Data Resource Profile: Xiamen registry of pregnant women and offspring (REPRESENT): a population-based, long-term follow-up database linking four major healthcare data platforms

Key FeaturesREPRESENT is the first population-based, long-term follow-up database of pregnant women and their offspring in China that can capture information on a diversity of exposures before pregnancy as well as long-term outcomes for both mothers and infants, in addition to tracking data during gestation and delivery.In the past 11 years (January 2008 to March 2019), REPRESENT has accumulated data concerning 766  194 pregnancies and 765 746 newborns, with over 800 variables being documented from four healthcare data platforms in Xiamen, a sub-provincial city in southeast China that has 4.11 million residents.REPRESENT was primarily built upon the Maternal and Child Health Management Platform, a pregnancy registry which stores healthcare data —including antenatal care, delivery care, postpartum follow-up and childhood follow-up—from pregnant women and their offspring across all maternity departments in Xiamen.By using a unique identifier, REPRESENT linked the pregnancy registry with three other healthcare data platforms, which store healthcare data from 15 tertiary and 2 secondary hospitals, 39 primary healthcare facilities and 272 (of the 281) health stations in the city. The scope of the database spans from pre-pregnancy exposures to post-delivery information about health care and outcomes for mothers, and the follow-up for offspring may cover adolescence and adulthood.Research institutions can apply to access the registry data by submitting a formal study protocol,...
Source: International Journal of Epidemiology - Category: Epidemiology Source Type: research