For Taunton Children Battling Rare Disease, Flu Season Is Life Or Death

TAUNTON (CBS) – Flu season is here, and for a Taunton family with two babies battling a rare disease, the months are particularly stressful. From the outside, they appear picture-perfect: Amanda and Billy Bettuchi and their three beautiful kids. But you can’t tell a whole health story just by looking. “It’s Severe Combined Immunodeficiency (SCID), so Shane was born with no immune system at all. They have to go through chemo first for 10 days and then they get the bone marrow transplant after that at three months old,” mom Amanda (Acorn) Bettuchi explained. Sweet Shane, not even a year old, is still recovering. The couple is holding their breath his bone marrow transplant worked. “A lot of the chemo could burn his body. It could burn us so we couldn’t hold him for a lot of it. He lost all of his hair. Eyelashes everything. That was very sad,” she added. Shane Bettuchi (WBZ-TV) And just as they felt some hope, more heartache. After a third healthy pregnancy, newborn Declan was diagnosed with the same rare disease. “We cried a lot. A lot of tears were shed. We’ve been through it before. We’ve been trying to stay positive with everything,” Amanda said. Just weeks old, Declan’s too young still for the treatment. That means many more months the couple can’t leave to work, and no one — no germs — can come into their home. “Around Christmastime everybody drops the gifts at the door. ...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - Category: Consumer Health News Authors: Tags: Boston News Health Syndicated CBSN Boston Syndicated Local flu season Juli McDonald Taunton News Source Type: news

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