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Challenges of implementation of the RCPCH paediatric stroke guidelines (acute management component) and how they can be overcome
In August 2017, the Royal College of Paediatric and Child Health (RCPCH) published guidelines for the management of stroke in childhood between 1 month and 18 years of age (see hyperlink). This comprehensive 169-page publication is a National Institute for Health and Care Excellence (NICE)-accredited multiprofessional evidence-based guideline that provides recommendations for the management of stroke in children and young people. A small proportion of the guideline focuses on acute ischaemic stroke management with thrombolysis. Only a small number of children will be eligible for consideration for thrombolysis; however, it...
Source: Archives of Disease in Childhood - June 17, 2022 Category: Pediatrics Authors: Byrne, S., Ram, D. Tags: Review Source Type: research

Annelizabeth ’s story: Care that feels like home, close to home
When you’re 5, it’s nice to have a place that feels like a second home. Where there are lots of hugs. And songs. And games. And you can curl up and watch “Frozen,” your favorite movie. For Annelizabeth Jean-Baptiste, a spunky Waltham kindergartener, that place is Boston Children’s Hospital at Waltham. Annelizabeth, or Annie (but never Anna, she says), first came to Boston Children’s at Waltham two weeks after she was born. Her mother Elcie wasn’t expecting that her fourth child would need special care. “It was a difficult pregnancy. I was very excited and relieved when she was born.” But that sense of rel...
Source: Thrive, Children's Hospital Boston - August 29, 2016 Category: Pediatrics Authors: Lisa Fratt Tags: Our Patients’ Stories Boston Children's at Waltham Dr. Rachael Grace sickle cell disease Source Type: news

Experience Journal: Growing up with cerebral palsy
Cerebral palsy (CP) is the most common physical disability of childhood. The term CP is an umbrella term for a group of disorders that affect body movement and posture as a result of damage to a baby’s developing brain. There are many causes for CP, but all occur either during pregnancy, birth or shortly after birth. Common causes include differences in brain development, infection or stroke. Oxygen deprivation is accountable for only a small percentage of cases of CP; often, the cause is unknown. Although CP is a lifelong condition that can’t be reversed, children with the diagnosis can lead rich, fulfilling lives wit...
Source: Thrive, Children's Hospital Boston - March 18, 2016 Category: Pediatrics Authors: Erin Horan Tags: Experience Journal Cerebral Palsy Program Source Type: news

From Bermuda to Boston for surgery to protect the brain of a boy with sickle cell disease
Calvin Steede, who lives in Bermuda, will never forget the day in 2011 when he saw the movie “Winnie the Pooh” with his mother and sister. The film ended, and suddenly the boy who likes to draw and play soccer couldn’t put on his backpack. His arms had stopped working. He couldn’t stand, and soon he couldn’t talk. Calvin, now 11, had suffered a minor stroke, a complication of sickle cell disease and the first step of a journey that would take him to Dana-Farber/Boston Children’s Cancer and Blood Disorders Center for minimally invasive surgery to protect his brain from future strokes. Sickle cell disease Sickle ...
Source: Thrive, Children's Hospital Boston - June 19, 2015 Category: Pediatrics Authors: Irene Sege Tags: Diseases & conditions Dana-Farber/Boston Children's Cancer and Blood Disorders Center moyamoya sickle cell disease Source Type: news

Question 1: Is ultrasound scanning as sensitive as CT in detecting skull fractures in children presenting following head injury?
Scenario An 11-month-old child is brought to the emergency department following a witnessed fall from a dining room chair. There was no loss of consciousness and only a single episode of vomiting immediately following the fall. Neurological examination is normal, however, there is a 5 cm bruised boggy swelling in the left parietal region and you suspect there may be a skull fracture. The child meets the criteria for neuroimaging with CT scanning according to NICE guidance.1 The parents express anxiety about radiation exposure (a young relative is currently being treated for leukaemia), in addition to concerns about th...
Source: Archives of Disease in Childhood - September 11, 2014 Category: Pediatrics Authors: Burke, K., Christian, W. Tags: ADC Archimedes, Oncology, Neurological injury, Stroke, Radiology, Other anaesthesia, Clinical diagnostic tests, Radiology (diagnostics), Trauma, Injury Source Type: research

Sickle cell disease, update on management
Abstract: The article aims to provide a broad overview of sickle cell disorders emphasizing current developments in modern management. The value of neonatal screening, now universal in England, is evaluated with emphasis on the importance of effective measures to reduce the risk of pneumococcal infection. Complications of sickle cell disease are discussed individually with key points of management highlighted, stroke and the use of transcranial Doppler screening as a tool to identify high risk patients is discussed in detail.The importance of effective, safe and rapid pain relief is highlighted and reference given to new N...
Source: Paediatrics and Child Health - October 15, 2013 Category: Pediatrics Authors: Amanda Cope, P.J. Darbyshire Tags: Symposium: Haematology Source Type: research