Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa
CONCLUSIONS: Overall, parents and providers were aware that genetic testing could help in the clinical management of diseases. However, they cited a lack of knowledge about genomic medicine, uncertain clinical utility, and lack of available learning resources as barriers. The knowledge gained from this study will assist with developing guidelines and policies to guide providers on the return of SFs in sub-Saharan Africa and across the continent.PMID:38236653 | DOI:10.1080/23294515.2024.2302993 (Source: AJOB Primary Research)
Source: AJOB Primary Research - January 18, 2024 Category: Medical Ethics Authors: Abimbola M Oladayo Sydney Prochaska Tamara Busch Wasiu L Adeyemo Lord J J Gowans Mekonen Eshete Waheed Awotoye Veronica Sule Azeez Alade Adebowale A Adeyemo Peter A Mossey Anya Prince Jeffrey C Murray Azeez Butali Source Type: research
A Vision for Empirical ELSI along the R & amp;D Pipeline
AJOB Empir Bioeth. 2024 Jan 12:1-6. doi: 10.1080/23294515.2023.2297931. Online ahead of print.NO ABSTRACTPMID:38214924 | DOI:10.1080/23294515.2023.2297931 (Source: AJOB Primary Research)
Source: AJOB Primary Research - January 12, 2024 Category: Medical Ethics Authors: Ramya M Rajagopalan Julie Cakici Cinnamon S Bloss Source Type: research
How Do Molecular Systems Engineering Scientists Frame the Ethics of Their Research?
CONCLUSIONS: Molecular systems engineering scientists currently focus on regulatory aspects as the framework for their ethical analyses. They describe using a framework to define when life arises, as a means to determine when further ethical engagement is warranted. Further research is needed to investigate how scientists relate to the ethics of their scientific work, and build consensus around concepts of life, autonomous behavior, and physiological relevance of bioengineered systems.PMID:38194358 | DOI:10.1080/23294515.2024.2302994 (Source: AJOB Primary Research)
Source: AJOB Primary Research - January 9, 2024 Category: Medical Ethics Authors: Renan Gon çalves Leonel da Silva Alessandro Blasimme Effy Vayena Kelly E Ormond Source Type: research
The Need to Consider Context: A Systematic Review of Factors Involved in the Consent Process for Genetic Tests from the Perspective of Patients
Conclusions: We describe the network of factors contributing to decision-making and consent process and identify the context of genetic testing as a third component to influence this process. Future studies should consider the evaluation of contextual factors as an important and relevant component of the consent and decision-making process about genetic tests. Based on these results, we plan to develop and test a more comprehensive tool to assess informed consent for genetic testing.PMID:38189769 | DOI:10.1080/23294515.2023.2297935 (Source: AJOB Primary Research)
Source: AJOB Primary Research - January 8, 2024 Category: Medical Ethics Authors: Fr édéric Coulombe Anne-Marie Laberge Source Type: research
