'More than a Box of Puzzles': Understanding the Parental Experience of Having a Child with a Rare Genetic Condition".
CONCLUSION: This study highlights the importance of considering the parental perspective in the context of genetic testing in clinical practice.
PMID: 33571692 [PubMed - as supplied by publisher]
Source: European Journal of Medical Genetics - Category: Genetics & Stem Cells Authors: Fitzgerald J, Wilson C, Kelly C, Gallagher L Tags: Eur J Med Genet Source Type: research
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