Complete Title: Quality of Life in Children with Sturge-Weber Syndrome

To assess utilization of the National Institutes of Health (NIH) Quality of Life in Neurological Disorders (Neuro-QoL) short forms in pediatric patients with Sturge-Weber syndrome (SWS), a rare, neurovascular disorder, which frequently results in seizures, brain atrophy, calcification, and a range of neurological impairments.

Source: Pediatric Neurology - April 23, 2019 Category: Neurology Authors: Kelly A. Harmon, Alyssa M. Day, Adrienne M. Hammill, Anna L. Pinto, Charles E. McCulloch, Anne M. Comi, Collaborators: National Institutes of Health Sponsor: Rare Disease Clinical Research Consortium (RDCRN) Brain and Vascular Malformation Consortium (BVM Tags: Research Paper Source Type: research