Sma clinical data, outcome measures and registries

Clinical trials in the SMA I population could be advanced by using a motor tracking system that could quantify change in movement while minimizing the burden of testing on fragile children with SMA. ACTIVE-mini uses color tracking to quantify movement characteristics of the extremities such as quantity, velocity and complexity. The reliability and validity of the ACTIVE-mini has not been established for children with SMA. The purpose of this study was to establish the reliability and validity of ACTIVE-mini for children with SMA.

Source: Neuromuscular Disorders - September 6, 2018 Category: Neurology Authors: L. Nelson, L. Alfano, D. Chen, N. Miller, M. Dugan, S. Rust, E. Lin, S. Lin, S. Wang-Price, C. Swank, M. Thompson, L. Lowes Source Type: research