Frequency of Perceived Conflict between Families and Clinicians at Time of Clinical Ethics Consultation in Hospitalized Children
CONCLUSIONS: Conflict between healthcare teams and families appears common in CEC, particularly with certain consult topics. Further study is needed to better understand conflict types, causes of conflicts, management and mediation strategies, and outcomes.PMID:37754199 | DOI:10.1080/23294515.2023.2262958 (Source: AJOB Primary Research)
Source: AJOB Primary Research - September 27, 2023 Category: Medical Ethics Authors: Aleksandra E Olszewski Chuan Zhou Jiana Ugale Jessica Ramos Arika Patneaude Douglas J Opel Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: "We Want to Have Our Cake and Eat It Too"?
CONCLUSION: The dynamics within the Swiss AS regime, as reflected in the varying views of Swiss AS experts, shed light on the dilemmas inherent to medical scope and involvement in AS, which may have implications for debates in other jurisdictions.PMID:37487185 | DOI:10.1080/23294515.2023.2232796 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Christina Nyquist Raphael Cohen-Almagor Scott Y H Kim Source Type: research
Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
CONCLUSIONS: In this exploratory study, adolescents and parents enrolled in a genomic research repository shared many attitudes about genomic data sharing, but adolescents were less concerned about privacy and more agreeable toward open-access data sharing. Future research is needed to investigate this hypothesis in expanded populations and settings, and to clarify whether adolescent attitudes change with age and experiences.PMID:37487180 | DOI:10.1080/23294515.2023.2232780 (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 24, 2023 Category: Medical Ethics Authors: Courtney Berrios Shelby Neal Tricia Zion Tomi Pastinen Source Type: research
