Experiences of patients and family members with follow-up care, information needs and provider support after identification of Lynch Syndrome

ConclusionsProbands and family members receiving genetic testing for Lynch Syndrome generally adhered to initial screening and surveillance recommendations. However, factors such as insurance coverage and difficulty finding a knowledgeable healthcare provider presented barriers to receiving recommended follow-up care. There is an opportunity to improve care through better transitions in care, procedures to keep primary care providers informed of surveillance guidelines, and practices so that patients receive reminders and facilitated appointment setting for ongoing screening and surveillance at the time they are due.
Source: Hereditary Cancer in Clinical Practice - Category: Cancer & Oncology Source Type: research