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Good Samaritan raises funds for boy to have brain surgery
Khyng Maza, from the Philippines, was shunned by medics as his family can't afford help. He has hydrocephalus, which can cause permanent brain damage and death if left untreated. (Source: the Mail online | Health)
Source: the Mail online | Health - November 16, 2017 Category: Consumer Health News Source Type: news

7 medtech stories we missed this week: Oct. 27, 2017
[Image from unsplash.com]From RadiaDyne’s FDA expansion to NuVasive launching its new implants, here are seven medtech stories we missed this week but thought were still worth mentioning. 1. FDA expands indications for RadiaDyne’s OARtrac dose monitor RadiaDyne announced in an Oct. 24 press release that it has received additional FDA clearance for its upcoming OARtrac. The OARtrac allows physicians to routinely monitor brachytherapy radiation dose as well as being able to reuse the OARtrac Plastic Scintillating Detector sensor cable no more than five times on one patient. 2. FDA clears Ortek’s e...
Source: Mass Device - October 27, 2017 Category: Medical Devices Authors: Danielle Kirsh Tags: Catheters Dental Diagnostics Food & Drug Administration (FDA) Imaging Implants Neurological Research & Development Alcyone Lifesciences Implanet MedTech Nuvasive Ortek Therapeutics radiadyne Tau Consortium Varian Medical Syst Source Type: news

Alcyone Lifesciences Receives EU CE Mark Approval for Alivio Ventricular Catheter and Flusher System for Treatment of Hydrocephalus
LOWELL, Mass., Oct. 24, 2017 -- (Healthcare Sales & Marketing Network) -- Alcyone Lifesciences, Inc., a leader in advanced precision delivery for neurological conditions, and innovator in the treatment of hydrocephalus, announced receipt of CE (Conformit&... Devices, Neurosurgery, Regulatory Alcyone Lifesciences, Alivio Ventricular Catheter, Hydrocephalus (Source: HSMN NewsFeed)
Source: HSMN NewsFeed - October 24, 2017 Category: Pharmaceuticals Source Type: news

Namibia: Governor Appeals for Help for Hydrocephalus Sufferer
[Namibian] ZAMBEZI governor Lawrence Sampofu has appealed to the nation for financial assistance for 13-year-old hydrocephalus sufferer Lunza Muchindu to get medical attention. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - October 3, 2017 Category: African Health Source Type: news

What Clinical Signs Can Be Associated With Benign External Hydrocephalus?
Discussion Hydrocephalus is an abnormal accumulation of cerebrospinal fluid (CSF) in the ventricles and/or subarachnoid spaces. External hydrocephalus is a communicating hydrocephalus often defined as the patient having a rapidly enlarging head circumference (HC) and enlargement of the subarachnoid spaces especially over the frontal lobes with normal or moderately enlarged ventricles. Benign external hydrocephalus (BEH) is a self-limited external hydrocephalus that occurs during infancy and resolves spontaneously in childhood, usually by age 2 years, that is felt to not cause significant problems. It was first described by...
Source: PediatricEducation.org - October 2, 2017 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

Communicating hydrocephalus onset following a traumatic tension pneumocephalus - Lee JS, Ahn S, Eom KS.
The entrapment of intracranial air from the check valve system results in a tension pneumocephalus. It should be distinguished from simple pneumocephalus because they are intracranial space-occupying masses that can threaten life. Communicating hydrocephal... (Source: SafetyLit)
Source: SafetyLit - September 19, 2017 Category: International Medicine & Public Health Tags: Ergonomics, Human Factors, Anthropometrics, Physiology Source Type: news

New eShunt System Presented at the American Academy of Neurological Surgery Annual meeting in Santa Barbara, CA
Early in vivo testing results show promise in treating communicating hydrocephalus BOSTON, Sept. 15, 2017 -- (Healthcare Sales & Marketing Network) -- CereVasc, LLC, a company focused on improving the care of patients with communicating hydrocephalus a... Devices, Neurosurgery CereVasc , eShunt System, hydrocephalus (Source: HSMN NewsFeed)
Source: HSMN NewsFeed - September 15, 2017 Category: Pharmaceuticals Source Type: news

How whip-like cell appendages promote bodily fluid flow
(Nagoya University) Researchers at Nagoya University revealed that a molecule called Daple is essential for the correct orientation and coordinated beating of cilia on the surface of cells lining ventricles in the brain. Without Daple, the cilia develop a random arrangement and cannot produce a uniform flow of CSF. This in turn leads to a build-up of fluid, which is associated with swelling of the head, known as hydrocephalus. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - August 18, 2017 Category: International Medicine & Public Health Source Type: news

Spare the surgery: Drugs may combat hydrocephalus, Yale study finds
Clinically available drugs may help combat a potentially lethal form of hydrocephalus now treated mainly by brain surgery, a new Yale-led study has found. (Source: Yale Science and Health News)
Source: Yale Science and Health News - July 18, 2017 Category: Universities & Medical Training Tags: Yale News Source Type: news

Hope for Leonce: Kenyan boy ’s incredible journey with vein of Galen malformation
Boston is a long flight from Kenya — 22 hours long, in fact. That’s enough time to sleep, eat, read, watch countless YouTube videos and do it all over again, an experience that could make adults antsy, let alone two little boys. Yet it was a journey that Jane Nduta and Humphrey Njogu were eager to make. Just a few months earlier, their younger son, Leonce, had been diagnosed with a rare but life-threatening condition called vein of Galen malformation, or VOGM. In this blood vessel abnormality, misshapen arteries in the brain connect directly with veins instead of with capillaries. This causes a rush of high-pre...
Source: Thrive, Children's Hospital Boston - June 23, 2017 Category: Pediatrics Authors: Jessica Cerretani Tags: Diseases & Conditions Our Patients’ Stories Cerebrovascular Surgery and Interventions Center Dr. Darren Orbach International Health Services vein of Galen malformation (VOGM) Source Type: news

Indian girl Roona Begum with hydrocephalus dies
Roona Begum, a five-year-old girl was caught international headlines because of her severe condition, died in a remote Indian village on Sunday night after suffering breathing difficulties. (Source: the Mail online | Health)
Source: the Mail online | Health - June 21, 2017 Category: Consumer Health News Source Type: news

The Issue With Wishing Someone A 'Happy And Healthy' Baby
A thought-provoking Instagram post is highlighting a side effect of wishing expectant parents a “happy and healthy” baby.  Michelle Elman is a UK-based blogger, body confidence coach and activist. On June 14, she posted two photos of herself on Instagram ― one from her childhood and one from the present. Over each photo, she added the words “happy not healthy.” A post shared by Michelle Elman (@scarrednotscared) on Jun 14, 2017 at 11:29am PDT “’Wishing you a happy and healthy baby!’ ‘We don’t mind if we have a boy or girl, as long as my baby’s healthy...
Source: Healthy Living - The Huffington Post - June 20, 2017 Category: Consumer Health News Source Type: news

Chinese boy given 'death sentence' after head ballooned
Known only as Xin Xin, the Chinese toddler was born with hydrocephalus - a build-up of fluid inside his skull which can be deadly. Doctors in the city of Changsha say he will die without treatment. (Source: the Mail online | Health)
Source: the Mail online | Health - June 14, 2017 Category: Consumer Health News Source Type: news

Pakistani baby with a lump the size of a BASEBALL
Muhammad Hussain Baksh, from Karachi, was born with hydrocephalus - a build-up of fluid inside his skull which can be deadly. It caused the back of his head to grow at an abnormal rate. (Source: the Mail online | Health)
Source: the Mail online | Health - June 13, 2017 Category: Consumer Health News Source Type: news

Keeping up with Amanda: Life after brain surgery
In most ways, Amanda LePage is just like any other rambunctious fourth grader. She loves school, dance class, playing basketball and keeping up with her twin sister Macy and older brother Nathan. Sometimes it just takes her a little longer to do these everyday things. That’s because Amanda has been through a lot in her short nine years. Amanda was just 5 months old when she was brought by helicopter to Boston Children’s Hospital for a hemorrhage in her brain from an intracranial aneurysm, a type of vascular malformation. Despite long odds, Amanda survived two life-saving brain surgeries and a massive strok...
Source: Thrive, Children's Hospital Boston - May 22, 2017 Category: Pediatrics Authors: Ellen Greenlaw Tags: Our Patients’ Stories brain aneurysm Dr. Caroline Robson Dr. Craig McClain Dr. Edward Smith Dr. Peter Manley Hydrocephalus low-grade glioma pediatric stroke Source Type: news

Defective intercellular connections cause hydrocephalus
A defective gene leads to changes in the cellular layer between cerebrospinal fluid and brain nervous tissue, thus causing a buildup of fluid in the brain. This link is the first known mechanism underlying genetic hydrocephalus. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - May 16, 2017 Category: Science Source Type: news

Defective intercellular connections cause hydrocephalus
(German Cancer Research Center (Deutsches Krebsforschungszentrum, DKFZ)) A defective gene leads to changes in the cellular layer between cerebrospinal fluid and brain nervous tissue, thus causing a buildup of fluid in the brain. This link, which scientists from the German Cancer Research Center in Heidelberg have now discovered, is the first known mechanism underlying genetic hydrocephalus. (Source: EurekAlert! - Biology)
Source: EurekAlert! - Biology - May 16, 2017 Category: Biology Source Type: news

Are You Secretly Afraid You're Getting Alzheimer's?
This article was originally published on the Alzheimer’s Reading Room. -- This feed and its contents are the property of The Huffington Post, and use is subject to our terms. It may be used for personal consumption, but may not be distributed on a website. (Source: Healthy Living - The Huffington Post)
Source: Healthy Living - The Huffington Post - May 11, 2017 Category: Consumer Health News Source Type: news

MassDevice.com +5 | The top 5 medtech stories for April 20, 2017
Say hello to MassDevice +5, a bite-sized view of the top five medtech stories of the day. This feature of MassDevice.com’s coverage highlights our 5 biggest and most influential stories from the day’s news to make sure you’re up to date on the headlines that continue to shape the medical device industry. Get this in your inbox everyday by subscribing to our newsletters.   5. NuVasive launches Reline Trauma posterior fixation portfolio NuVasive Inc. said yesterday it launched its Reline Trauma spinal posterior fixation portfolio designed to aid in the preservation and restoration of patient alignmen...
Source: Mass Device - April 20, 2017 Category: Medical Equipment Authors: MassDevice Tags: News Well Plus 5 Source Type: news

Arkis BioSciences Expands Clinical Use Of Its New Minimally Invasive Tunneling Guidewire(TM) Technology
Single Pass™ Shunt Workflow enables up to one-third less invasive Shunt Procedures in Hydrocephalus Patients KNOXVILLE, Tenn., April 20, 2017 -- (Healthcare Sales & Marketing Network) -- Arkis BioSciences, a leading innovator in minimally invasive surg... Devices, Neurosurgery, Product Launch Arkis BioSciences, Single Pass, Tunneling Guidewire, intracranial pressure (Source: HSMN NewsFeed)
Source: HSMN NewsFeed - April 20, 2017 Category: Pharmaceuticals Source Type: news

FDA labels Medtronic StrataMR recall as Class I
The FDA today released updated information on Medtronic‘s (NYSE:MDT) recall of StrataMR adjustable valves and shunts over issues with fluid buildup, labeling it as Class I. The StrataMR adjustable valves and shunts are intended for the management of hydrocephalus by providing cerebrospinal fluid flow from the ventricles of the brain into the right atrium of the heart or peritoneal cavity. The recall relates to issues with flow resistance that could lead to under-drainage of cerebrospinal fluid, arising when the valve mechanism is adjusted to a position which causes higher-than-intended flow r...
Source: Mass Device - April 20, 2017 Category: Medical Equipment Authors: Fink Densford Tags: Food & Drug Administration (FDA) Neurological Recalls Medtronic Source Type: news

Build-up of fluid inside Thai boy's skull could kill him
Nong Chogun, who lives with his grandparents in Vichienburi, a part of the Petchburi province of Thailand, was born with hydrocephalus - a build-up of fluid inside his skull which could be deadly. (Source: the Mail online | Health)
Source: the Mail online | Health - April 13, 2017 Category: Consumer Health News Source Type: news

Management of medical complications during the rehabilitation of moderate-severe traumatic brain injury - Schultz BA, Bellamkonda E.
Brain injury specialists are experienced providers able to identify and treat the unique medical complications after moderate-severe traumatic brain injury, including posttraumatic seizures, paroxysmal sympathetic hyperactivity, spasticity, hydrocephalus, ... (Source: SafetyLit)
Source: SafetyLit - April 12, 2017 Category: Global & Universal Tags: Economics of Injury and Safety, PTSD, Injury Outcomes Source Type: news

Medtronic Recalls All StrataMR Valves, Shunts for Hydrocephalus Medtronic Recalls All StrataMR Valves, Shunts for Hydrocephalus
The recall is based on the potential for under-drainage of cerebrospinal fluid after the StrataMR valves and shunts are implanted, the company said.News Alerts (Source: Medscape Neurology and Neurosurgery Headlines)
Source: Medscape Neurology and Neurosurgery Headlines - April 10, 2017 Category: Neurology Tags: Neurology & Neurosurgery News Alert Source Type: news

Medtronic Announces Voluntary Worldwide Recall of its StrataMR(TM) Adjustable Valves and Shunts
DUBLIN - April 6, 2017 -- (Healthcare Sales & Marketing Network) -- Medtronic plc (NYSE: MDT) today announced that on February 22, 2017 it notified customers of a voluntary recall of all unused units of the StrataMR(TM) adjustable valves and shunts. These ... Devices, Neurosurgery, Product Recall Medtronic, StrataMR, intracranial pressure, hydrocephalus (Source: HSMN NewsFeed)
Source: HSMN NewsFeed - April 7, 2017 Category: Pharmaceuticals Source Type: news

Ventricular Enlargement Plus Idiopathic NPH Symptoms May Up Risk for Dementia Ventricular Enlargement Plus Idiopathic NPH Symptoms May Up Risk for Dementia
Enlarged ventricles in the brain plus one symptom of idiopathic normal-pressure hydrocephalus is associated with an increase in all-cause dementia, even after initially successful shunt surgery, say researchers.Medscape Medical News (Source: Medscape Neurology and Neurosurgery Headlines)
Source: Medscape Neurology and Neurosurgery Headlines - April 6, 2017 Category: Neurology Tags: Neurology & Neurosurgery News Source Type: news

Millar licenses Endotronix ’ s wireless MEMS sensor tech for neurosurgery
Medical device and OEM company Millar said today it inked an agreement with digital medtech company Endotronix granting it exclusive rights to its wireless MEMES sensor technology for use in neurosurgical devices. Houston-based Millar said the sensor technology will be used to develop an at-home monitor for intracranial pressure for patients suffering from hydrocephalus, looking to improve quality of life and reduce treatment costs. Check out the whole story on our sister site, Medical Design & Outsourcing The post Millar licenses Endotronix’s wireless MEMS sensor tech for neurosurgery appeared first on MassDevic...
Source: Mass Device - March 17, 2017 Category: Medical Equipment Authors: Fink Densford Tags: Business/Financial News Neurological Patient Monitoring Endotronix Inc. Millar Source Type: news

Searching for a sign: Navigating the Buffalo Niagara Medical Campus
For nine years, Kerri Lucas has made the trip downtown from her Town of Tonawanda home to bring her son William for treatment at Women& Children ’s Hospital of Buffalo. Born prematurely at 24 weeks with hydrocephalus, William has had 16 brain surgeries. His appointments range from the neurology department for a seizure disorder and audiology for a hearing impairment and urology for malfunctioning kidneys and endocrinology for hormonal gro wth issues. With the hospital set to move to the Buffalo… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - March 17, 2017 Category: Pharmaceuticals Authors: Tracey Drury Source Type: news

Searching for a sign: Navigating the Buffalo Niagara Medical Campus
For nine years, Kerri Lucas has made the trip downtown from her Town of Tonawanda home to bring her son William for treatment at Women& Children ’s Hospital of Buffalo. Born prematurely at 24 weeks with hydrocephalus, William has had 16 brain surgeries. His appointments range from the neurology department for a seizure disorder and audiology for a hearing impairment and urology for malfunctioning kidneys and endocrinology for hormonal gro wth issues. With the hospital set to move to the Buffalo… (Source: bizjournals.com Health Care:Biotechnology headlines)
Source: bizjournals.com Health Care:Biotechnology headlines - March 17, 2017 Category: Biotechnology Authors: Tracey Drury Source Type: news

No Brasil, beb ê s prisioneiros do zika s ã o envolvidos pelos cuidados dos seus pais
No empobrecido Nordeste do Brasil, dedicados e amorosos pais e m ã es vivem em fun ç ã o das necessidades dos filhos cujas graves defici ê ncias est ã o somente come ç ando a ser compreendidas. (Source: NYT Health)
Source: NYT Health - March 14, 2017 Category: Consumer Health News Authors: Por PAM BELLUCK and TANIA FRANCO Tags: Zika Virus Brazil Microcephaly Hydrocephalus Seizures (Medical) Recife (Brazil) Birth Defects Families and Family Life Source Type: news

For Brazil ’ s Zika Families, a Life of Struggle and Scares
In the impoverished northeast, devoted parents live around the needs of children whose grave disabilities are only beginning to be understood. (Source: NYT Health)
Source: NYT Health - March 11, 2017 Category: Consumer Health News Authors: PAM BELLUCK and TANIA FRANCO Tags: Zika Virus Brazil Microcephaly Hydrocephalus Seizures (Medical) Recife (Brazil) Birth Defects Families and Family Life Source Type: news

Indian baby born with head TWICE the normal size
Jaya Dalvi, four months, suffers from hydrocephalus - a build-up of fluid inside her skull.But her family, from a rural village in a western India state, can't afford to pay for specialist care. (Source: the Mail online | Health)
Source: the Mail online | Health - February 23, 2017 Category: Consumer Health News Source Type: news

Genetics Home Reference: megalencephaly-polymicrogyria-polydactyly-hydrocephalus syndrome
https://ghr.nlm.nih.gov/condition/megalencephaly-polymicrogyria-polydactyly-hydrocephalus-syndrome (Source: NLM General Announcements)
Source: NLM General Announcements - February 2, 2017 Category: Databases & Libraries Source Type: news

Evaluation of the effects of laser tissue welding for spina bifida repair
Spina Bifia is a birth defect where there is incomplete closure of the backbone and membranes around the spinal cord. It affects more than 4,000 children born each year in the U.S. and is associated with hydrocephalus (excessive accumulation of fluid on the brain), developmental delay, lifelong disability and death. This preliminary study hoped to determine the effects of laser tissue welding on underlying skin and spinal cord tissue. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - January 23, 2017 Category: Science Source Type: news

Evaluation of the use of human umbilical cord for in-utero spina bifida repair
Spina Bifida is a birth defect where there is an incomplete closure of the backbone and the coverings around the spinal cord. It affects more than 4,000 children born each year in the United States and is associated with hydrocephalus (fluid in the brain), developmental delay, lifelong disability and death. Spina Bifida is also associated with a need for shunt placement. In-utero surgery has been shown to reduce the need for shunting of hydrocephalus and to improve a child's ability to walk. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - January 23, 2017 Category: Science Source Type: news

Boy with world's largest head has surgery to remove fluid from around his skull
Indian-born Mrityunjay Das, who is just seven months old and suffers from hydrocephalus, has been relieved of nearly four litres of fluid, which inflated his face to the size of a watermelon. (Source: the Mail online | Health)
Source: the Mail online | Health - January 6, 2017 Category: Consumer Health News Source Type: news

Predicting Shunt Outcome in Obstructive Hydrocephalus Predicting Shunt Outcome in Obstructive Hydrocephalus
Are preoperative radiological findings in pediatric patients with obstructive hydrocephalus useful for predicting overall outcome following shunt insertion?Neurosurgical Focus (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - December 30, 2016 Category: Consumer Health News Tags: Neurology & Neurosurgery Journal Article Source Type: news

Alzheimer's Or NPH: Both Can Steal Your Identity, But You Can Come Back From One
Often mistaken for Alzheimer's Disease, Normal Pressure Hydrocephalus, or NPH. is a brain disorder that causes excess cerebrospinal fluid (CSF) to accumulate in the brain's ventricles causing thinking and reasoning problems, difficulty walking and loss of bladder control. (Source: Forbes.com Healthcare News)
Source: Forbes.com Healthcare News - December 21, 2016 Category: Pharmaceuticals Authors: Robin Seaton Jefferson, Contributor Source Type: news

Make the Diagnosis: Cerebrospinal Fluid Color Challenge
(MedPage Today) -- Case Findings: A 3-year-old boy with a brain stem glioma develops hydrocephalus and is treated with a ventriculoperitoneal shunt. He presents with green cerebrospinal fluid. What is your diagnosis? (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - December 19, 2016 Category: American Health Source Type: news

What Ohio's 20-Week Abortion Ban Law Will Really Mean For Women
Ohio just became the 18th state to pass an arbitrary ban on abortions after 20 weeks.  The new law, which Gov. John Kasich (R) signed Tuesday, outlaws an extremely rare procedure. Only about 1 percent of all abortions take place after 20 weeks, and most are the result of doctors finding birth defects that were undetectable in earlier screenings. The ban will push women to travel out of state if they discover a serious defect during a second trimester ultrasound, adding another layer of logistical and financial difficulty to an already complicated termination procedure, says Dr. Jennifer K. Hsia, a clini...
Source: Healthy Living - The Huffington Post - December 15, 2016 Category: Consumer Health News Source Type: news

What Ohio's 20-Week Abortion Ban Law Will Really Mean For Women
Ohio just became the 18th state to pass an arbitrary ban on abortions after 20 weeks.  The new law, which Gov. John Kasich (R) signed Tuesday, outlaws an extremely rare procedure. Only about 1 percent of all abortions take place after 20 weeks, and most are the result of doctors finding birth defects that were undetectable in earlier screenings. The ban will push women to travel out of state if they discover a serious defect during a second trimester ultrasound, adding another layer of logistical and financial difficulty to an already complicated termination procedure, says Dr. Jennifer K. Hsia, a clini...
Source: Science - The Huffington Post - December 15, 2016 Category: Science Source Type: news

Research identifies a molecular basis for common congenital brain defect
A molecular cause of hydrocephalus, a common, potentially life-threatening birth defect in which the head is enlarged due to excess fluid surrounding the brain, has now been discovered by researchers. Because the same molecule is also implicated in Down's syndrome, the finding may explain the ten-fold increased risk of hydrocephalus in infants born with Down's. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - December 14, 2016 Category: Science Source Type: news

Enlarged subarachnoid spaces and intracranial hemorrhage in children with accidental head trauma - Fingarson AK, Ryan ME, McLone SG, Bregman C, Flaherty EG.
OBJECTIVE Benign external hydrocephalus (BEH) is an enlargement of the subarachnoid spaces (SASs) that can be seen in young children. It is controversial whether children with BEH are predisposed to developing subdural hemorrhage (SDH) with or without trau... (Source: SafetyLit)
Source: SafetyLit - December 3, 2016 Category: Global & Universal Tags: Age: Infants and Children Source Type: news

Second opinion gives unborn baby second chance
Seven-month-old Charlotte Bent is hitting all of her developmental milestones — smiling, laughing, playing peek-a-boo, bearing weight on her legs. Her parents, Jennifer and Keith, are overjoyed. “It’s a complete 180-degree turn from where we thought we would be this time last year,” says Jennifer. After struggling to conceive their second child, the couple was thrilled when Jennifer became pregnant. The results of genetic testing were normal and confirmed they would be welcoming a daughter in April. Jennifer felt the baby’s first kicks on Nov. 23, 2015. The next day, she was scheduled for an a...
Source: Thrive, Children's Hospital Boston - November 29, 2016 Category: Pediatrics Authors: Lisa Fratt Tags: Our Patients’ Stories Advanced Fetal Care Center bilateral perisylvian polymicrogyria Dr. Benjamin Warf Dr. Christopher Elitt Second opinion ventriculomegaly Source Type: news

Seeing Phoenix
It seems like people have been looking at our son Phoenix — without seeing him, without talking to him — since before he was born. When I was pregnant and the ultrasound showed severe spina bifida and kyphosis (an excessive forward curve in his spine), the specialist told us he had never seen a spine like Phoenix’s. He wasn’t sure how it could be treated and recommended terminating my pregnancy. My husband Mike and I chose not to. Phoenix was born on June 29, 2009, with a lesion at the base of his spine. His spinal cord and nerves were exposed, so his first surgery was a skin graft to cover the lesi...
Source: Thrive, Children's Hospital Boston - October 3, 2016 Category: Pediatrics Authors: Megan Reuwer Tags: Our Patients’ Stories clubfoot Dr. Benjamin Warf Dr. Lawrence Karlin Dr. Nedda Hobbs Hydrocephalus kyphosis spina bifida Spina Bifida Clinic Source Type: news

How One Family Is Bringing Attention To Hydrocephalus
It is hard enough to support a seriously ill child through a devastating and poorly understood illness. But it is quite another thing to start an organization devoted to raising money to publicize the disease and raise money for research. (Source: Forbes.com Healthcare News)
Source: Forbes.com Healthcare News - September 12, 2016 Category: Pharmaceuticals Authors: Barron Lerner Source Type: news

Tanzania: Over 60 Children to Undergo Surgery
[Citizen] Dar es Salaam -Over 60 children from nine regions, who have been diagnosed with hydrocephalus, are expected to undergo surgery in a week-long programme to be carried out by the Muhimbili Orthopaedic Institute (MOI). (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - September 12, 2016 Category: African Health Source Type: news

Baby is abandoned by his parents after horrific condition made his head grow THREE times the normal size
Royal Kumar, from India, was born with hydrocephalus - a build-up of fluid on the brain. But his parents abandoned him forcing two of his relatives to take him under their wing. (Source: the Mail online | Health)
Source: the Mail online | Health - August 26, 2016 Category: Consumer Health News Source Type: news

Alcyone Lifesciences seeks FDA nod for ReFlow neuro cath
Alcyone Lifesciences is seeking formal commercial approval for its device to treat fluid buildup in the brain, following its successful implant in 4 patients in an ongoing study at Boston Children’s Hospital. The Lowell, Mass.-based company said that its decision to file a 510(k) premarket notification with the FDA seeking a regulatory sign-off for its ReFlow System also comes after the successful completion of a number of bench and animal studies. Alcyone wants to treat a condition known as hydrocephalus, where there is an excessive buildup of cerebrospinal fluid. As the company explains, this can threaten a pa...
Source: Mass Device - August 2, 2016 Category: Medical Equipment Authors: Mark Hollmer Tags: Catheters Food & Drug Administration (FDA) Neurological Regulatory/Compliance Alcyone Lifesciences Source Type: news