An online ASD learning module for pediatric health care professionals
Advances in Autism,Volume 3, Issue 3, July 2017. Purpose Youth with autism spectrum disorder (ASD) often have co-occurring health care needs and are likely to come into contact with several health care professionals over their lives. At the hospital, youth with ASD may require specialized supports to optimize health care experiences and for medical services to be delivered safely. At present, there is a limited understanding of how to best support this patient population. The goal of this pilot project was to develop, implement, and evaluate an online training module for hospital staff about ASD. Design/methodology/appro...
Source: Advances in Autism - May 26, 2017 Category: Child Development Source Type: research
Systemic-attachment formulation for families of children with autism
Advances in Autism,Volume 3, Issue 3, July 2017. Purpose Case formulation has gained increasing prominence as a guide to intervention across a range of clinical problems. It offers a contrasting orientation to diagnosis and its value is considered in the context of clinical work with Autistic Spectrum Disorders (ASD). The paper argues that case formulation integrating attachment, systemic and narrative perspectives offers a valuable way forward in assisting people with the diagnosis and their families. Design/methodology/approach The literature on ASD and related conditions is reviewed to examine levels of co-morbidity,...
Source: Advances in Autism - May 26, 2017 Category: Child Development Source Type: research
Transition tools and access to adult primary care
This study rated existing health care transition tools to identify tools ready for use in primary care clinics and develop a set of transition principles. Design/methodology/approach Four pediatric and family medicine providers from community health centers reviewed 12 transition tools and provided ratings and in-depth responses about the usefulness and feasibility of each tool through online surveys and telephone interviews. A conference call was used to discuss the findings and develop a set of transition principles. Findings The top rated tools included three youth self-management tools, two tools focused on ASD infor...
Source: Advances in Autism - May 26, 2017 Category: Child Development Source Type: research
Quality of health and health services in people with fragile X syndrome: perspective of their parents
Advances in Autism,Volume 3, Issue 3, July 2017. Purpose People with fragile X syndrome (FXS), a monogenetic disorder with frequent ASD symptoms, are confronted with many health-related needs, especially concerning behavioural and mental problems. The number of publications about health inequalities or the usage of health services in persons with fragile X syndrome is scarce in general. There is no information about the situation in Germany.
Design/methodology/approach Assessment of health statuse, access to, and satisfaction with healthcare in people with fragile X by a questionnaire handed tocompleted by their par...
Source: Advances in Autism - May 26, 2017 Category: Child Development Source Type: research
Autism and healthcare
Advances in Autism,Volume 3, Issue 3, July 2017. Purpose Many autistic people don ’t have any access to healthcare services or they experience significant barriers to navigating the healthcare system. This issue represents a significant concern in almost every healthcare setting, including specialized doctors and psychotherapists, outpatient medical care, access to preventive t reatments (e.g., information on health and hygiene, vaccinations and early diagnostic screenings) and treatments in hospitals for emergency medical care.
Therefore it is necessary to provide professionals with guidelines and knowledge a...
Source: Advances in Autism - May 26, 2017 Category: Child Development Source Type: research
Access to health care
Advances in Autism,Volume 3, Issue 3, July 2017. (Source: Advances in Autism)
Source: Advances in Autism - May 26, 2017 Category: Child Development Source Type: research
Fathers experiences of sleeping problems in children with autism
Advances in Autism,Volume 3, Issue 2, Page 100-111, April 2017. Purpose The purpose of this paper is to explore the role of fathers in the management of sleeping problems in children with autism and their perspectives of the impact of these difficulties on family life. Design/methodology/approach Semi-structured interviews with 25 UK-based fathers of children with autism were undertaken. Findings Two-thirds of fathers reported that their children experienced severe sleeping problems in the areas of bed-time resistance, sleep onset and night-time waking. Fathers were significantly involved in the management of these diff...
Source: Advances in Autism - March 20, 2017 Category: Child Development Source Type: research
Is “transforming care” failing people with autism?
Advances in Autism,Volume 3, Issue 2, Page 59-65, April 2017. Purpose The purpose of this paper is to comment on the development and implementation of transforming care (TC) and whether it has failed people with autism. Design/methodology/approach This paper is a commentary. Findings The number of people with autism being admitted to assessment and treatment units is increasing despite the aims of TC. The authors argue that TC, in serving such a diverse group of people, may have failed to identify the heterogeneity of such groups or recognise the different needs of people with mental illness and people with behaviours t...
Source: Advances in Autism - March 20, 2017 Category: Child Development Source Type: research
Fathers experiences of sleeping problems in children with autism
Advances in Autism,Volume 3, Issue 2, Page 100-111, April 2017. Purpose The purpose of this paper is to explore the role of fathers in the management of sleeping problems in children with autism and their perspectives of the impact of these difficulties on family life. Design/methodology/approach Semi-structured interviews with 25 UK-based fathers of children with autism were undertaken. Findings Two-thirds of fathers reported that their children experienced severe sleeping problems in the areas of bed-time resistance, sleep onset and night-time waking. Fathers were significantly involved in the management of these diff...
Source: Advances in Autism - March 19, 2017 Category: Child Development Source Type: research
Is “transforming care” failing people with autism?
Advances in Autism,Volume 3, Issue 2, Page 59-65, April 2017. Purpose The purpose of this paper is to comment on the development and implementation of transforming care (TC) and whether it has failed people with autism. Design/methodology/approach This paper is a commentary. Findings The number of people with autism being admitted to assessment and treatment units is increasing despite the aims of TC. The authors argue that TC, in serving such a diverse group of people, may have failed to identify the heterogeneity of such groups or recognise the different needs of people with mental illness and people with behaviours t...
Source: Advances in Autism - March 19, 2017 Category: Child Development Source Type: research
Father experiences of sleeping problems in children with autism
This study aimed to explore the role of fathers in the management of sleeping problems in children with autism and their perspectives of the impact of these on family life Design/methodology/approach Twenty five semi-structured interviews were undertaken with fathers of children with autism, resident in the UK Findings Two thirds of fathers reported that their children experienced severe sleeping problems in the areas of bed-time resistance, sleep onset and night-time waking. Fathers were significantly involved in the management of these difficulties and reported a range of associated deleterious impacts on the family, i...
Source: Advances in Autism - February 8, 2017 Category: Child Development Source Type: research
Parental perceptions on the transition to secondary school for their child with autism
This study sought to explore the transition to and early experience of secondary school for students with autism from the perspective of their parents. It aimed to gather the parents ’ personal accounts of their views of the transition experience for their child and of their perceptions of both the positive and the negative factors inherent in the process of transition. There was an emphasis on seeking useful information for others from the parent’s perception, views and cho ices. Design/methodology/approach As parents were reporting on their own perceptions and also their child’s experiences, a qualitative explorat...
Source: Advances in Autism - February 8, 2017 Category: Child Development Source Type: research
Skin conductance response patterns of face processing in children with Autism Spectrum Disorder
Advances in Autism,Volume 3, Issue 2, April 2017. Purpose The aim of this paper is to investigate the face processing responses of children with Autism Spectrum Disorder (ASD) using Skin Conductance Response (SCR) patterns and to compare it with Typically Developed (TD) children. Design/methodology/approach Two experiments have been designed to analyze the effect of face processing. In the first experiment, learned non-face (objects) versus unknown face stimuli have been shown and in the second experiment, familiar versus unfamiliar face stimuli have been shown to 10 ASD and 10 TD children and SCR patterns have been reco...
Source: Advances in Autism - February 8, 2017 Category: Child Development Source Type: research
Enhancing self-esteem in adults with autism spectrum disorders: a pilot cognitive behaviour therapy (CBT) group intervention
Advances in Autism,Volume 3, Issue 2, April 2017. Purpose Psycho-social risk factors and high rates of psychiatric co-morbidity render individuals with autism spectrum disorders (ASD) vulnerable to developing low self-esteem (LSE). CBT interventions are effective for enhancing self-esteem in typically-developing populations, but the degree to which they are clinically beneficial for individuals with ASD has been little explored. Design/methodology/approach A pilot group intervention was undertaken to investigate the effectiveness and acceptability of CBT for LSE in adults with ASD. Adaptations to standard protocols were ...
Source: Advances in Autism - February 8, 2017 Category: Child Development Source Type: research
Is 'transforming care' failing people with autism?
Advances in Autism,Volume 3, Issue 2, April 2017. Purpose The purpose of this paper is to comment on the development and implementation of Transforming Care and whether it has failed people with autism. Design/methodology/approach This paper is a commentary. Findings The number of people with autism being admitted to assessment and treatment units is increasing despite the aims of Transforming Care (TC). The authors argue that TC, in serving such a diverse group of people, may have failed to identify the heterogeneity of such groups or recognise the different needs of people with mental illness and people with behaviour...
Source: Advances in Autism - February 8, 2017 Category: Child Development Source Type: research
