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Total 87 results found since Jan 2013.

A qualitative study on palliative needs of stroke patients in an Indian tertiary care setting - Doctors & #39; perspective
Conclusions: From the interviews of the clinicians, we can conclude that care of a stroke patient is more than medical management and rehabilitation, as several other aspects of the patient's life are affected by the condition. The quality of life aspect has to be looked upon as an area that requires active intervention in a setting of stroke. Physical disabilities were viewed as the most significant factor in reducing the quality of life. Spiritual needs have a low priority in comparison to other physical needs. Due to high patient load and time constraints, many of the needs are unaddressed. Two important area...
Source: Indian Journal of Palliative Care - January 31, 2019 Category: Palliative Care Authors: Jacob Lloyd Ashna Maria Pinto Shoba Nair Subhash Tarey Source Type: research

Provision of palliative and end-of-life care in stroke units: A qualitative study.
Conclusions:The findings provide encouraging evidence that palliative and end-of-life care have been adopted as key components of specialist stroke care in UK stroke units. However, many patients stand to benefit from earlier identification of palliative care need and a consideration of quality-of-life approaches during active care. Encouraging collaboration and partnership when working with specialist palliative care services would optimise palliative care service delivery and may provide patients and their families with greater opportunities for documenting and achieving preferences for care and achieving a better qualit...
Source: Palliative Medicine - April 11, 2013 Category: Palliative Care Authors: Gardiner C, Harrison M, Ryan T, Jones A Tags: Palliat Med Source Type: research

The study protocol of: 'initiating end of life care in stroke: clinical decision-making around prognosis'
This study aims to investigate clinicians' use of different types of evidence in decisions to initiate end of life care within trajectories typical of the acute stroke population. Methods: This two-phase, mixed methods study comprises investigation of dying trajectories in acute stroke (Phase 1), and the use of clinical scenarios to investigate clinical decision-making in the initiation of palliative care (Phase 2). It will be conducted in four acute stroke services in North Wales and North West England. Patient and public involvement is integral to this research, with service users involved at each stage.DiscussionThis st...
Source: BMC Palliative Care - December 5, 2014 Category: Palliative Care Authors: Christopher BurtonSheila PayneMary TurnerTracey BucknallJo MalonePippa TyrrellMaria HorneLupetu NtambweSarah TysonHelen MitchellSion WilliamsSalah Elghenzai Source Type: research

The study protocol of: `Initiating end of life care in stroke: clinical decision-making around prognosis¿
This study aims to investigate clinicians’ use of different types of evidence in decisions to initiate end of life care within trajectories typical of the acute stroke population.Methods/designThis two-phase, mixed methods study comprises investigation of dying trajectories in acute stroke (Phase 1), and the use of clinical scenarios to investigate clinical decision-making in the initiation of palliative care (Phase 2). It will be conducted in four acute stroke services in North Wales and North West England. Patient and public involvement is integral to this research, with service users involved at each stage.DiscussionT...
Source: BMC Palliative Care - December 5, 2014 Category: Palliative Care Authors: Christopher BurtonSheila PayneMary TurnerTracey BucknallJo Rycroft-MalonePippa TyrrellMaria HorneLupetu NtambweSarah TysonHelen MitchellSion WilliamsSalah Elghenzai Source Type: research

Communication, the key in creating dignified encounters in unexpected sudden death & #8211; With stroke as example
Conclusion: Communication shown as the foundation for dignified encounters in care as experienced by stroke team members and next of kin enables the patient to come forth as a unique person and uphold absolute dignity in care. Acknowledging the next of kin's familiarity with the severely ill patient will contribute to personalizing the patient and in this way be the ground for a person centeredness in care despite the patients' inability to defend their own interests. Through knowledge about the patient as a person, the foundation for dignified care is given, expressed through respect for the patient&...
Source: Indian Journal of Palliative Care - January 31, 2019 Category: Palliative Care Authors: Å sa CU Rejn ö Linda K Berg Source Type: research

Dysphagia as a predictor of outcome and transition to palliative care among middle cerebral artery ischemic stroke patients
This study determined some predictors of early transition to palliative level of care among patients with acute ischemic MCA stroke with dysphagia. Methods: This is a retrospective cohort study. Demographic and clinical data of patients presenting to Hartford Hospital with an acute ischemic stroke between January 2005-December 2010 were gathered utilizing the Stroke Center at Hartford Hospital Database. The 236 patients included were divided into "early transition" and "not transitioned" to palliative care cohorts. Primary outcome was transition to palliative care. Factors that were significantly associated with an early t...
Source: BMC Palliative Care - Latest articles - May 10, 2013 Category: Palliative Care Authors: Christa San LuisIlene StaffGilbert FortunatoLouise McCullough Source Type: research

Life-and-death decision-making in the acute phase after a severe stroke: Interviews with relatives.
CONCLUSION: A better understanding of the latent world of experiences of relatives that influence the decision-making process may help physicians and other health-care providers to better involve relatives in decision-making and enhance the care, including palliative care, for patients with severe stroke in line with their values and preferences. Communication between physician and relatives seems vital in this process. PMID: 25634632 [PubMed - as supplied by publisher]
Source: Palliative Medicine - January 29, 2015 Category: Palliative Care Authors: de Boer ME, Depla M, Wojtkowiak J, Visser MC, Widdershoven GA, Francke AL, Hertogh CM Tags: Palliat Med Source Type: research

Validation of the caregiving knowledge questionnaire-my: Measuring knowledge regarding positioning and feeding among Malaysian informal caregivers of stroke patients
Conclusions: CKQ-My has good internal consistency and construct validity for the subscales measuring stroke caregivers' knowledge about positioning and feeding of stroke patients. It has potential as an assessment of effectiveness of caregiver training and for future studies on long-term stroke outcomes in Malaysia.
Source: Indian Journal of Palliative Care - October 15, 2018 Category: Palliative Care Authors: Chai-Eng Tan Aznida F Abdul Aziz May-Yin Hi Nur Sarah A Azmi Nur Khairina Ishak Fathin Alyaa Mohamad Farid Mohammad Nazri Zulkafli Source Type: research

End-of-Life Care for Stroke
Stroke is a leading cause of disability and the third leading cause of death in Canada, according to the Heart and Stroke Association. Despite a high mortality rate, the experience of dying from a stroke has received limited attention from a palliative point of view. When attempting to make inferences from other specialties that have well researched methods of palliation, there was an obvious gap when considering the stroke population. Palliative stroke patients, at the Royal University Hospital, rarely have access to a bed on a specialized palliative care unit.
Source: Journal of Pain and Symptom Management - November 30, 2018 Category: Palliative Care Authors: Shelley Jolly, Ruth Whelan, Kimberly Davy Source Type: research

End-of-Life Symptoms in Adult Patients With Stroke in the Last Two Years of Life: An Integrative Review
CONCLUSIONS: There is a need for better assessment and management of EOL symptoms in patients with stroke. Established palliative and EOL care guidelines need to be incorporated into clinical practice to ensure access to high-quality care.PMID:37615127 | DOI:10.1177/10499091231197657
Source: The American Journal of Hospice and Palliative Care - August 24, 2023 Category: Palliative Care Authors: Hanna Ramsburg Helene J Moriarty Meredith MacKenzie Greenle Source Type: research

Factors associated with physical and psychosocial problems among Indian stroke survivors
Conclusions: Sociodemographic variables of stroke patients can predict their physical and psychosocial problems, which can help the health-care professionals optimize rehabilitation strategies. There is an urgent need of expert rehabilitative and palliative services in India.
Source: Indian Journal of Palliative Care - January 31, 2019 Category: Palliative Care Authors: Mohit Sharma Mohan Lal Tejbir Singh Shyam Sundar Deepti Source Type: research

Palliative Care and Stroke: An Integrative Review of the Literature (S740)
Stroke survivors and their family members face unique needs related to life-altering functional and cognitive changes and burdensome symptoms, which negatively impact quality of life (QOL). Guidelines recommend that primary palliative care (PC) be offered to all stroke patients; however, gaps exist in understanding how PC is perceived and implemented within stroke.
Source: Journal of Pain and Symptom Management - February 1, 2018 Category: Palliative Care Authors: Kristen Overbaugh, Stephanie Molidor, Carole White, Deborah James Source Type: research

This Stroke Changed My Life and I Need Help: Social Media Resources for Bilingual Caregivers of Stroke Victims (S753)
Stroke remains a leading cause of long-term disability and burdened quality of life not only for stroke survivors with remaining disability (SSRDs) but also for the informal caregivers (ICGs) who care for them. Approximately 50% of SSRDs will require ICG hands-on support, precluding them from leaving home. With current technology, social media might be the only way for ICG to gain training/access support. What resources are available out there for ICGs of SSRDs?
Source: Journal of Pain and Symptom Management - January 25, 2020 Category: Palliative Care Authors: Sandra Sanchez-Reilly, Laura Reilly-Sanchez, Valeria Restrepo, Marcos Restrepo, Jeanette Ross, Michael Mader Source Type: research

Development and usability testing of Understanding Stroke, a tailored life-sustaining treatment decision support tool for stroke surrogate decision makers
We describe the development process and key features for the Understanding Stroke web-ba...
Source: BMC Palliative Care - July 20, 2020 Category: Palliative Care Authors: Emily P. Chen, Cynthia Arslanian-Engoren, William Newhouse, Diane Egleston, Savina Sahgal, Aneesha Yande, Angela Fagerlin and Darin B. Zahuranec Tags: Research article Source Type: research