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Systemic Sclerosis World Congress
(Source: Boehringer Ingelheim Corporate News)
Source: Boehringer Ingelheim Corporate News - February 14, 2018 Category: Research Source Type: news

Chesco gene therapy company seeks FDA OK to begin human testing of skin disorder treatment
The treatment is for a rare condition called localized scleroderma. (Source: bizjournals.com Health Care News Headlines)
Source: bizjournals.com Health Care News Headlines - February 7, 2018 Category: Health Management Authors: John George Source Type: news

Synthetic DMARDs May Blunt Pneumococcal Vaccine Response in Systemic Sclerosis Synthetic DMARDs May Blunt Pneumococcal Vaccine Response in Systemic Sclerosis
Pneumococcal vaccination yields a satisfactory antibody response in patients with systemic sclerosis (SSc), but synthetic disease-modifying antirheumatic drugs (DMARDs) might reduce the vaccine response in these individuals, according to a report from Sweden.Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - January 24, 2018 Category: Consumer Health News Tags: Rheumatology News Source Type: news

Stem cell transplant helps people with severe scleroderma
A study of people with severe scleroderma found that a new approach using stem cell transplants provides a better outcome than an immune-suppressing drug. (Source: NIH Research Matters from the National Institutes of Health (NIH))
Source: NIH Research Matters from the National Institutes of Health (NIH) - January 23, 2018 Category: Consumer Health News Source Type: news

Systemic Scleroderma
(Source: eMedicineHealth.com)
Source: eMedicineHealth.com - January 23, 2018 Category: General Medicine Source Type: news

Genomics reveals key macrophages' involvement in systemic sclerosis
(Duke-NUS Medical School) A new international study has made an important discovery about the key role of macrophages, a type of immune cell, in systemic sclerosis (SSc), a chronic autoimmune disease which currently has no cure. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - January 18, 2018 Category: International Medicine & Public Health Source Type: news

Scleroderma study: Hope for a longer life for patients with rare autoimmune disorder
(University of Virginia Health System) The approach could represent the first new treatment to improve survival in patients with severe scleroderma in more than four decades. (Source: EurekAlert! - Cancer)
Source: EurekAlert! - Cancer - January 12, 2018 Category: Cancer & Oncology Source Type: news

Radiation OK for Breast Ca Patients with Scleroderma (CME/CE)
(MedPage Today) -- Acute toxicity and disease flares were rare (Source: MedPage Today Primary Care)
Source: MedPage Today Primary Care - January 10, 2018 Category: Primary Care Source Type: news

What Risks for Radiation in Scleroderma Patients with Breast Cancer? (CME/CE)
(MedPage Today) -- Acute toxicity and disease flares were rare (Source: MedPage Today Radiology)
Source: MedPage Today Radiology - January 10, 2018 Category: Radiology Source Type: news

New HSS study finds hope in understanding and better treating scleroderma
(Hospital for Special Surgery) Researchers at HSS find a potential cause and treatment lead for scleroderma. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - January 10, 2018 Category: International Medicine & Public Health Source Type: news

Stem Cell Transplant Improves Severe Scleroderma Survival Stem Cell Transplant Improves Severe Scleroderma Survival
Among patients with severe scleroderma, stem cell transplant significantly improved survival compared with cyclophosphamide but was associated with higher mortality and short-term side effects, a study found.Medscape Medical News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - January 4, 2018 Category: Consumer Health News Tags: Rheumatology News Source Type: news

Stem Cell Transplant Shows Promise for Immune Disorder Scleroderma
Title: Stem Cell Transplant Shows Promise for Immune Disorder SclerodermaCategory: Health NewsCreated: 1/3/2018 12:00:00 AMLast Editorial Review: 1/4/2018 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - January 4, 2018 Category: Rheumatology Source Type: news

Stem Cell Transplant Succeeds in Scleroderma (CME/CE)
(MedPage Today) -- Significant benefits seen versus cyclophosphamide (Source: MedPage Today Primary Care)
Source: MedPage Today Primary Care - January 3, 2018 Category: Primary Care Source Type: news

Stem cell transplant for severe scleroderma improves survival, quality of life
NIH-funded study finds transplantation superior to treatment with immune-suppressing drug. (Source: National Institutes of Health (NIH) News Releases)
Source: National Institutes of Health (NIH) News Releases - January 3, 2018 Category: American Health Source Type: news

Stem Cell Transplant Shows Promise for Immune Disorder Scleroderma
WEDNESDAY, Jan. 3, 2018 -- Stem cell transplants could offer new hope for people with a severe form of scleroderma -- a debilitating and deadly condition that affects the immune system, a new study suggests. " Scleroderma hardens the skin and... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - January 3, 2018 Category: General Medicine Source Type: news

Better Arthroplasty Outcomes, Hope in Scleroderma, and More Better Arthroplasty Outcomes, Hope in Scleroderma, and More
Medscape speaks with Drs Susan Goodman and Robert Spiera about their research and others presented at the 2017 American College of Rheumatology Annual Meeting.Hospital for Special Surgery (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - January 3, 2018 Category: Consumer Health News Tags: Rheumatology Expert Interview Source Type: news

Papers of note in Science Translational Medicine 9 (420)
This week’s articles describe ways to treat scleroderma and schizophrenia. (Source: Signal Transduction Knowledge Environment)
Source: Signal Transduction Knowledge Environment - December 19, 2017 Category: Science Authors: Ferrarelli, L. K. Tags: STKE Editors ' Choice Source Type: news

Marked Disability Present Early in SSc (CME/CE)
(MedPage Today) -- Hand function compromised in diffuse cutaneous systemic sclerosis (Source: MedPage Today Primary Care)
Source: MedPage Today Primary Care - December 12, 2017 Category: Primary Care Source Type: news

Factors Predict Severe GI Problems in SSc (CME/CE)
(MedPage Today) -- Dysmotility in systemic sclerosis linked with myopathy, sicca symptoms, nonwhite race, and male sex (Source: MedPage Today Gastroenterology)
Source: MedPage Today Gastroenterology - December 3, 2017 Category: Gastroenterology Source Type: news

Lung involvement raises costs for systemic sclerosis patients
(Source: PharmacoEconomics and Outcomes News)
Source: PharmacoEconomics and Outcomes News - December 1, 2017 Category: Drugs & Pharmacology Source Type: news

Shock-Waves Reduce Finger Ulcers in Scleroderma
Compared with conventional treatment, extracorporeal shock-wave therapy resulted in a significant decrease in finger ulcers. (Source: CancerNetwork)
Source: CancerNetwork - November 22, 2017 Category: Cancer & Oncology Authors: Gregory M. Weiss, M.D. Tags: Scleroderma Systemic Sclerosis Rheumatic Diseases Source Type: news

Shock-Waves Reduce Finger Ulcers in Scleroderma
Compared with conventional treatment, extracorporeal shock-wave therapy resulted in a significant decrease in finger ulcers. (Source: ConsultantLive)
Source: ConsultantLive - November 22, 2017 Category: Internal Medicine Authors: Gregory M. Weiss, M.D. Tags: Scleroderma Systemic Sclerosis Rheumatic Diseases Source Type: news

SPM in Real Life: Fall β€˜17
NEW MEMBERS: Fall ‘17 Brief bios/plugs for new members (extracted from the Introduce Yourself Connect Community) After returning to school to become an OR surgical tech, Mary Mack’s heart health declined, and she quickly learned to become a strong advocate for herself. Feeling that no one was into her participatory style, Mary believes a radical change in medical student education is necessary to change the culture of medicine. She is passionate about helping to make that change happen. Her other interests include playing the guitar and speaking Mandarin Chinese. Jim Skinner created the Smart Patient Academy a...
Source: Society for Participatory Medicine - November 13, 2017 Category: General Medicine Authors: Nanette Mattox Tags: Newsletter Source Type: news

Pulmonary Progression Can be Rapid in SSc (CME/CE)
(MedPage Today) -- Even in early systemic sclerosis, almost half had PAH (Source: MedPage Today Primary Care)
Source: MedPage Today Primary Care - October 25, 2017 Category: Primary Care Source Type: news

Intestinal Microbiome in Scleroderma Intestinal Microbiome in Scleroderma
How has our understanding of the involvement of intestinal microbiome in scleroderma recently evolved?Current Opinion in Rheumatology (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - October 16, 2017 Category: Consumer Health News Tags: Rheumatology Journal Article Source Type: news

A revealing repertoire for systemic sclerosis
(Source: ScienceNOW)
Source: ScienceNOW - October 5, 2017 Category: Science Authors: Fogg, C. N. Tags: twis Source Type: news

Scleroderma
Former school teacher Jay Virdee has been diagnosed with the rare autoimmune disease scleroderma. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - September 23, 2017 Category: Consumer Health News Source Type: news

Dame Margaret Turner-Warwick obituary
Pioneering physician who played a fundamental role in the development of modern respiratory medicineWhen Margaret Turner-Warwick, who has died aged 92, entered the field of respiratory medicine in the 1950s, it was a time of great change. Effective treatment fortuberculosis had recently been introduced, and the adverse effects of cigarette smoking on the lung were beginning to be appreciated.The focus of academic research had been limited to understanding and measuring lung function, but with her colleagues Jack Pepys andDeborah Doniach, Margaret expanded it to include the immunology of the lung, and particularly of the fi...
Source: Guardian Unlimited Science - September 18, 2017 Category: Science Authors: Anthony Newman Taylor Tags: Medical research Science Health Society Health policy Public services policy Politics Source Type: news

Update of EULAR Recommendations for Systemic Sclerosis Update of EULAR Recommendations for Systemic Sclerosis
This article provides updated guidance concerning systemic sclerosis treatment options.Annals of the Rheumatic Diseases (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - August 29, 2017 Category: Consumer Health News Tags: Rheumatology Journal Article Source Type: news

'More than Systemic Sclerosis: The Inside Story' - patients reveal the unseen impact of lung fibrosis
'More than Systemic Sclerosis: The Inside Story' launches today to mark World Scleroderma Day. This global initiative highlights the importance of understanding the 'inside story' of each individual living with systemic sclerosis, and to increase awareness of the potential serious consequences when fibrosis develops in vital organs such as the lungs. (Source: World Pharma News)
Source: World Pharma News - June 29, 2017 Category: Pharmaceuticals Tags: Featured Boehringer Ingelheim Business and Industry Source Type: news

Tired and breathless? YOU could be suffering from a life-threatening auto-immune condition
TIREDNESS and feeling out of breath are two symptoms of advanced scleroderma - a life-threatening auto-immune condition. (Source: Daily Express - Health)
Source: Daily Express - Health - June 28, 2017 Category: Consumer Health News Source Type: news

New tools help early diagnosis of systemic sclerosis
(European League Against Rheumatism) The results of two studies presented today at the Annual European Congress of Rheumatology 2017 press conference highlight the use of two new tools, which can potentially play a pivotal role in the early diagnosis of Systemic Sclerosis. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - June 14, 2017 Category: International Medicine & Public Health Source Type: news

Scleroderma
Title: SclerodermaCategory: Diseases and ConditionsCreated: 12/31/1997 12:00:00 AMLast Editorial Review: 6/8/2017 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - June 8, 2017 Category: Rheumatology Source Type: news

Disease Awareness Months Work, Even If You Don't Wear The Ribbon
June ​is the month for more than 10 disease-related awareness campaigns, including Myasthenia Gravis Awareness Month, National Congenital Cytomegalovirus Awareness Month and National Scleroderma Awareness Month. It also hosts a handful of awareness weeks and days, ranging from Helen Keller Deaf-Blind Awareness Week to World Sickle Cell Day. June’s awareness list is shorter than most, but every month is full of diseases and disorders to take note of. You probably haven’t heard of half of them, and you’re not alone. So what’s the point of an awareness day, week or month? To understand the chall...
Source: Healthy Living - The Huffington Post - June 2, 2017 Category: Consumer Health News Source Type: news

Study suggests link between imbalanced gut microbiome and systemic sclerosis
This study is the first to examine gastrointestinal bacterial composition in two independent groups of people with systemic sclerosis. Systemic sclerosis, also known as scleroderma, is an autoimmune disease affecting the body ’s connective tissue. It is characterized by a hardening and scarring of skin and can progress to inflammation and scarring in the organs such as kidneys, heart, lungs and gastrointestinal tract. Previous UCLA-led research  detailed a link between the disease and the imbalance in the gut microbiome and suggested that this imbalance contributed to scleroderma’s symptoms.METHODThe ...
Source: UCLA Newsroom: Health Sciences - May 12, 2017 Category: Universities & Medical Training Source Type: news

Imbalanced gut microbiome linked to systemic sclerosis, study suggests
Americans and Norwegians with systemic sclerosis had higher levels of bacteria that can cause inflammation and lower levels of bacteria that are believed to protect against inflammation compared with healthy people. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - May 12, 2017 Category: Science Source Type: news

Is Health Insurance A Right Or A Privilege?
Now more than ever, health insurance is a staple story in the 24-hour news cycle. Opinions vary widely on the issue, as do politician’s thoughts on the matter. Debates rage, tensions grow, and deeper divides are formed as our government wrestles with this colossal dispute. Nestled at the heart of it all though is a basic question: Is health insurance a right or a privilege in the United States? I’m alive today because my school district, where I’ve now taught for 20 years, offers the ‘Cadillac of insurance plans.’ On April 26, 2006, I checked into the hospital for a scheduled C-section. Due to...
Source: Healthy Living - The Huffington Post - May 8, 2017 Category: Consumer Health News Source Type: news

EULAR Update Targets Organ Involvement in Systemic Sclerosis (CME/CE)
(MedPage Today) -- New recommendations address many -- but not all -- SSc-related organ complications (Source: MedPage Today Primary Care)
Source: MedPage Today Primary Care - May 5, 2017 Category: Primary Care Source Type: news

Corbus says anti-inflammatory drug will enter late-stage trial this year
Norwood-based Corbus Pharmaceuticals said Wednesday that it plans to launch a Phase 3 trial of its sole drug in development in the fourth quarter of 2017, paving the way for a possible FDA filing in 2019. Corbus (Nasdaq: CRBP), the state’s top-performing public biotech last year, said that it planned to advance its anti-inflammatory drug anabasum into a single, year-long Phase 3 study for the treatment of scleroderma, a rare autoimmune disease. There is currently no approved treatment for the… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - April 5, 2017 Category: Pharmaceuticals Authors: Max Stendahl Source Type: news

Scleroderma Symptoms and Signs
Title: Scleroderma Symptoms and SignsCategory: Doctor's& Expert's views on SymptomsCreated: 7/19/2013 12:00:00 AMLast Editorial Review: 4/4/2017 12:00:00 AM (Source: MedicineNet Arthritis General)
Source: MedicineNet Arthritis General - April 4, 2017 Category: Rheumatology Source Type: news

[Perspective] Fibroblasts become fat to reduce scarring
Following cutaneous injury in adult mammals, one of two outcomes can occur: successful healing with scar formation or nonsuccessful healing and a chronic wound. In humans, scar formation can be classified in terms of “normal scar” formation versus pathologically increased fibrosis, as seen in hypertrophic scarring and keloids (1). Although scarring does not look or function like surrounding unwounded skin, it allows one to survive injury (and hence, procreate). However, extensive scarring from burns and conditions such as scleroderma or epidermolysis bulosa are not only unsightly but also contribute to substant...
Source: ScienceNOW - February 16, 2017 Category: Science Authors: Charles K. F. Chan Tags: Tissue Regeneration Source Type: news

Combo Tx Aids in Scleroderma PAH (CME/CE)
(MedPage Today) -- Trial data support ambrisentan plus tadalafil (Source: MedPage Today Cardiovascular)
Source: MedPage Today Cardiovascular - January 6, 2017 Category: Cardiology Source Type: news

January 2017
Pregnancy and Beyond: Make Healthy Choices for Yourself and Your Baby...How to Spot and Prevent Deep Vein Thrombosis: When the Clot Thickens...Palliative Care Improves Quality of Life...Scleroderma Affects Skin and More...Featured Web Site: Types of Cancer (Source: NIH News in Health)
Source: NIH News in Health - January 1, 2017 Category: Consumer Health News Source Type: news

Gene Activity Predicts Progression of Systemic Sclerosis Gene Activity Predicts Progression of Systemic Sclerosis
A 415-gene expression profile distinguished skin from patients with systemic sclerosis from healthy skin and predicted response to treatment a year sooner than did conventional skin-pinch testing.Medscape Medical News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - December 23, 2016 Category: Consumer Health News Tags: Rheumatology News Source Type: news

Personal Health: Cold Hands May Signal Raynaud ’ s Phenomenon
The condition, affecting up to 5 percent of the population, is uncomfortable but not necessarily dangerous. (Source: NYT Health)
Source: NYT Health - December 5, 2016 Category: Consumer Health News Authors: JANE E. BRODY Tags: Skin Anxiety and Stress Scleroderma Seasons and Months Source Type: news

Top-performing Mass. biotech Corbus extends study of promising drug
Norwood-based Corbus Pharmaceuticals, the top-performing biotech stock in the state so far in 2016, said Tuesday that it will extend a Phase 2 study of its only drug in development. Corbus (Nasdaq: CRBP) said that the FDA had approved a one-year, open-label extension study of the trial of anti-inflammatory drug Resunab to treat skin-predominant dermatomyositis. In April, the regulator approved a one-year extension study of Resunab for patients with systemic sclerosis. The com pany said in a statement… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - November 29, 2016 Category: Pharmaceuticals Authors: Max Stendahl Source Type: news

Lactose Malabsorption in Systemic Sclerosis Lactose Malabsorption in Systemic Sclerosis
This study investigated the relationship between dietary lactose intake and gastrointestinal dysfunction.Alimentary Pharmacology & Therapeutics (Source: Medscape Allergy Headlines)
Source: Medscape Allergy Headlines - November 15, 2016 Category: Allergy & Immunology Tags: Gastroenterology Journal Article Source Type: news

Corbus drug succeeds in mid-stage scleroderma study, shares surge
(Reuters) - Corbus Pharmaceuticals Holdings Inc said its only drug outperformed a placebo in a mid-stage study involving patients with a form of systemic sclerosis, an incurable autoimmune condition caused by abnormal growth of connective tissue. (Source: Reuters: Health)
Source: Reuters: Health - November 14, 2016 Category: Consumer Health News Tags: healthNews Source Type: news

Dermatology: five pictorial cases and outcomes
Five illustrated cases of skin conditions, including pityriasis/tinea amiantacea, morphea (localised scleroderma), nicorandil-induced ulceration and two cases showing the effectiveness of topical chemotherapy agents in skin dysplasia. (Source: GP Online Education)
Source: GP Online Education - November 8, 2016 Category: Primary Care Tags: 15.10 Skin Problems Source Type: news

Risk Factors for PAH Development in Systemic Sclerosis Risk Factors for PAH Development in Systemic Sclerosis
Which factors may contribute to the development of pulmonary arterial hypertension among patients with systemic sclerosis?BMC Pulmonary Medicine (Source: Medscape General Surgery Headlines)
Source: Medscape General Surgery Headlines - November 7, 2016 Category: Surgery Tags: Pulmonary Medicine Journal Article Source Type: news