The value in measuring the patient experience

This study emphases the value of narrative data in understanding patient experiences and what is most bothersome for them.”  Insights included, for example, the fact that pain in the early cohort was a common factor that had often not been discussed. The project also offered insights into some little understood negative aspects of ‘off’ periods (when symptoms return between medication doses), such as movement symptoms but also non-motor symptoms such as anxiety or fogginess.  “Understanding the language patients use can help improve provider communications and improve outcome measures,” says Hastings. Taking the longitudinal view Gathering such evidence is also potentially open ended and so the value of such longitudinal data grows in value over time, adds Hastings. “We can look back and find associations and trends. We have collected more than 1.3 million survey responses and made that data available to the research community in near real time.”  Qualitative insights are not the only way to map the patient experience. It is possible to gather data around the patient experience in ways that are both simple and powerful, says Sam Marhawa, Chief Commercial Officer at Evidation, the behaviour-focused health technology platform.  As well as gathering data direct from patients about their experiences, it is possible to infer patient experiences based on other measures based on their activity, for example what their heart rate may says about their stress lev...
Source: EyeForPharma - Category: Pharmaceuticals Authors: Source Type: news