'More than a Box of Puzzles': Understanding the Parental Experience of Having a Child with a Rare Genetic Condition".

CONCLUSION: This study highlights the importance of considering the parental perspective in the context of genetic testing in clinical practice. PMID: 33571692 [PubMed - as supplied by publisher]
Source: European Journal of Medical Genetics - Category: Genetics & Stem Cells Authors: Tags: Eur J Med Genet Source Type: research