Lessons Learned From Clinical Studies in Centronuclear Myopathies: The Patient Perspective-A Qualitative Study

CONCLUSION: The acknowledgment and inclusion of patients' perspectives and efficient and effective communication is expected to improve patient recruitment and retention in future clinical studies, as well as more accurate assessment of the patient performance related to suitable planning of the study visits.PMID:38670885 | DOI:10.1016/j.clinthera.2024.03.008

Source: Clinical Therapeutics - April 26, 2024 Category: Drugs & Pharmacology Authors: Lizan Stinissen Johann B öhm Sietse Bouma Jeno van Tienen Holger Fischer Zak Hughes Anne Lennox Erin Ward Marie Wood A Reghan Foley Wija Oortwijn Heinz Jungbluth Nicol C Voermans Source Type: research