Palliative care needs among outpatient adults with cystic fibrosis: Baseline data from the Improving Life with CF trial

Cystic fibrosis (CF) is a chronic, progressive disease that affects an estimated 105,000 children and adults worldwide [1]. In the U.S., the clinical outcomes associated with CF have improved during the past three decades, due both to the development of specialty practices (CF centers) that coordinate medical, psychosocial, rehabilitative, and nutritional interventions, [2] and the advent of CF transmembrane conductance regulator (CFTR) modulator therapies. These improvements, however, have not eliminated the adverse effects of CF on prognosis and quality of life.

Source: Journal of Cystic Fibrosis - November 9, 2023 Category: Respiratory Medicine Authors: Stephanie DiFiglia, Anna M. Georgiopoulos, Russell Portenoy, Elizabeth Seng, Maria Berdella, Deborah Friedman, Catherine Kier, Rachel W. Linnemann, Brandi Middour-Oxler, Patricia Walker, Janice Wang, Lael M. Yonker, Brian Buehler, Nivedita Chaudhary, Chri Tags: Original Article Source Type: research