When to call?

Good morning. My daughter has been diagnosed with CRMS. She has df508 and a mutation with varying consequences f1052v. Apparently f1052v causes CF in some, but not all it's patients. So my daughter (8 months old) is tracked at a CF accredited center and has been doing well with no symptoms to date. She got a scary high fever last month and our pediatrician instructed us to take her to Children's Urgent Care. This center is affiliated with her CF doctor's and communicated with them to ensure she was being tested for everything she should be. The doctor said she had a diminished lung (meaning it didn't sound as healthy) but her xray showed no pneumonia etc. They snot sucked her and her lungs sounded better. All her CF cultures came back clean and green. Well...now a month later and my daughter is still sick. No fever anymore, but shes still coughing. A lot. I actually think the coughing has gotten worse. I don't want to constantly be taking her to the doctor if she just has a cold like any 8 month old, but I'm wondering if there could be more going on. Just looking for advice as to when to take my daughter to the CF doctor. Her breathing also sounds very...different. I'm not sure if it's wheezing but I hear a high pitched..whistle sound? I feel like I could be blowing everything out of proportion because I'm just so worried about her all the time. Just looking for some advice from people more experienced in CF symptoms. Does this sound like it's doctor worthy...
Source: Cystic Fibrosis Newly Diagnosed Forum - Category: Respiratory Medicine Authors: Tags: Newly Diagnosed Source Type: forums