Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers
CONCLUSIONS: Conceptualizations of diversity and inclusion among PM researchers and investigators raise unique ethical questions where unexamined assumptions of the value of ROR inform study recruitment efforts to enroll minoritized and under-represented populations. A lack of consideration for resources and infrastructure necessary to translate ROR into actionable information may hinder trustworthy community-research relationships. Thus, we argue for a more intentional interrogation of ROR practices as an offer of benefit and for whom.PMID:37962912 | DOI:10.1080/23294515.2023.2279965 (Source: AJOB Primary Research)
Source: AJOB Primary Research - November 14, 2023 Category: Medical Ethics Authors: Caitlin E McMahon Nicole Foti Melanie Jeske William R Britton Stephanie M Fullerton Janet K Shim Sandra Soo-Jin Lee Source Type: research
Clinician Perspectives on Opioid Treatment Agreements: A Qualitative Analysis of Focus Groups
CONCLUSION: This study reveals a complicated relationship between OTAs and access to pain management. While OTAs seem not to impact the clinicians' decisions about whether to use LTOT generally, they do sometimes influence prescribing decisions for individual patients. Clinicians shared complex views about OTAs' purposes, which shows the need for more clarity about how OTAs could be used to promote shared decision-making, joint accountability, informed consent, and patient education.PMID:37962913 | DOI:10.1080/23294515.2023.2274606 (Source: AJOB Primary Research)
Source: AJOB Primary Research - November 14, 2023 Category: Medical Ethics Authors: Nathan Richards Martin Fried Larisa Svirsky Nicole Thomas Patricia J Zettler Dana Howard Source Type: research
Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers
CONCLUSIONS: Conceptualizations of diversity and inclusion among PM researchers and investigators raise unique ethical questions where unexamined assumptions of the value of ROR inform study recruitment efforts to enroll minoritized and under-represented populations. A lack of consideration for resources and infrastructure necessary to translate ROR into actionable information may hinder trustworthy community-research relationships. Thus, we argue for a more intentional interrogation of ROR practices as an offer of benefit and for whom.PMID:37962912 | DOI:10.1080/23294515.2023.2279965 (Source: AJOB Primary Research)
Source: AJOB Primary Research - November 14, 2023 Category: Medical Ethics Authors: Caitlin E McMahon Nicole Foti Melanie Jeske William R Britton Stephanie M Fullerton Janet K Shim Sandra Soo-Jin Lee Source Type: research
Clinician Perspectives on Opioid Treatment Agreements: A Qualitative Analysis of Focus Groups
CONCLUSION: This study reveals a complicated relationship between OTAs and access to pain management. While OTAs seem not to impact the clinicians' decisions about whether to use LTOT generally, they do sometimes influence prescribing decisions for individual patients. Clinicians shared complex views about OTAs' purposes, which shows the need for more clarity about how OTAs could be used to promote shared decision-making, joint accountability, informed consent, and patient education.PMID:37962913 | DOI:10.1080/23294515.2023.2274606 (Source: AJOB Primary Research)
Source: AJOB Primary Research - November 14, 2023 Category: Medical Ethics Authors: Nathan Richards Martin Fried Larisa Svirsky Nicole Thomas Patricia J Zettler Dana Howard Source Type: research
Informed Consent among Clinical Trial Participants with Different Cancer Diagnoses
CONCLUSIONS AND RELEVANCE: Cancer patients rely less on written features of the informed consent process than on information obtained from the research staff and their own physicians. Research should focus on information and communication strategies that support informed consent from referring physicians, researchers, and others to improve patient risk-benefit assessment and decision-making.PMID:37921867 | DOI:10.1080/23294515.2023.2262992 (Source: AJOB Primary Research)
Source: AJOB Primary Research - November 3, 2023 Category: Medical Ethics Authors: Connie M Ulrich Sarah J Ratcliffe Camille J Hochheimer Qiuping Zhou Liming Huang Thomas Gordon Kathleen Knafl Therese Richmond Marilyn M Schapira Victoria Miller Jun J Mao Mary Naylor Christine Grady Source Type: research
Multi-Level Ethical Considerations of Artificial Intelligence Health Monitoring for People Living with Parkinson's Disease
AJOB Empir Bioeth. 2023 Oct 27:1-14. doi: 10.1080/23294515.2023.2274582. Online ahead of print.ABSTRACTArtificial intelligence (AI) has garnered tremendous attention in health care, and many hope that AI can enhance our health system's ability to care for people with chronic and degenerative conditions, including Parkinson's Disease (PD). This paper reports the themes and lessons derived from a qualitative study with people living with PD, family caregivers, and health care providers regarding the ethical dimensions of using AI to monitor, assess, and predict PD symptoms and progression. Thematic analysis identified ethica...
Source: AJOB Primary Research - October 27, 2023 Category: Medical Ethics Authors: Anita Ho Itai Bavli Ravneet Mahal Martin J McKeown Source Type: research
Should HIV Vaccines Be Made Available at No or Subsidized Cost? A Qualitative Inquiry of HIV Vaccine Trial Stakeholders in Tanzania
CONCLUSION: Stakeholders engaging in active discussion about sharing the viable vaccine ought to take the aforementioned concerns into account and ensure unhindered access to individuals and host communities in Tanzania and beyond.PMID:37889211 | DOI:10.1080/23294515.2023.2274599 (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 27, 2023 Category: Medical Ethics Authors: Godwin Pancras Mangi Ezekiel Erasto Mbugi Jon F Merz Source Type: research
Multi-Level Ethical Considerations of Artificial Intelligence Health Monitoring for People Living with Parkinson's Disease
AJOB Empir Bioeth. 2023 Oct 27:1-14. doi: 10.1080/23294515.2023.2274582. Online ahead of print.ABSTRACTArtificial intelligence (AI) has garnered tremendous attention in health care, and many hope that AI can enhance our health system's ability to care for people with chronic and degenerative conditions, including Parkinson's Disease (PD). This paper reports the themes and lessons derived from a qualitative study with people living with PD, family caregivers, and health care providers regarding the ethical dimensions of using AI to monitor, assess, and predict PD symptoms and progression. Thematic analysis identified ethica...
Source: AJOB Primary Research - October 27, 2023 Category: Medical Ethics Authors: Anita Ho Itai Bavli Ravneet Mahal Martin J McKeown Source Type: research
