"I Want to Do It, But I Want to Make Sure That I Do It Right." Views of Patients with Parkinson's Disease Regarding Early Stem Cell Clinical Trial Participation.
Conclusions: Participants expressed skepticism about the immediate impact of stem cell research. Nonetheless, such skepticism often reflected an appropriate consideration of the risks and potential benefits of participating in high-risk clinical trials. Despite their skepticism, participants were eager to learn more about stem cell research and clinical trials processes. They identified consistently trusted avenues of knowledge on these topics, but they often found it difficult to access relevant information or to determine its value. PMID: 32516056 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - June 11, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

"We're Not Ready, But I Don't Think You're Ever Ready." Clinician Perspectives on Implementation of Crisis Standards of Care.
Conclusion: Clinicians' discomfort with shifting roles and obligations could pose implementation barriers for crisis standards of care. PMID: 32369433 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - May 7, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Research Use of Electronic Health Records: Patients' Views on Alternative Approaches to Permission.
Conclusions: Our findings help to inform the development and implementation of ethical approaches to the research use of EHRs by identifying key patient considerations regarding various approaches to permission and suggesting potential actions for healthcare organizations and researchers. PMID: 32338567 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - April 28, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

When Do Pediatricians Call the Ethics Consultation Service? Impact of Clinical Experience and Formal Ethics Training.
Conclusions: These results inform ongoing discussions about ethics consultation among pediatricians and the role of formal ethics training in both undergraduate and graduate medical education. PMID: 32207383 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - March 26, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Informed Consent in Two Alzheimer's Disease Research Centers: Insights From Research Coordinators.
Conclusion: A qualitative analysis of interviews with study coordinators reveals opportunities to improve how we obtain IC in AD research. These insights will be used to create an electronic informed consent (eConsent) designed to boost engagement, enhance trust, and improve understanding by supporting participants' direct agency in the IC process. PMID: 32175821 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - March 18, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

First Do No Harm: Ethical Concerns of Health Researchers That Discourage the Sharing of Results With Research Participants.
Conclusions: This is the first study to broadly explore researchers' ethical concerns with sharing aggregate research results with participants and reveals that researchers' ethical concerns are closely tied to the ethical obligation to do no harm. In order to increase results sharing, steps must be taken to help researchers understand how to minimize potential harm when sharing results. PMID: 32163009 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - March 13, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Incorporating Ethically Relevant Empirical Data From Systematic Review of Reasons: A Case Study of Sudden Unexpected Death in Epilepsy.
In this report we use a case study of risk of sudden unexpected death in epilepsy (SUDEP) to illustrate the contribution of systematic literature reviews of disease-specific ethical issues (DSEI). In particular, we show how ethically-relevant empirical data from such reviews can be used in the examination of the reasons for and against a particular normative approach to our DSEI. That is, we have attempted to offer a normative recommendation in response to the question of whether or not the risk of SUDEP should be disclosed to all patients. This case study functions as a form of empirical bioethics by providing a means of ...
Source: AJOB Primary Research - March 12, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Beyond Binaries: Dissolving the Empirical/Normative Divide.
Authors: Chan S, Cunningham-Burley S, de Togni G, Erikainen S, Sethi N, Takashima K PMID: 32096722 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Editorial.
Authors: Taylor HA PMID: 32096723 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

When Moral Intuitions and Empirical Findings Collide: A Case for Revisiting Protectionist Tendencies in Bioethics.
Authors: Pacyna JE, Sharp RR PMID: 32096724 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

The False Dichotomy Between Empirical and Normative Bioethics.
Authors: Racine E, Cascio MA PMID: 32096725 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Incommensurable Processes of Reasoning and Implications for Empirical and Normative Bioethics.
Authors: Bærøe K PMID: 32096726 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

The Ought and is of Conscience: The Value of Empirical Bioethics for Reframing Normative Analysis.
Authors: Buchbinder M, De Vries R PMID: 32096727 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Experimental Philosophical Bioethics.
Authors: Earp BD, Demaree-Cotton J, Dunn M, Dranseika V, Everett JAC, Feltz A, Geller G, Hannikainen IR, Jansen LA, Knobe J, Kolak J, Latham S, Lerner A, May J, Mercurio M, Mihailov E, Rodríguez-Arias D, Rodríguez López B, Savulescu J, Sheehan M, Strohminger N, Sugarman J, Tabb K, Tobia K PMID: 32096728 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

AI Methods in Bioethics.
Authors: Skorburg JA, Sinnott-Armstrong W, Conitzer V PMID: 32096729 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Overcoming Biases Together: Normative Stakes of Interdisciplinarity in Bioethics.
Authors: Dupras C, Hagan J, Joly Y PMID: 32096730 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Keeping Bioethics Concrete: How Social Scientific Research Generates Values.
Authors: Clapp JT PMID: 32096731 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

The Empirical and the Philosophical in Empirical Bioethics: Time for a Conceptual Turn.
Authors: Zeiler K, De Boer M PMID: 32096732 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Interdisciplinary Collaborative Auditing as a Method to Facilitate Teamwork/Teams in Empirical Ethics Projects.
Authors: Provoost V PMID: 32096733 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

From x-phi to bioxphi: Lessons in Conceptual Analysis 2.0.
Authors: Lewis J PMID: 32096734 [PubMed - in process] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 27, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Is Real-Time ELSI Realistic?
Conclusions: We conclude that there are significant barriers to real-time ELSI influence. The difficulty does not reside in any intended exclusion of an ELSI perspective, but in factors endemic to genomic research, including knowledge disparities, epistemological biases, and the pressures of time and money. PMID: 32040382 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 11, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Ethics Review in Anti-Doping Research: Experiences of Stakeholders.
Conclusions. Disapproval of research proposals may originate from concerns over the safety of the study, the fact that there is seldom a direct benefit to the participant, the consideration that volunteers may be incentivized to use prohibited substances, a lack of background knowledge about anti-doping, or the focus of research ethics committees on health research. PMID: 32040393 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - February 11, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.
Conclusions: PGT consumers can critically reason about testing. However, they may uncritically accept test results, may not appreciate drawbacks of increased choice, or may overestimate the potential for information to motivate behavioral change. While consumers appear to be capable of substantive autonomy, they do so without ongoing support from companies. PGT companies promote a problematic ("default") account of autonomy, reliant on empowerment rhetoric. This leaves consumers vulnerable to making decisions inconsistent with their higher-order desires. As PGT expands, claims about its power and value need to be...
Source: AJOB Primary Research - January 1, 2020 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Clinicians' Perspectives on the Duty to Inform Patients About Medical Aid-in-Dying.
Conclusions: While initiating a clinical discussion of AID is undoubtedly challenging, our study provides compelling descriptive evidence that some medical providers who support AID do not unilaterally follow the conventional bioethics wisdom holding that they ought to wait for patients to introduce the topic of AID. Future research should investigate how to approach these discussions so as to minimize ethical worries about undue influence or potential negative consequences. PMID: 31829903 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - December 13, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

The Impact of Physician Social Media Behavior on Patient Trust.
Conclusions: We conclude that physicians' social media behavior may affect patient trust. Better understanding of how physicians' online presence impacts their relationships with patients can help guide policy and inform educational efforts. PMID: 31663810 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 31, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Patient's Perspectives of Experimental HCV-Positive to HCV-Negative Renal Transplantation: Report from a Single Site.
Conclusions: Recipients of experimental HCV D+/R- transplants generally seemed to recognize the risks and benefits of these novel transplants and did not regret participating. Such salutary reported experiences are important in assessing the appropriateness of further research into the feasibility of HCV D+/R- transplants. PMID: 31618112 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 17, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Operational Characteristics of Institutional Review Boards (IRBs) in the United States.
Conclusion: These results are the first step toward establishing national norms and building a working model of US IRBs to which other IRBs can compare themselves. PMID: 31618119 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 17, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Breaking a Vital Trust: Posting Photos of Patients on Facebook Among a Sample of Peruvian Medical Students.
Conclusion: One out of three of medical students posted patients' private information on their personal Facebook profiles. Development, dissemination, and implementation of guidelines related to ethics in social media platforms are needed. PMID: 31618142 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 17, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

A Content Analysis of Patient Advocacy Organization Policies Addressing Institutional Conflicts of Interest.
Conclusion: Nearly half of the organizations studied did not have publicly available conflict of interest policies. Among those that did, few policies had a substantial level of detail or limitations to guard against conflicts of interest. PMID: 31593523 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 10, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Media Coverage of Ethical Issues in Predictive Genetic Testing: A Qualitative Analysis.
Conclusions: Ethical issues concern potential test users and society more than scientific background knowledge about such tests; therefore, more efforts should be taken to address these complex issues in a manner that is comprehensible for the lay public. PMID: 31596686 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 10, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Ethical Awareness Scale: Replication Testing, Invariance Analysis, and Implications.
Conclusions: This study demonstrates that the EAS is a psychometrically sound and meaningful measure of EA in critical care nurses with item difficulty estimates that are invariant across samples. A raw score on the EAS can be practically interpreted, given the theoretical description of what a nurse at each level of the scale's continuum may "look" like in terms of EA using the diagnostic interpretation table. These findings have implications for nursing education and practice. PMID: 31580779 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - October 4, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Return of Value in the New Era of Biomedical Research-One Size Will Not Fit All.
Conclusions: Our findings suggest that the key to operationalizing return of value and to identifying ways to return valuable information to study participants may be to find a point of equilibrium between criteria that may affect usefulness and feasibility. The point of equilibrium may vary by study, by participants' backgrounds and preferences, by their health literacy and access to regular healthcare, and by the resources available to professionals controlling the data. Future studies should explore the factors that determine the point of equilibrium between feasibility and usefulness. PMID: 31580791 [PubMed - as su...
Source: AJOB Primary Research - October 4, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Examining Physician Interactions with Disease Advocacy Organizations.
Authors: Horrow C, Pacyna JE, Cosenza C, Sharp RR Abstract Disease advocacy organizations (DAOs) have traditionally focused on raising awareness of rare diseases, providing educational resources to patients, and supporting patients and families. Previous research has described how scientists collaborate with DAOs, but few empirical data are available regarding the extent to which physicians interact with DAOs and how those interactions impact patient care. We conducted a national survey of 230 board-certified pediatric neurologists to assess their engagement with DAOs and their beliefs about the impact of DAOs on p...
Source: AJOB Primary Research - August 28, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.
Conclusion: We found very limited support for shared decision making as the primary process for decision making about research participation. While consultation was considered important to support individual decision making, particularly when parents were perceived as vulnerable, there was no suggestion in our data that shared decision making would be a more important or valuable means of seeking consent for research participation in the African research context. PMID: 31379268 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - August 7, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Ethical Leadership and Employees' Perceptions About Raising Ethical Concerns to Managers in the Veterans Health Administration.
Conclusion: Speaking up about ethical concerns is essential to the delivery of high-quality patient care and is enabled by managers who embody ethical leadership practices. Ethics programs can help create favorable conditions for raising ethical concerns by providing managers and supervisors with ethical leadership coaching, recognizing power differentials, and modeling more egalitarian communication practices. More research is needed to understand how employees conceptualize ethics voice and to assess the comparative effectiveness of different methods of encouraging speaking up about ethical concerns in health care organi...
Source: AJOB Primary Research - July 19, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

What Is the Minimal Competency for a Clinical Ethics Consult Simulation? Setting a Standard for Use of the Assessing Clinical Ethics Skills (ACES) Tool.
Conclusions: The cut score for the ACES tool identifies the number of correct responses a user of the ACES tool training website must attain to "pass" and reach minimal competency in recognizing competent and incompetent skills of the CECs in the simulated ethics consultation videos. The application of the cut score to live training of CECs and other areas of practice requires further investigation. PMID: 31295060 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - July 14, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Cancer Clinical Trial Patient-Participants' Perceptions about Provider Communication and Dropout Intentions.
Conclusions: Relational communication with research doctors and nurses was significantly related to thoughts about remaining enrolled or dropping out of a clinical trial among adult participants in cancer treatment clinical trials. Practice Implications: Relational communication with cancer patients advances retention in research. PMID: 31180295 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - June 12, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Trust and Expectations of Researchers and Public Health Departments for the Use of HIV Molecular Epidemiology.
CONCLUSIONS: To prevent HIV ME from becoming a barrier to testing or a source of public mistrust, the sense of vulnerability expressed by some respondents must be addressed. In research, informed consent is an obvious opportunity for this. Without giving specimen donors a similar opportunity to opt out, public health agencies may find it difficult to adopt HIV ME without deterring testing and treatment. PMID: 31050604 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - May 8, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Addiction, Identity, Morality.
CONCLUSIONS: In Study 1, we found that U.S. participants judged an agent who became addicted to drugs as being closer to "a completely different person" than "completely the same person" as the agent who existed prior to the addiction. In Studies 2-6, we investigated the intuitive basis for this result, finding that lay judgments of altered identity as a consequence of drug use and addiction are driven primarily by perceived negative changes in the moral character of drug users, who are seen as having deviated from their good true selves. PMID: 31012802 [PubMed - as supplied by publisher] (Source: A...
Source: AJOB Primary Research - April 25, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Bedside Rationing Under Resource Constraints-A National Survey of Ethiopian Physicians' Use of Criteria for Priority Setting.
Authors: Defaye FB, Danis M, Wakim P, Berhane Y, Norheim OF, Miljeteig I Abstract In low-income settings resource constraints force clinicians to make harsh choices. We examine the criteria Ethiopian physicians use in their bedside rationing decisions through a national survey at 49 public hospitals in Ethiopia. Substantial variation in weight given to different criteria were reported by the 587 participating physicians (response rate 91.7%). Young age, primary prevention, or the patient being the family's economic provider increased likelihood of offering treatment to a patient, while small expected benefit or low...
Source: AJOB Primary Research - April 21, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Older Teens' Understanding and Perceptions of Risks in Studies With Genetic Testing: A Pilot Study.
CONCLUSION: Results of this pilot study provide preliminary evidence that teens can identify and characterize key issues in the informed consent/assent process when it comes to the risks of research participation. These findings are consistent with other research regarding teens' perceptions and recommendations for genetic testing research. PMID: 31002290 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - April 21, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Preventive Misconception and Risk Behaviors in a Multinational HIV Prevention Trial.
CONCLUSIONS: A majority of trial participants expressed some belief that their risk of HIV infection would be reduced by using a vaginal ring, which may signal PM. However, such beliefs were not associated with adherence, condom use, or subsequent HIV infection, and there was variability across sites. Further work is needed to understand these findings. PMID: 31002583 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - April 21, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Enhancing Understanding of Moral Distress: The Measure of Moral Distress for Health Care Professionals.
This article describes the development and testing of a revision of the widely used Moral Distress Scale-Revised (MDS-R) to measure moral distress. METHODS: We revised the MDS-R by evaluating the combined data from 22 previous studies, assessing 301 write-in items and 209 root causes identified through moral distress consultation, and reviewing 14 recent publications from various professions in which root causes were described. The revised 27-item scale, the Measure of Moral Distress for Healthcare Professionals (MMD-HP), is usable by all HCPs in adult and pediatric critical, acute, or long-term acute care settings. We...
Source: AJOB Primary Research - April 21, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Broadening the Debate About Post-trial Access to Medical Interventions: A Qualitative Study of Participant Experiences at the End of a Trial Investigating a Medical Device to Support Type 1 Diabetes Self-Management.
Authors: Lawton J, Blackburn M, Rankin D, Werner C, Farrington C, Hovorka R, Hallowell N Abstract Increasing ethical attention and debate is focusing on whether individuals who take part in clinical trials should be given access to post-trial care. However, the main focus of this debate has been upon drug trials undertaken in low-income settings. To broaden this debate, we report findings from interviews with individuals (n = 24) who participated in a clinical trial of a closed-loop system, which is a medical device under development for people with type 1 diabetes that automatically adjusts blood glu...
Source: AJOB Primary Research - April 16, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Single-Patient Expanded Access Requests: IRB Professionals' Experiences and Perspectives.
CONCLUSIONS: A large majority of IRB professionals affiliated with the SMART IRB platform who responded to this survey felt IRB review of single-patient EA requests is important and that their IRBs were prepared to handle such requests. PMID: 30964737 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - April 11, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Developing clinical ethics support for an Australian Health Service: A survey of clinician's experiences and views.
CONCLUSIONS: A majority of clinical staff members surveyed have encountered ethically/legally challenging cases daily for which they have often sought additional advice. This study indicates that many clinical staff members would welcome some form of additional clinical ethics support including advice and education. PMID: 30908109 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - March 27, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Impartiality and infectious disease: Prioritizing individuals versus the collective in antibiotic prescription.
CONCLUSIONS: Participants' attitudes were more oriented to society and sensitive to collective responsibility when informed about the social costs of antibiotic use and when considered from a third-person rather than first-person perspective. That is, as participants came closer to taking the perspective of an informed and impartial "ideal observer," their support for prioritizing society increased. Our findings suggest that, insofar as antibiotic policies and practices should be informed by attitudes that are impartial and well-informed, there is significant support for prioritizing society. PMID: 30908114 [...
Source: AJOB Primary Research - March 27, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Framing the diagnosis and treatment of absolute uterine factor infertility: Insights from in-depth interviews with uterus transplant trial participants.
CONCLUSIONS: The ways in which women with AUFI conceptualize this condition in their lives and choices around UTx and participating in a study of the procedure are multifaceted and textured. These perspectives are critical to understanding its ethical, legal, and social implications. PMID: 30855220 [PubMed - as supplied by publisher] (Source: AJOB Primary Research)
Source: AJOB Primary Research - March 13, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Values, Quality, and Evaluation in Ethics Consultation.
Conclusions: Ethics consultation can help clinicians clarify their own values and helps them clarify the values of patients and patients' families. Ethics consultation offers meaningful support when clinicians face ethically challenging cases, provides an opportunity to address moral distress, and is viewed favorably by those who experience the resource. PMID: 30854408 [PubMed] (Source: AJOB Primary Research)
Source: AJOB Primary Research - March 13, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research

Moral distress in medical student reflective writing.
Authors: Camp M, Sadler J Abstract PURPOSE: Moral distress occurs when one identifies an ethically appropriate course of action but cannot carry it out. In this conceptualization, medical students may be particularly vulnerable to moral distress, but the literature on moral distress in medical trainees remains sparse. METHOD: Using content analysis of 802 reflective essays written by third-year medical students, the authors analyzed for the presence of moral distress and other ethical themes. The authors then used chi-squared analysis to determine which ethical themes were statistically associated with moral di...
Source: AJOB Primary Research - February 24, 2019 Category: Medical Ethics Tags: AJOB Empir Bioeth Source Type: research