Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Perceptions of Psychosocial and Ethical Issues and the Psychological Characteristics of Donors in the Clinical Setting of Living Kidney Donors: A Qualitative Study
CONCLUSION: Donors felt that they took on the "role as a care giver" for the recipient and were less aware of themselves as patients. This is a new concept that has not been shown in previous studies. Donors exist within the recipient and family, and the range of their autonomy may go beyond the traditional concept of autonomy and be rooted in relational autonomy. This study suggested that medical treatment in the presence of the recipient promotes the relational autonomy of the donor.PMID:37417911 | DOI:10.1080/23294515.2023.2232776 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Nana Arai Naoki Yokoyama Mayumi Hara Yoshiyuki Takimoto Source Type: research
Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care
AJOB Empir Bioeth. 2023 Jul 7:1-9. doi: 10.1080/23294515.2023.2224588. Online ahead of print.ABSTRACTPatients and family members (N = 671) were surveyed in five Mid-Atlantic U.S. hospitals to ascertain the number and kinds of ethical concerns they are presently experiencing or have previously experienced while being sick or receiving medical care. Seventy percent of participants had at least one (range 0-14) type of ethical concern or question. The most commonly experienced concerns pertained to being unsure how to plan ahead or complete an advance directive (29.4%), being unsure whether someone in the family was able to m...
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Marion Danis Christine Grady Mariam Noorulhuda Ben Krohmal Henry Silverman Lee Schwab Hae Lin Cho Melissa Goldstein Paul Wakim Source Type: research
Perceptions of Psychosocial and Ethical Issues and the Psychological Characteristics of Donors in the Clinical Setting of Living Kidney Donors: A Qualitative Study
CONCLUSION: Donors felt that they took on the "role as a care giver" for the recipient and were less aware of themselves as patients. This is a new concept that has not been shown in previous studies. Donors exist within the recipient and family, and the range of their autonomy may go beyond the traditional concept of autonomy and be rooted in relational autonomy. This study suggested that medical treatment in the presence of the recipient promotes the relational autonomy of the donor.PMID:37417911 | DOI:10.1080/23294515.2023.2232776 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Nana Arai Naoki Yokoyama Mayumi Hara Yoshiyuki Takimoto Source Type: research
Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care
AJOB Empir Bioeth. 2023 Jul 7:1-9. doi: 10.1080/23294515.2023.2224588. Online ahead of print.ABSTRACTPatients and family members (N = 671) were surveyed in five Mid-Atlantic U.S. hospitals to ascertain the number and kinds of ethical concerns they are presently experiencing or have previously experienced while being sick or receiving medical care. Seventy percent of participants had at least one (range 0-14) type of ethical concern or question. The most commonly experienced concerns pertained to being unsure how to plan ahead or complete an advance directive (29.4%), being unsure whether someone in the family was able to m...
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Marion Danis Christine Grady Mariam Noorulhuda Ben Krohmal Henry Silverman Lee Schwab Hae Lin Cho Melissa Goldstein Paul Wakim Source Type: research
Perceptions of Psychosocial and Ethical Issues and the Psychological Characteristics of Donors in the Clinical Setting of Living Kidney Donors: A Qualitative Study
CONCLUSION: Donors felt that they took on the "role as a care giver" for the recipient and were less aware of themselves as patients. This is a new concept that has not been shown in previous studies. Donors exist within the recipient and family, and the range of their autonomy may go beyond the traditional concept of autonomy and be rooted in relational autonomy. This study suggested that medical treatment in the presence of the recipient promotes the relational autonomy of the donor.PMID:37417911 | DOI:10.1080/23294515.2023.2232776 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Nana Arai Naoki Yokoyama Mayumi Hara Yoshiyuki Takimoto Source Type: research
Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care
AJOB Empir Bioeth. 2023 Jul 7:1-9. doi: 10.1080/23294515.2023.2224588. Online ahead of print.ABSTRACTPatients and family members (N = 671) were surveyed in five Mid-Atlantic U.S. hospitals to ascertain the number and kinds of ethical concerns they are presently experiencing or have previously experienced while being sick or receiving medical care. Seventy percent of participants had at least one (range 0-14) type of ethical concern or question. The most commonly experienced concerns pertained to being unsure how to plan ahead or complete an advance directive (29.4%), being unsure whether someone in the family was able to m...
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Marion Danis Christine Grady Mariam Noorulhuda Ben Krohmal Henry Silverman Lee Schwab Hae Lin Cho Melissa Goldstein Paul Wakim Source Type: research
Perceptions of Psychosocial and Ethical Issues and the Psychological Characteristics of Donors in the Clinical Setting of Living Kidney Donors: A Qualitative Study
CONCLUSION: Donors felt that they took on the "role as a care giver" for the recipient and were less aware of themselves as patients. This is a new concept that has not been shown in previous studies. Donors exist within the recipient and family, and the range of their autonomy may go beyond the traditional concept of autonomy and be rooted in relational autonomy. This study suggested that medical treatment in the presence of the recipient promotes the relational autonomy of the donor.PMID:37417911 | DOI:10.1080/23294515.2023.2232776 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Nana Arai Naoki Yokoyama Mayumi Hara Yoshiyuki Takimoto Source Type: research
Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care
AJOB Empir Bioeth. 2023 Jul 7:1-9. doi: 10.1080/23294515.2023.2224588. Online ahead of print.ABSTRACTPatients and family members (N = 671) were surveyed in five Mid-Atlantic U.S. hospitals to ascertain the number and kinds of ethical concerns they are presently experiencing or have previously experienced while being sick or receiving medical care. Seventy percent of participants had at least one (range 0-14) type of ethical concern or question. The most commonly experienced concerns pertained to being unsure how to plan ahead or complete an advance directive (29.4%), being unsure whether someone in the family was able to m...
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Marion Danis Christine Grady Mariam Noorulhuda Ben Krohmal Henry Silverman Lee Schwab Hae Lin Cho Melissa Goldstein Paul Wakim Source Type: research
Perceptions of Psychosocial and Ethical Issues and the Psychological Characteristics of Donors in the Clinical Setting of Living Kidney Donors: A Qualitative Study
CONCLUSION: Donors felt that they took on the "role as a care giver" for the recipient and were less aware of themselves as patients. This is a new concept that has not been shown in previous studies. Donors exist within the recipient and family, and the range of their autonomy may go beyond the traditional concept of autonomy and be rooted in relational autonomy. This study suggested that medical treatment in the presence of the recipient promotes the relational autonomy of the donor.PMID:37417911 | DOI:10.1080/23294515.2023.2232776 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 7, 2023 Category: Medical Ethics Authors: Nana Arai Naoki Yokoyama Mayumi Hara Yoshiyuki Takimoto Source Type: research
