PCR229 Impact of Fibrodysplasia Ossificans Progressiva on Living Adaptations and Employment: Burden of Illness Survey Results from the United States and Canada

Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disorder of heterotopic ossification that leads to cumulative loss of joint function, creating a substantial need for living adaptations and career changes for people affected.1 Here, we present the United States (U.S.) and Canadian results from an international burden of illness survey (NCT04665323) used to understand the economic impact of FOP.
Source: Value in Health - Category: International Medicine & Public Health Authors: Source Type: research