Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents

ConclusionsAlthough children and adolescents with VACTERL association reported similar HRQoL to those of European children with chronic conditions, their psychological well-being was comparable to Swedish school children in general. Nevertheless, some individuals among both children and parents were in need of extra support. This attained knowledge is valuable when counselling parents regarding the prognosis for children with VACTERL association.
Source: Quality of Life Research - Category: Health Management Source Type: research