Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID

ConclusionsTo our knowledge, this is the first study developing a citizen-driven, explicitly patient-centred research agenda with persons affected by Long COVID, setting it apart from existing multi-stakeholder efforts. The identified priorities could guide future research and funding allocation. Our methodology establishes a framework for citizen-driven research agendas, suitable for transfer to other diseases.
Source: The Patient - Patient-Centered Outcomes Research - Category: International Medicine & Public Health Source Type: research