Self-advocacy and self-determination of autistic students: a review of the literature
Advances in Autism, Ahead of Print. Purpose The purpose of this paper is to examine current research on self-advocacy and self-determination of autistic students in order to provide an overview of the research and to critically evaluate researcher ’s methods of inclusivity of autistic people. Additionally, this paper will critically analyse the discourse of the current research to assess the extent of deficit, stigma and pathology discourse. Design/methodology/approach Research will be selected from a list of criteria which is to seek res earch that is inclusive of autistic people. The research will be analysed using e...
Source: Advances in Autism - February 20, 2019 Category: Child Development Source Type: research

The PAAFID project: exploring the perspectives of autism in adult females among intellectual disability healthcare professionals
Advances in Autism, Ahead of Print. Purpose The purpose of this paper is to explore the perspectives of healthcare professionals on autism in adult females with intellectual disability (ID), including regarding the gender ratio of autism, the clinical manifestation of autism in females, and the recognition, screening and diagnosis of autism. Design/methodology/approach The questionnaire was developed following a review of the relevant literature and distributed to professionals within three healthcare trusts as well as members of two clinical research groups. The questionnaire was completed by 80 ID healthcare profession...
Source: Advances in Autism - February 20, 2019 Category: Child Development Source Type: research

Circumscribed interests in autism: are there sex differences?
Advances in Autism, Ahead of Print. Purpose Sex differences in circumscribed interests (CI) may delay diagnosis for females with autism spectrum disorder (ASD); therefore, it is important to characterize sex differences in CI to determine if differential approaches to diagnostic assessment are warranted for females with ASD. The purpose of this paper is to examine sex differences in parent-reported quantity, content and functional impairment of children ’s interests. Design/methodology/approach Parent responses to the Interests Scale were analyzed using descriptive statistics and ANOVAs to determine diagnostic (ASD vs ...
Source: Advances in Autism - February 20, 2019 Category: Child Development Source Type: research

Conversation skills training for people with autism through virtual reality: using responsible research and innovation approach
Advances in Autism, Ahead of Print. Purpose Users ’ role in co-designing products has changed: from influencing outcomes to influencing development/design; from standardizing to customising products/outcomes; from participating to engaging designers/developers. Although this participatory design (PD) approach makes users’ role more prominent it has been under-utilised for the technological development of products for people with neurodevelopmental disabilities (NDD). The purpose of this paper is to present a responsible research and innovation example, in conversation skills training for people with autism, using virt...
Source: Advances in Autism - February 20, 2019 Category: Child Development Source Type: research

Self-advocacy and self-determination of autistic students: a review of the literature
Advances in Autism, Ahead of Print. Purpose The purpose of this paper is to examine current research on self-advocacy and self-determination of autistic students in order to provide an overview of the research and to critically evaluate researcher ’s methods of inclusivity of autistic people. Additionally, this paper will critically analyse the discourse of the current research to assess the extent of deficit, stigma and pathology discourse. Design/methodology/approach Research will be selected from a list of criteria which is to seek res earch that is inclusive of autistic people. The research will be analysed using e...
Source: Advances in Autism - February 20, 2019 Category: Child Development Source Type: research

Age at death and comorbidity of dementia-related disorders among individuals with autism spectrum disorder
Advances in Autism, Ahead of Print. Purpose Autism spectrum disorder (ASD) is a lifelong disorder that requires intervention and support services for a growing geriatric population. The purpose of this paper is to examine the mean age at death of individuals with ASD and subsequent comorbidity with Alzheimer ’s disease, and any form of dementia, as a whole and according to sex. Design/methodology/approach Data consisted of 1,754 individuals who had an ASD listed as one of the causes of deaths from the National Vital Statistics System with data from 1999 to 2015. In the current study, the authors pre sent contradictory ...
Source: Advances in Autism - February 14, 2019 Category: Child Development Source Type: research

Characters with autism spectrum disorder in fiction: where are the women and girls?
Advances in Autism, Ahead of Print. Purpose Fiction has the potential to dispel myths and helps improve public understanding and knowledge of the experiences of under-represented groups. Representing the diversity of the population allows individuals to feel included, connected with and understood by society. Whether women and girls with autism spectrum disorder (ASD) are adequately and accurately represented in fictional media is currently unknown. The paper aims to discuss this issue. Design/methodology/approach Internet and library searches were conducted to identify female characters with ASD in works of fiction. Exa...
Source: Advances in Autism - February 14, 2019 Category: Child Development Source Type: research

Age at death and comorbidity of dementia-related disorders among individuals with autism spectrum disorder
Advances in Autism, Ahead of Print. Purpose Autism spectrum disorder (ASD) is a lifelong disorder that requires intervention and support services for a growing geriatric population. The purpose of this paper is to examine the mean age at death of individuals with ASD and subsequent comorbidity with Alzheimer ’s disease, and any form of dementia, as a whole and according to sex. Design/methodology/approach Data consisted of 1,754 individuals who had an ASD listed as one of the causes of deaths from the National Vital Statistics System with data from 1999 to 2015. In the current study, the authors pre sent contradictory ...
Source: Advances in Autism - February 14, 2019 Category: Child Development Source Type: research

Characters with autism spectrum disorder in fiction: where are the women and girls?
Advances in Autism, Ahead of Print. Purpose Fiction has the potential to dispel myths and helps improve public understanding and knowledge of the experiences of under-represented groups. Representing the diversity of the population allows individuals to feel included, connected with and understood by society. Whether women and girls with autism spectrum disorder (ASD) are adequately and accurately represented in fictional media is currently unknown. The paper aims to discuss this issue. Design/methodology/approach Internet and library searches were conducted to identify female characters with ASD in works of fiction. Exa...
Source: Advances in Autism - February 14, 2019 Category: Child Development Source Type: research

Participatory autism research with students at a UK university: evidence from a small-scale empirical project
Advances in Autism, Ahead of Print. Purpose The purpose of this paper is to address the benefits of a participatory approach to autism research, demonstrating the positive effects of giving autistic project assistants (PAs) the opportunity to design and undertake a project researching the experiences of autistic university students. Design/methodology/approach A participatory approach was implemented, engaging autistic university students as research assistants. All the research team except project co-ordinators were autistic. Undergraduate autistic students developed and conducted a set of semi-structured interviews, wi...
Source: Advances in Autism - January 8, 2019 Category: Child Development Source Type: research

Understanding and recognising the female phenotype of autism spectrum disorder and the “camouflage” hypothesis: a systematic PRISMA review
Advances in Autism, Ahead of Print. Purpose Females with autism spectrum disorder (ASD) may display superficial social skills which may mask their ASD symptomology impacting on the identification of the disorder – known as the “camouflage” hypothesis. Compared to males with ASD, it is increasingly recognised that females with ASD have a stronger ability to imitate behaviour which is socially acceptable, particularly those females who have higher cognitive abilities (i.e. intelligence considered to be within the normal range) (Ehlers and Gillberg, 1993). The paper aims to discuss this issue. Design/methodology/appro...
Source: Advances in Autism - December 31, 2018 Category: Child Development Source Type: research

Commentary on “diagnosis and treatment of ASD in women in secure and forensic hospital”
Advances in Autism, Ahead of Print. Purpose The purpose of this paper is to provide a commentary on “diagnosis and treatment of asd in women in secure and forensic hospital”. Design/methodology/approach The approach is a commentary on a personal experience of services. Findings Women with ASD are often not diagnosed until adult years which may impact on their long-term outcomes. Secure ser vices may not always have care teams who are appropriately trained to support a woman with ASD. Originality/value A commentary on an original viewpoint piece published in this special edition on women with autism spectrum disorde...
Source: Advances in Autism - November 22, 2018 Category: Child Development Source Type: research