Hereditary Colorectal Cancer Syndromes Registry: What, How, and Why?

Clin Colon Rectal Surg. 2023 Jul 31;37(3):198-202. doi: 10.1055/s-0043-1770733. eCollection 2024 May.ABSTRACTCaring for patients with colorectal cancer inherited cancer syndromes is complex, and it requires a well-thought integration process between a multidisciplinary team, an accessible database, and a registry coordinator. This requires an aligned vision between the administrative business team and the clinical team. Although we can manage most of the cancers that those patients develop according to oncologic guidance, the future risk of patients and their families might add emotional and psychological burdens on them in the absence of a well-qualified and trained team where balancing quality of life and cancer risk are at the essence of decision making.PMID:38606043 | PMC:PMC11006437 | DOI:10.1055/s-0043-1770733
Source: Clinical Colorectal Cancer - Category: Cancer & Oncology Authors: Source Type: research