Self- and Caregiver-Reported Participation, Quality of Life, and Related Mood and Behavior Challenges in People Living With Dystrophinopathies
Previous studies of quality of life (QOL), mood, and behavior in muscular dystrophy focus on caregiver perceptions. This cross-sectional study aims to determine the prevalence of clinically significant mood and behavior problems by both patient and caregiver report and assess relationship between mood/behavior and QOL.
Source: Pediatric Neurology - Category: Neurology Authors: Anna Jesus, Carolyn Bennett, Chelsea Masterson, Laurie Brenner, Rebecca Scharf Tags: Research Paper Source Type: research
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