chitu Zbigniew K Wszolek Source Type: research

To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research

Potential use of glucocorticosteroids in CSF1R mutation carriers - current evidence and future directions
Neurol Neurochir Pol. 2023;57(5):444-449. doi: 10.5603/pjnns.97373. Epub 2023 Oct 27.ABSTRACTWe recently found that glucocorticosteroids (GCs) have protective effects in CSF1R mutation carriers against developing symptomatic CSF1R-related leukoencephalopathy. Our findings were subsequently confirmed in a mouse model study. We have received many questions from patients, their families, patient organisations, and healthcare practitioners about the optimal type of GCs, the dose, the route of administration, and application timing. This paper attempts to answer the most urgent of these questions based on our previous studies a...
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Jaros ław Dulski E Richard Stanley Violeta Chitu Zbigniew K Wszolek Source Type: research

To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research

Potential use of glucocorticosteroids in CSF1R mutation carriers - current evidence and future directions
Neurol Neurochir Pol. 2023;57(5):444-449. doi: 10.5603/pjnns.97373. Epub 2023 Oct 27.ABSTRACTWe recently found that glucocorticosteroids (GCs) have protective effects in CSF1R mutation carriers against developing symptomatic CSF1R-related leukoencephalopathy. Our findings were subsequently confirmed in a mouse model study. We have received many questions from patients, their families, patient organisations, and healthcare practitioners about the optimal type of GCs, the dose, the route of administration, and application timing. This paper attempts to answer the most urgent of these questions based on our previous studies a...
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Jaros ław Dulski E Richard Stanley Violeta Chitu Zbigniew K Wszolek Source Type: research

To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research

Potential use of glucocorticosteroids in CSF1R mutation carriers - current evidence and future directions
Neurol Neurochir Pol. 2023;57(5):444-449. doi: 10.5603/pjnns.97373. Epub 2023 Oct 27.ABSTRACTWe recently found that glucocorticosteroids (GCs) have protective effects in CSF1R mutation carriers against developing symptomatic CSF1R-related leukoencephalopathy. Our findings were subsequently confirmed in a mouse model study. We have received many questions from patients, their families, patient organisations, and healthcare practitioners about the optimal type of GCs, the dose, the route of administration, and application timing. This paper attempts to answer the most urgent of these questions based on our previous studies a...
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Jaros ław Dulski E Richard Stanley Violeta Chitu Zbigniew K Wszolek Source Type: research

To know or not to know? Opinions of patients with Parkinson's Disease on disclosing risk of phenoconversion in RBD
CONCLUSIONS AND CLINICAL IMPLICATIONS: Our study provides important information that should influence physicians' communication with patients with RBD, especially regarding how they communicate about the high risk of phenoconversion.PMID:37888900 | DOI:10.5603/pjnns.97758 (Source: Neurologia i Neurochirurgia Polska)
Source: Neurologia i Neurochirurgia Polska - October 27, 2023 Category: Neurology Authors: Aneta Marcinkowska Andrzej Bogucki Aleksandra Kroemeke Agata Gajos Source Type: research