Eight summer activities for children with special medical needs (and the families who love them)

Meaghan O’Keeffe, RN, BSN, is a mother, writer and nurse. She worked at Boston Children’s Hospital for nearly a decade, in both the Cardiac Intensive Care Unit and the Pre-op Clinic.  She is a regular contributor to Thriving. Summer is approaching and school is nearing its end. For those who’ve endured a long, tough winter, warmer weather and a nice vacation can’t come soon enough. Finding activities to keep your children busy during the summer months can prove challenging. But when you have a child with special medical needs, it’s a whole new ball game. Some kids have physical limitations that make certain activities difficult. Some are wheelchair-dependent. Some need a high degree of sensory stimulation, while others become easily overwhelmed and agitated when exposed to too much activity. On top of that, families with a child who has special needs may have other able children who need summer entertainment as well. Sometimes, finding an activity that includes and engages the whole family is hard. Whether you’ll be staying put this summer or have plans to travel, here are some fun and inclusive activities for the whole family to enjoy. Close to Home Berry Picking Berry season is upon us. From strawberries to blueberries, raspberries to blackberries, fresh in-season fruit is yours for the picking. Picking berries is a fun activity for kids of all levels and an opportunity to spend time outdoors in an open, stress-free environment. Chec...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: All posts Meaghan O'Keefe Parenting Source Type: news

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PCDH19 (protocadherin-19) was first identified as a cause of epilepsy and intellectual disability in 2008 [1]. Pathogenic variants in PCDH19 are associated with a complex neurodevelopmental syndrome characterized by epilepsy with fever-related clusters, intellectual disability, autism spectrum disorder and behavioral comorbidity [2]. The phenotypic spectrum related to PCDH19 is broadening to include patients with milder phenotype [3].
Source: Seizure: European Journal of Epilepsy - Category: Neurology Authors: Source Type: research
Publication date: September 2020Source: Research in Developmental Disabilities, Volume 104Author(s): Jennifer M. Glennon, Hana D’Souza, Luke Mason, Annette Karmiloff-Smith, Michael S.C. Thomas
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
Publication date: September 2020Source: Research in Developmental Disabilities, Volume 104Author(s): Jenna H. Beffel, Amy K. Nuttall
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
Despite its impact on everyday functioning, spatial perspective-taking has rarely been investigated in autism spectrum disorders (ASD), and previous findings are surprisingly sparse and inconsistent. In the present study, we aimed to investigate spatial perspective-taking abilities in children and adolescents with ASD without intellectual disabilities, comparing them with a group of typically developing (TD) peers. Our objectives were: (i) to test similarities and differences between these groups in a spatial perspective-taking task; and (ii) to see whether similar or different underlying processes (i.e., fine and gross mo...
Source: Frontiers in Human Neuroscience - Category: Neuroscience Source Type: research
Psychiatric disorders, such as schizophrenia, depression, anxiety, and bipolar disorder, are common conditions that arise as a result of complex and heterogeneous combinations of genetic and environmental factors. In contrast to childhood neurodevelopmental conditions such as autism and intellectual disability, there are no clinical practice guidelines for applying genetic testing in the context of these conditions. But genetic counseling and genetic testing are not synonymous, and people who live with psychiatric disorders and their family members are often interested in what psychiatric genetic counseling can offer. Furt...
Source: Cold Spring Harbor perspectives in medicine - Category: Research Authors: Tags: Genetic Counseling: Clinical Practice and Ethical Considerations PERSPECTIVES Source Type: research
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In this study, we evaluated three lessons from a manualized social play skills intervention, Play20. Play20 is a focused intervention that is designed to improve early social skill development in children with autism spectrum disorder through naturalistic play. First, we evaluated the procedural fidelity of instructor implementation of Play20, and we also evaluated the effects of an added instructor self-monitoring checklist in further improving instructor behavior. Finally, we evaluated the effects of Play20 on child play outcomes. Instructor procedural fidelity increased in the presence of the Play20 lessons, and further...
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Abstract Six articles in the June 2020 issue of the American Journal of Psychiatry address the overall construct of cognition. These articles have a broad connection to cognition, which is itself a broad concept. From the experimental psychology perspective, cognition is the set of processes associated with attending, learning, knowing, and remembering. From the clinical perspective, a number of neuropsychiatric conditions are defined by the presence of cognitive impairment, with onset ranging from childhood, such as attention deficit hyperactivity disorder and intellectual disability, to later life, such as demen...
Source: The American Journal of Psychiatry - Category: Psychiatry Authors: Tags: Am J Psychiatry Source Type: research
PMID: 32475140 [PubMed - in process]
Source: The American Journal of Psychiatry - Category: Psychiatry Authors: Tags: Am J Psychiatry Source Type: research
Plena inclusi ón (Full Inclusion) is Spain's leading NGO on Intellectual Disability and other Developmental Disabilities. It is made up of nearly 900 family-based non-profit organizations throughout the country. Full inclusion offers lifelong support to 140,000 people with Developmental Disabilities (DD) (Intell ectual Disability, Autism Spectrum Disorder and Cerebral Palsy) and their families.
Source: Biological Psychiatry - Category: Psychiatry Authors: Tags: Correspondence Source Type: research
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