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Total 389 results found since Jan 2013.

Surveillance for Sickle Cell Disease - Sickle Cell Data Collection Program, Two States, 2004-2018
This report is the first comprehensive description of CDC's efforts in collaboration with participating states to establish, maintain, and expand SCD surveillance through the SCDC program to improve health outcomes for persons living with SCD. Findings from California and Georgia analyses highlighted a need for additional SCD specialty clinics. Despite different approaches, expansion of SCDC to multiple states was possible using standardized, rigorous methods developed across all participating states for reporting on disease prevalence, health care needs and use, and deaths.PUBLIC HEALTH ACTION: Findings from surveillance ...
Source: MMWR Surveill Summ - October 6, 2022 Category: Epidemiology Authors: Angela B Snyder Sangeetha Lakshmanan Mary M Hulihan Susan T Paulukonis Mei Zhou Sophia S Horiuchi Karon Abe Shammara N Pope Laura A Schieve Source Type: research

Study Protocol: IMPETUS: Implementing a uniform stroke care pathway in medical colleges of India: IMPETUS Stroke
We present here a protocol to investigate the feasibility and fidelity of implementing a uniform stroke care pathway in medical colleges of India. Methods and Analysis: This is a multicentric, prospective, multiphase, mixed-method, quasi-experimental implementation study intended to examine the changes in a select set of stroke care-related indicators over time within the sites exposed to the same implementation strategy. We shall conduct process evaluation of the implementation process as well as evaluate the effect of the implementation strategy using the interrupted time series design. During implementation phase, educa...
Source: Annals of Indian Academy of Neurology - September 9, 2022 Category: Neurology Authors: Rohit Bhatia Partha Haldar Inder Puri MV Padma Srivastava Sanjeev Bhoi Menka Jha Anupam Dey Suprava Naik Satyabrata Guru Mamta Bhushan Singh VY Vishnu Roopa Rajan Anu Gupta Deepti Vibha Awadh Kishore Pandit Ayush Agarwal Manish Salunkhe Gunjan Singh Deeps Source Type: research

What is Ondine ’ s Curse?
Discussion Congenital central hypoventilation syndrome (CCHS) is an autosomal dominant with variable inheritance genetic disease caused by mutation in the Paired Like Homeobox B2 (PHOX2B) gene on chromosome 4. There are two other genes which may also cause CCHS. CCHS affects the chemoreceptor afferent ventilation pathways and is a neural crest migration problem of the autonomic nervous system. The incidence is unknown but a prevalence of 1 in 200,000 live births has been reported. Obviously it is a rarer phenomenon because of the general lethality of the syndrome. Patients usually present at birth or soon afterwards, but o...
Source: PediatricEducation.org - August 15, 2022 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news

IJERPH, Vol. 19, Pages 8995: Bridging the Gap between Clinical Service and Academic Education of Hand-Splinting Practice: Perspectives and Experiences of Thai Occupational Therapists
ch Thichanpiang A gap in knowledge about current splinting practice exists between the educational program and clinical service. To bridge this gap, we investigated the perspectives and experiences of Thai occupational therapists regarding contemporary hand splinting practices in clinical use. A mixed-method study was designed. An explanatory sequential mixed methods design was used. In the first quantitative phase, a survey questionnaire was mailed to occupational therapists. The questions were regarding contemporary hand splinting practices in clinical use at seven hospitals in the capital city of Bangkok and outskir...
Source: International Journal of Environmental Research and Public Health - July 24, 2022 Category: Environmental Health Authors: Anuchart Kaunnil Veerawat Sansri Surachart Thongchoomsin Kannika Permpoonputtana Mandy Stanley Piyawat Trevittaya Chirathip Thawisuk Peeradech Thichanpiang Tags: Article Source Type: research

Climate Experts Are Testing New Ways To Reach the People Most Affected by Extreme Heat
As heat waves become longer, hotter, and more widespread across the planet, human responses to them are becoming increasingly local and specialized. Both scientific researchers and government officials are finding that the best strategies to keep cool are ones that are specially tailored to a community. That may seem obvious, given that outdoor laborers need different cooling resources than school teachers, for instance. But existing national and regional policies aren’t always that fine tuned—and they run the risk of wasting resources or missing the most vulnerable people. [time-brightcove not-tgx=”tru...
Source: TIME: Health - July 19, 2022 Category: Consumer Health News Authors: Emily Barone Tags: Uncategorized climate climate change Climate Is Everything extreme weather healthscienceclimate Source Type: news

Late effects of childhood cancer recorded at a single outpatient clinic over the course of one year: implications for the follow-up care
Neoplasma. 2022 Jul 13:220531N584. doi: 10.4149/neo_2022_220531N584. Online ahead of print.ABSTRACTSystematic registration and analysis of detailed treatment data and data on late effects in survivors of childhood cancer are important both for building the evidence base for future assessment of current innovative therapies in pediatric oncology and for personalization of preventive care for survivors of childhood cancer. The paper provides a descriptive analysis of medical data (diagnosis, treatment, late effects, and health status) and selected patient-reported outcomes (mental health and psychosocial well-being) from a s...
Source: Neoplasma - July 12, 2022 Category: Cancer & Oncology Authors: Tomas Kepak Hana Hrstkova Vitezslav Dusek Marta Holikova Lucie Strublova Katerina Kepakova Source Type: research